Cancer diagnosis disclosure preferences of family caregivers of cancer patients in Egypt

Alsirafy, Samy A.; Abdel-Kareem, Shady S.; Ibrahim, Noha; Abolkasem, Mohamed A.; Farag, Dina E.

doi:10.1002/pon.4206

Cited by 17 publications

(33 citation statements)

References 21 publications

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“…The social structure of the region is based usually on the importance of the family bonds instead of the individual autonomy 7 . In our study, the majority of patients (84%) were aware of their cancer diagnosis, consistent with the results of another study from Egypt that included family caregivers 8 . The prevalence of awareness of diagnosis among cancer patients varies widely from a country to another.…”

Section: Resultssupporting

confidence: 80%

“…Another factor that may have contributed to the unawareness of some of our patients is their families' negative attitude towards truth-telling. In context, a recent Egyptian research revealed that some of family caregivers preferred not to disclose cancer diagnosis to patients, but , the majority preferred truth-telling 8 . Besides our cultural and religious codes, legislations should assure our patient's right to have an informed consent which should be applied in the Middle Eastern countries.…”

Section: Resultsmentioning

confidence: 99%

“…Data emanating from Egypt are limited. Since, only few studies investigated issues related to cancer diagnosis disclosure in the Egyptian cancer care setting 5,8,9 . Therefore, we aimed to evaluate prevalence of and factors associated with unawareness of diagnosis among Egyptian cancer patients.…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Awareness of Diagnosis in Patients with Cancer: A Study from Egypt

Hammad

Farag

El-Haddad

et al. 2016

Kasr-Al-Aini J.of Clin. Onc. and Nuc. Med.

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Background:One of the barriers to cancer care is the inadequate communication with patients and their families. In Egypt, it is believed that culture is against the honest disclosure of cancer diagnosis. So, the majority of cancer patients are usually unaware of their diagnosis. Aim: To study cancer diagnosis awareness among a group of Egyptian patients and the factors contributing to their unawareness. Methods: The study included 119 cancer patients from two cancer centers; one in Cairo and the other in Sharkia. Patients were asked about their illness and who answered as having "cancer/tumor" or mentioned the name of cancer considered aware. results: The majority of our patients (100/119, 84%) were aware of their cancer diagnosis. Their answer was "cancer" in 31%, "tumor" in 60% and the name of cancer in 9%. While, a minority (19 /119, 16%), were unaware of their cancer diagnosis. They were more likely to be less educated, older in age, males, unmarried, and from Sharkia. None of the studied variables associated significantly with awareness. conclusions: The results of this study suggest that most cancer patients in Egypt are aware of their diagnosis. This may be due to a change in the Egyptian cultural attitude towards truth telling and a shift in the approach of care from paternalistic to patient-centred.

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Section: Resultssupporting

confidence: 80%

Section: Resultsmentioning

confidence: 99%

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Awareness of Diagnosis in Patients with Cancer: A Study from Egypt

Hammad

Farag

El-Haddad

et al. 2016

Kasr-Al-Aini J.of Clin. Onc. and Nuc. Med.

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“…Nurses suggested that medical teams should communicate with patients' family members and try to influence their attitudes toward truth telling. A similar suggestion was made in Alsirafy's study . Medical staff were recommended to enquire about the reasons underlying why family members conceal diagnoses from patients.…”

Section: Resultsmentioning

confidence: 74%

“…In many areas of the world, family members have been reported to be an obstacle to CDD to patients by asking medical professionals not to tell the truth . In our former study, family members preferred to hide cancer diagnoses from patients to protect them from perceived emotional harm …”

Section: Resultsmentioning

confidence: 79%

Nurses' experiences and attitudes toward diagnosis disclosure for cancer patients in China: A qualitative study

et al. 2019

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Objective To qualitatively investigate and explore oncology nurses' perceptions of cancer diagnosis disclosure (CDD) for cancer patients. Methods Purposive sampling led to the inclusion of 25 nurses with diverse characteristics from four inpatient oncology nursing wards in two tertiary hospitals. Semistructured, one‐on‐one, in‐depth interviews were conducted. Colaizzi's analysis method was performed with NVivo software to develop categories and themes. Results Four themes were identified: (a) impact of CDD, including advantages and disadvantages for patients and nurse distress; (b) barriers to CDD, including requests from family members, patients themselves, and communication skills; (c) strategies for CDD, including communication with family members, physician‐nurse collaboration, and patient education; and (d) nurses' roles in CDD, including active participants and promoters and advocates. Conclusions More channels of information and education on cancer, cancer diagnosis, life, and death will be needed in the future. Nurses should actively participate in cancer diagnosis delivery, and more collaboration between nurses and physicians must occur.

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Disclosure of Cancer Diagnosis: an Individualized and Non-paternalistic Approach Is Preferred

Qadire

2017

J Canc Educ

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There is no consensus among healthcare providers on a unified disclosure practice with regard to cancer diagnosis, whether to tell or not. This issue is complicated by the absence of a clear policy for healthcare practitioners, who face this dilemma every day in their clinical practice. This study uniquely aims to explore Jordanian public preference on cancer diagnosis disclosure and the type of information they need. A descriptive cross-sectional survey design was used in this study. The sample consisted of 485 participants who were conveniently selected from the Jordanian public, and data was collected using the Arabic-Cancer Patients Information Needs Questionnaire. The majority of participants were females (56.1%) and most of them (62.1%) were aged between 18 and 29 years. It was found that 421 (86.8%) participants wanted to be informed of the diagnosis if they developed cancer. Participants show high needs of information with mean of total score of 4.2 SD 0.7 out of 5. They mainly demanded to know the things that participants could do to help their cure (mean = 4.47, SD 0.77). Also, they wanted to know whether their cancer was under control or not (item no. 4, mean = 4.42, SD 0.81). This study marks a point of change in public thinking about health issues. Jordanian public preferred to be fully informed of their cancer diagnosis. They wanted information about their prognosis, treatment and the available supportive services, which are of great interest to the Jordanian public.

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Cancer diagnosis disclosure preferences of family caregivers of cancer patients in Egypt

Cited by 17 publications

References 21 publications

Awareness of Diagnosis in Patients with Cancer: A Study from Egypt

Awareness of Diagnosis in Patients with Cancer: A Study from Egypt

Nurses' experiences and attitudes toward diagnosis disclosure for cancer patients in China: A qualitative study

Disclosure of Cancer Diagnosis: an Individualized and Non-paternalistic Approach Is Preferred

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