Capitalising on cultural dichotomies: Making the ‘right choice’ regarding cochlear implants

Edelist, Tracey

doi:10.1057/sth.2015.34

Cited by 5 publications

(2 citation statements)

References 22 publications

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“…In the case of CI, this applies especially to prelingually deaf children and their hearing or deaf parents who decide for or against a CI. Considering how Deaf people and hearing children of Deaf adults inhabit various in-between spaces, highlights the fluidity of cultural identities, deconstructing the notion of essentialist Deaf and hearing identities [ 140 ]. The various dimensions and intersections of implant-wearers’ cultural identity depicted in this review align with the concept of a fluid and complex cultural identity.…”

Section: Discussionmentioning

confidence: 99%

Patient-centered empirical research on ethically relevant psychosocial and cultural aspects of cochlear, glaucoma and cardiovascular implants – a scoping review

Schulz,

Harzheim,

Hübner

et al. 2023

BMC Med Ethics

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Background The significance of medical implants goes beyond technical functioning and reaches into everyday life, with consequences for individuals as well as society. Ethical aspects associated with the everyday use of implants are relevant for individuals’ lifeworlds and need to be considered in implant care and in the course of technical developments. Methods This scoping review aimed to provide a synthesis of the existing evidence regarding ethically relevant psychosocial and cultural aspects in cochlear, glaucoma and cardiovascular implants in patient-centered empirical research. Systematic literature searches were conducted in EBSCOhost, Philpapers, PsycNET, Pubmed, Web of Science and BELIT databases. Eligible studies were articles in German or English language published since 2000 dealing with ethically relevant aspects of cochlear, glaucoma and passive cardiovascular implants based on empirical findings from the perspective of (prospective) implant-wearers and their significant others. Following a descriptive-analytical approach, a data extraction form was developed and relevant data were extracted accordingly. We combined a basic numerical analysis of study characteristics with a thematically organized narrative synthesis of the data. Results Sixty-nine studies were included in the present analysis. Fifty were in the field of cochlear implants, sixteen in the field of passive cardiovascular implants and three in the field of glaucoma implants. Implant-related aspects were mainly found in connection with autonomy, freedom, identity, participation and justice, whereas little to no data was found with regards to ethical principles of privacy, safety or sustainability. Conclusions Empirical research on ethical aspects of implant use in everyday life is highly relevant, but marked by ambiguity and unclarity in the operationalization of ethical terms and contextualization. A transparent orientation framework for the exploration and acknowledgment of ethical aspects in “lived experiences” may contribute to the improvement of individual care, healthcare programs and research quality in this area. Ethics-sensitive care requires creating awareness for cultural and identity-related issues, promoting health literacy to strengthen patient autonomy as well as adjusting healthcare programs accordingly. More consideration needs to be given to sustainability issues in implant development and care according to an approach of ethics-by-design.

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Section: Discussionmentioning

confidence: 99%

Patient-centered empirical research on ethically relevant psychosocial and cultural aspects of cochlear, glaucoma and cardiovascular implants – a scoping review

Schulz,

Harzheim,

Hübner

et al. 2023

BMC Med Ethics

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“…Much like cochlear implants or technologies utilised to help the blind (re)gain their vision, certain technologies will also generate social movements within patient groups to establish their community as having cultural importance. [1][2][3][4] As is already the case, these communities will doubtlessly continue arguing that they should not be required to undergo procedures that would remove them from this environment. Among these, one such emerging technology-the CIdependent assistive bionic prosthetic (CIDABP), a potential successor to traditional assistive bionic prosthetics (ABPs)-has currently not undergone much ethical scrutiny in academic or legal scholarship.…”

Section: Introductionmentioning

confidence: 99%

The legal ambiguity of advanced assistive bionic prosthetics: Where to define the limits of ‘enhanced persons’ in medical treatment

Jaynes

2021

Clinical Ethics

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The rapid advancement of artificial (computer) intelligence systems (CIS) has generated a means whereby assistive bionic prosthetics can become both more effective and practical for the patients who rely upon the use of such machines in their daily lives. However, de lege lata remains relatively unspoken as to the legal status of patients whose devices contain self-learning CIS that can interface directly with the peripheral nervous system. As a means to reconcile for this lack of legal foresight, this article approaches the topic of CIS-nervous system interaction and the impacts it may have on the legal definition of “persons” under the law. While other literature of this nature centres upon notions of transhumanism or self-enhancement, the approach herein approached is designed to focus solely upon the legal nature of independent CIS actions when operating alongside human subjects. To this end, it is hoped that further discussion on the topic can be garnered outside of transhumanist discourse to expedite legal consideration for how these emerging relationships ought to be received by law-generating bodies internationally.

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Situating 'best practice': Making healthcare familiar and good enough in the face of unknowns

Harrison,

Rhodes,

Lancaster

2023

SSM - Qualitative Research in Health

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Capitalising on cultural dichotomies: Making the ‘right choice’ regarding cochlear implants

Cited by 5 publications

References 22 publications

Patient-centered empirical research on ethically relevant psychosocial and cultural aspects of cochlear, glaucoma and cardiovascular implants – a scoping review

Patient-centered empirical research on ethically relevant psychosocial and cultural aspects of cochlear, glaucoma and cardiovascular implants – a scoping review

The legal ambiguity of advanced assistive bionic prosthetics: Where to define the limits of ‘enhanced persons’ in medical treatment

Situating 'best practice': Making healthcare familiar and good enough in the face of unknowns

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