Cancer Risk Perceptions, Beliefs, and Physician Avoidance in Appalachia: Results from the 2008 HINTS Survey

Vanderpool, Robin C.; Huang, Bin

doi:10.1080/10810730.2010.522696

Cited by 51 publications

(87 citation statements)

References 30 publications

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“…Other studies have examined the perceptions and attitudes of genetics, genetic testing, and genomic information of those at high-risk for breast cancer and Alzheimer's disease, women who were offered prenatal testing, African-American and EuropeanAmerican populations, as well as medical professionals, and consumers of genetic services (Lobb et al 2006;Hiraki et al 2009;Hines-Martin et al 2004;Etchegary et al 2008;O'Daniel et al 2010;Hernandez et al 2006). Although thoughts about cancer and vaccines have been addressed in the Appalachian population (Hutson et al 2007;Hutson et al 2011;Dorgan et al 2009;Vanderpool et al 2010), the topic of genetic research studies has not. Thus, our study fills this void in the literature and adds new information on the Appalachian population.…”

Section: Discussionmentioning

confidence: 99%

Perceptions of genetic research in three rural Appalachian Ohio communities

et al. 2012

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Appalachian Americans are an underserved population with increased risk for diseases having strong genetic and environmental precursors. The purpose of this study is to understand the thoughts and perceptions of genetic research of Appalachian Americans residing in eastern Ohio prior to conducting a genetic research study with this population. A genetic survey was developed and completed by 180 participants from Marietta, Cambridge and East Liverpool, Ohio. The majority of respondents were Caucasian women with a median age of 37.5 years. We found that participants had a high interest in participating in 80 %, allowing their children to participate in 78 %, and learning more about genetic research studies (90 %); moreover, they thought that genetic research studies are useful to society (93 %). When asked what information would be useful when deciding to participate in a genetic research study, the following were most important: how environmental pollutants affect their genes and their child's genes (84 %), types of biological specimens needed for genetic research studies (75 %) and who will have access to their samples (75 %). Of the 20 % who responded that they were "unsure" about participating in a genetic research study, the leading reason was "I don't have enough information about genetic research to make a decision" (56 %). We also asked respondents to choose their preferred method for receiving genetic information, and the principal response was to read a brochure (40 %). Findings from this study will improve community education materials and dissemination methods that are tailored for underserved populations engaged in genetic research.

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Section: Discussionmentioning

confidence: 99%

Perceptions of genetic research in three rural Appalachian Ohio communities

et al. 2012

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“…Participants who responded "yes" (n=2,327) were then asked to what extent they endorsed three researcher-identified reasons for avoiding the doctor (i.e., feeling uncomfortable when their body is being examined, fear of having a serious illness, and because it makes them think of dying); results concerning these items have been published elsewhere. 5,7,18,24 Next, participants were asked whether there were "any other reasons why you avoid seeing your doctor," and either wrote their response in a small box if completing a mail survey or stated their response to an interviewer, who summarized their response, if completing a phone survey. Responses were brief and typically consisted of a short phrase or sentence.…”

Section: Methodsmentioning

confidence: 99%

“…[5][6][7] Even individuals with major health problems 4,8,9 or who are experiencing symptoms [10][11][12] avoid seeking medical care. For example, in one study, 17% of patients diagnosed with rectal tumors reported that they waited a year or more to seek medical consultation after noticing symptoms, with some waiting up to five years.…”

Section: Introductionmentioning

confidence: 99%

“…17 To date, research on avoidance of medical care has been limited in the extent to which it examines the broad spectrum of reasons for avoidance (but see 7 ), often focusing on specific factors such as barriers or psychological characteristics (e.g., lack of insurance, fear of a diagnosis). [4][5][6]15,[18][19][20][21][22][23][24] A conceptual review of reasons people avoid medical care identified only six qualitative or mixed-methods studies assessing participantgenerated reasons, all of which used convenience samples with predominately white participants. 1 Moreover, five of the six studies reviewed assessed avoidance of specific procedures.…”

Section: Introductionmentioning

confidence: 99%

“…Given the significance and prevalence of medical care avoidance in the U.S., 1,5 there is a need for continued basic qualitative research that can uncover the reasons underlying this phenomenon. Simply put, why do people avoid medical visits that could save lives or reduce suffering, whether through early detection of disease or timely treatment?…”

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Why do People Avoid Medical Care? A Qualitative Study Using National Data

2014

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BACKGROUND: Many studies have examined barriers to health care utilization, with the majority conducted in the context of specific populations and diseases. Less research has focused on why people avoid seeking medical care, even when they suspect they should go. OBJECTIVE: The purpose of the study was to present a comprehensive description and conceptual categorization of reasons people avoid medical care. DESIGN: Data were collected as part of the 2008 Health Information National Trends Survey, a cross-sectional national survey. PARTICIPANTS: Participant-generated reasons for avoiding medical care were provided by 1,369 participants (40% male; M age =48.9; 75.1% non-Hispanic white, 7.4% non-Hispanic black, 8.5% Hispanic or Latino/ a). MAIN MEASURES: Participants first indicated their level of agreement with three specific reasons for avoiding medical care; these data are reported elsewhere. We report responses to a follow-up question in which participants identified other reasons they avoid seeking medical care. Reasons were coded using a general inductive approach. KEY RESULTS: Three main categories of reasons for avoiding medical care were identified. First, over one-third of participants (33.3% of 1,369) reported unfavorable evaluations of seeking medical care, such as factors related to physicians, health care organizations, and affective concerns. Second, a subset of participants reported low perceived need to seek medical care (12.2%), often because they expected their illness or symptoms to improve over time (4.0%). Third, many participants reported traditional barriers to medical care (58.4%), such as high cost (24.1%), no health insurance (8.3%), and time constraints (15.6%). We developed a conceptual model of medical care avoidance based on these results. CONCLUSIONS: Reasons for avoiding medical care were nuanced and highly varied. Understanding why people do not make it through the clinic door is critical to extending the reach and effectiveness of patient care, and these data point to new directions for research and strategies to reduce avoidance.

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Understanding middle‐aged and older adults' first associations with the word “cancer”: A mixed methods study in England

Agustina¹,

Dodd²,

Waller³

et al. 2017

Psycho-Oncology

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ObjectiveCancer is still widely feared and often associated with death. Fatalistic beliefs adversely affect help‐seeking for cancer symptoms and engagement in cancer prevention. This study aims to understand middle‐aged and older adults' first association with the word “cancer” and their relationship with sociodemographic factors, cancer fear, and cancer information avoidance.MethodsWe conducted a cross‐sectional survey of 1464 community‐based adults aged 50 to 70 living in England in April 2015. First associations with cancer were measured qualitatively and analysed using content analysis. We used binary logistic regression to analyse associations between the most common first association of cancer and sociodemographic characteristics, cancer fear, and cancer information avoidance.ResultsCancer was most commonly associated with “death” (26%). Respondents with lower levels of education, living in the Midlands or North of England where cancer mortality is higher, or with close friends or family members with a cancer history, were more likely to associate cancer with death. Cancer fear was significantly associated with death associations, but cancer information avoidance was not.ConclusionsDespite improved cancer outcomes, middle‐aged and older adults often associate cancer with death. Further efforts to decrease fatalistic associations in this age group may be needed.

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Cancer Risk Perceptions, Beliefs, and Physician Avoidance in Appalachia: Results from the 2008 HINTS Survey

Cited by 51 publications

References 30 publications

Perceptions of genetic research in three rural Appalachian Ohio communities

Perceptions of genetic research in three rural Appalachian Ohio communities

Why do People Avoid Medical Care? A Qualitative Study Using National Data

Understanding middle‐aged and older adults' first associations with the word “cancer”: A mixed methods study in England

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