Cancer survivors' needs reported by survivors and their families

Gerlach, Robert W; Gambosi, Joanne R.; Bowen, Robin T.

doi:10.1080/08858199009528037

Cited by 5 publications

(3 citation statements)

References 8 publications

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“…Family members may perceive they are at greater risk of developing cancer due to real or perceived shared genetic or environmental risk factors and have heightened awareness about cancer and its prevention [15, 16]. Thus, a cancer diagnosis could inspire behavior change among family members of the cancer patient by increasing awareness, perceptions of vulnerability, and receptivity to cancer prevention behaviors [15, 17]. …”

Section: Introductionmentioning

confidence: 99%

An investigation of the colorectal cancer experience and receptivity to family-based cancer prevention programs

Breitkopf

Asiedu

Egginton

et al. 2014

Support Care Cancer

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Purpose Cancer is a shared family experience and may provide a “teachable moment” to motivate at-risk family members to adopt cancer prevention and health promotion behaviors. This study explored how a diagnosis of colorectal cancer (CRC) is experienced by family members and may be used to develop a family-based CRC prevention program. Preferences regarding content, timing, and modes of program delivery were examined. Social cognitive theory provided the conceptual framework for the study. Methods This study employed mixed methodology (semi-structured interviews and self-report questionnaires). Participants included 73 adults (21 patients, 52 family members) from 23 families (two patients were deceased prior to being interviewed). Most patients (n=14; 67 %) were interviewed 1–5 years post-diagnosis. Individual interviews were audio-recorded, transcribed, and content analyzed. Results For many, a CRC diagnosis was described as a shared family experience. Family members supported each other’s efforts to prevent CRC through screening, exercising, and maintaining a healthy diet. Teachable moments for introducing a family-based program included the time of the patient’s initial cancer surgery and post-chemotherapy. Reported willingness to participate in a family-based program was associated with risk perception, self-efficacy, outcome expectancies, and the social/community context in which the program would be embedded. Program preferences included cancer screening, diet/nutrition, weight management, stress reduction, and exercise. Challenges included geographic dispersion, variation in education levels, generational differences, and scheduling. Conclusions CRC patients and family members are receptive to family-based programs. Feasibility concerns, which may be mitigated but not eliminated with technological advances, must be addressed for successful family-based programs.

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Section: Introductionmentioning

confidence: 99%

An investigation of the colorectal cancer experience and receptivity to family-based cancer prevention programs

Breitkopf

Asiedu

Egginton

et al. 2014

Support Care Cancer

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“…Patients and their caregivers experience high levels of psychological distress in the year following transplantation [1,5,13,16], and their social interactions allow them to cope more effectively with their illness through the help, knowledge, and affection they share with others [2,18]. When people have someone with whom to discuss concerns and worries about their illness, they experience reductions in stress and loneliness [1,2,7,17].…”

Section: Impact Of Social Support On Well-beingmentioning

confidence: 99%

HutchWorld

Farnham

Cheng

Stone

et al. 2002

Proceedings of the SIGCHI Conference on Human Factors in Computing Systems

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To address the needs of cancer patients and their caregivers, Microsoft Research and the Fred Hutchinson Cancer Research Center developed HutchWorld, an online community environment, to provide computer-mediated social and informational support. In a controlled clinical study, we deployed HutchWorld to bone marrow transplant patients and their caregivers and assessed the impact of Internet access and HutchWorld on their quality of life. We found that Internet access and the use of HutchWorld helped to buffer study participants against reductions in life satisfaction and social support following the transplant procedure. In particular, participants used the Internet to seek out support from family and friends.

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“… 15 , 16 Quantifying perceived needs is part of an essential process to outline the impact of the cancer experience in this population after the completion of active treatments. 17 , 18 …”

Section: Introductionmentioning

confidence: 99%

Do Perceived Needs Affect Willingness to Use Traditional Chinese Medicine for Survivorship Care Among Chinese Cancer Survivors? A Cross-Sectional Survey

Sun

Yang²,

Vertosick³

et al. 2017

JGO

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PurposeWe aimed to quantify Chinese cancer survivors’ perceived needs for survivorship care and to evaluate whether these needs could impact their willingness to use traditional Chinese medicine (TCM).MethodsWe conducted a cross-sectional survey with members of the Beijing Anti-Cancer Association in China. We measured perceived needs with the seven-item Brief Chinese Cancer Survivorship Needs Scale that assesses psychological, functional, nutritional, social, body image, pain, and symptom needs. The outcome variable was willingness to use TCM for survivorship care. We performed multivariable logistic regression analyses to evaluate whether perceived needs are associated with willingness.ResultsA total of 600 patients were invited, with a response rate of 81%. The mean (standard deviation) score of the perceived needs scale (0 to 10) was 4.4 (2.2), with the majority of participants endorsing nutritional (72%), symptom (65%), and psychological (54%) needs. Among survivors, 387 (80%; 95% CI, 76% to 83%) were willing to use TCM for survivorship care. In multivariable analysis, a higher perceived needs score (adjusted odds ratio [OR], 1.33; 95% CI, 1.14 to 1.56; P < .001) was associated with greater willingness to use TCM. Specifically, nutritional (OR, 3.17; 95% CI, 1.79 to 5.62; P < .001) and symptom needs (OR, 3.15; 95% CI, 1.79 to 5.55; P < .001) had the strongest relationship.ConclusionA higher level of perceived needs, especially in the areas of nutrition and symptoms, was associated with greater willingness to use TCM for survivorship care.

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Cancer survivors' needs reported by survivors and their families

Cited by 5 publications

References 8 publications

An investigation of the colorectal cancer experience and receptivity to family-based cancer prevention programs

An investigation of the colorectal cancer experience and receptivity to family-based cancer prevention programs

HutchWorld

Do Perceived Needs Affect Willingness to Use Traditional Chinese Medicine for Survivorship Care Among Chinese Cancer Survivors? A Cross-Sectional Survey

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