Cancer rehabilitation: Psychosocial rehabilitation needs after discharge from hospital?

Mikkelsen, Thorbjørn Hougaard; Søndergaard, Jens; Jensen, Anders Bonde; Olesen, Frede

doi:10.1080/02813430802295610

Cited by 56 publications

(43 citation statements)

References 19 publications

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“…For example, cancer patients and survivors tend to experience such negative emotions as anger, guilt, depression, isolation, stress, and anxiety, among others [11, 13, 34]. Also, the uncertainty and fear of relapse after one has been successfully treated can absorb a substantial part of the emotional wellbeing of a given survivor [11, 12, 14] and can last many years [34–36]. Additional burdens on CPS include the need for social support [14], affective and intimacy problems, and economic and vocational struggles [34], all of which can be distressing to both the physical and the psychosocial functioning of patients and their caregivers [37, 38].…”

Section: Discussionmentioning

confidence: 99%

Identifying clinical and support service resources and network practices for cancer patients and survivors in southern Puerto Rico

Castro

Jiménez

Quinn

et al. 2014

Support Care Cancer

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Objective The objectives of this study were to identify cancer-related health care services and to explore the presence of inter-organizational interactions among clinical and support oncology services in southern Puerto Rico. Methods From January through July of 2010, a survey was completed by 54 health care organizations offering clinical, supportive, or both services to cancer patients/survivors (CPS) in southern PR. Survey data were compiled and descriptive analyses performed using the software Statistical Package for a Social Science (SPSS), version 18.0. Results The distribution of the primary services provided by the participating organizations was the following: 26 had clinical services, 16 had support services, and 12 offered a combination of clinical and support services. Only 24% of the surveyed organizations offered their services exclusively to patients diagnosed with cancer. In terms of referral practices, 61% of the responses were for medical specialists, 43% were for mental health services, and 37% were referrals for primary care services. The most common reason for interacting (n = 27) was to provide a given patient both an referral and information. Conclusion Findings suggest gaps in both the availability of oncology services and the delivery of integrated health care. Lack of communication among clinical and support organizations (for cancer patients, specifically) could negatively impact the quality of the services that they offer. Further network analysis studies are needed to confirm these gaps. Until systemic, structural changes occur, more efforts are needed to facilitate communication and collaboration among these kinds of organization.

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Section: Discussionmentioning

confidence: 99%

Identifying clinical and support service resources and network practices for cancer patients and survivors in southern Puerto Rico

Castro

Jiménez

Quinn

et al. 2014

Support Care Cancer

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“…Patients with cancer experience the transition from hospital to home as an insecure period, and some even feel abandoned by the health care system during the first time at home [1]. One month after discharge for colorectal cancer surgery, patients still struggle with physical symptoms and are in the process of regaining their ability to comprehend information [2].…”

Section: Introductionmentioning

confidence: 99%

Patients’ Perception of Information and Health-Related Quality of Life 1 Month After Discharge for Colorectal Cancer Surgery

et al. 2014

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The aim of this study was to investigate how patients perceive information and their health-related quality of life 1 month after discharge for colorectal cancer surgery. The aim was also to compare these results with the first 2 weeks at home and to identify factors related to the perception of information. One hundred patients from three surgical clinics in the south of Sweden were included in this study. Perception of information was assessed with EORTC QLQ-INFO25, health-related quality of life with QLQ-C30 and QLQ-CR38, classification of physical status with American Society of Anaesthesiologists (ASA) and sense of coherence with SOC-13. Patients in this study did not receive enough information, and this had not changed significantly since the first 2 weeks at home. Only one subscale about disease information (p = 0.01) had improved since the first 2 weeks at home, while health-related quality of life had improved significantly during the same period. Poorer physical status and living alone were related to a perception of having received less information after discharge. Patients did not receive sufficient information to prepare them for the period at home after discharge, and their perception of information remained during the first month at home. Patients with a poorer preoperative physical status and who live alone constitute a vulnerable group in need of more information at discharge. This enhances the need to individualize the information and to offer multiple ways of accessing information after discharge.

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“…Due to the effects of cancer and its treatment, cancer survivors often experience physical problems such as pain, fatigue, or musculoskeletal problems, even years after diagnosis . Moreover, these patients may experience psychosocial problems because they may believe themselves to be more vulnerable because of having (had) a life‐threatening disease that may have changed their life and functioning substantially . Consequently, cancer survivors have been shown to have a reduced physical and mental health‐related quality of life (HRQOL) compared with general population samples …”

Section: Introductionmentioning

confidence: 99%

Health‐related quality of life and health care use in cancer survivors compared with patients with chronic diseases

Heins

Korevaar

Hopman

et al. 2016

Cancer

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BACKGROUND The number of cancer survivors is steadily increasing and these patients often experience long‐lasting health problems. To make care for cancer survivors sustainable for the future, it would be relevant to put the effects of cancer in this phase into perspective. Therefore, the authors compared health‐related quality of life (HRQOL) and health care use among cancer survivors with that of patients with chronic diseases. METHODS Patients diagnosed at age >18 years with a cancer with a 5‐year survival rate > 20% and no distant metastases at the time of diagnosis and patients aged >18 years with physician‐diagnosed somatic chronic diseases without cancer were sent a questionnaire. HRQOL was measured with the RAND‐36, a measure of HRQOL. Self‐reported health care use was measured for general practitioner care, specialist care, rehabilitative care, physical therapy, ambulatory mental health care, and occupational health care. RESULTS A total of 601 cancer survivors and 1052 patients with chronic diseases without cancer were included in the current study. Multimorbidity was observed in 63% of the cancer survivors and 61% of the patients with chronic diseases. The HRQOL of the cancer survivors was significantly better than that of patients with chronic diseases after adjustment for age and sex. For the mental functioning subscale, no significant differences were found between the 2 groups. Cancer survivors were found to be less likely to have visited a general practitioner or cardiologist compared with patients with chronic diseases. CONCLUSIONS When considering physical HRQOL and health care use, cancer survivors appear to fare better than the average patient with chronic diseases. No difference in mental functioning was observed in the current study. Cancer 2016;122:962–70. © 2016 American Cancer Society.

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Cancer rehabilitation: Psychosocial rehabilitation needs after discharge from hospital?

Abstract: Each of these aspects should be carefully considered for each patient, preferably by one assigned healthcare provider. Fear of cancer relapse prevails among the patients, the family and the social network and it is important in relation to psychosocial rehabilitation.

Cited by 56 publications

References 19 publications

Identifying clinical and support service resources and network practices for cancer patients and survivors in southern Puerto Rico

Identifying clinical and support service resources and network practices for cancer patients and survivors in southern Puerto Rico

Patients’ Perception of Information and Health-Related Quality of Life 1 Month After Discharge for Colorectal Cancer Surgery

Health‐related quality of life and health care use in cancer survivors compared with patients with chronic diseases

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