Cardiac patients’ experiences with a telerehabilitation web portal: Implications for eHealth literacy

Melholt, Camilla; Joensson, Katrine; Spindler, Helle; Hansen, John H. L.; Andreasen, Jan Jesper; Nielsen, Gitte; Noergaard, Astrid; Tracey, Anita; Thorup, Charlotte Brun; Kringelholt, Rikke; Dinesen, Birthe

doi:10.1016/j.pec.2017.12.017

Cited by 50 publications

(52 citation statements)

References 17 publications

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“…Apparently, the rehabilitation format does not influence patients’ ability to increase their knowledge and skills regarding self-care and lifestyle changes. These findings also accord with other findings from the Teledialog project showing that the interactive web resource increased e-health literacy [45]. As competency is a key factor in self-care, this result is indeed positive, as it suggests that the immediate task of the rehabilitation program is also successful when using digital technology.…”

Section: Discussionsupporting

confidence: 89%

Conventional Rehabilitation Therapy Versus Telerehabilitation in Cardiac Patients: A Comparison of Motivation, Psychological Distress, and Quality of Life

Spindler

Leerskov

Joensson

et al. 2019

IJERPH

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Telerehabilitation (TR) has gained attention as a promising rehabilitation format. Our study examined how patients responded to TR and whether it provided adequate support for their lifestyle changes and self-care efforts when compared to conventional rehabilitation (CR). Cardiac patients (n = 136) were randomly assigned to a TR or CR group. The TR group was provided with relevant health care technology for a period of three months, and both groups filled in questionnaires on their motivation for lifestyle changes and self-care psychological distress, and quality of life at 0, 3, 6, and 12 months. Patients in both groups were found to be equally motivated for lifestyle changes and self-care (p < 0.05) and they experienced similar levels of psychological distress and quality of life. TR is comparable to conventional rehabilitation in motivating patients, preventing psychological distress and improving quality of life. Although we observed an initial increase in autonomous motivation in the telerehabilitation group, this positive difference in motivation does not last over time. As such, neither rehabilitation format seems able to ensure long-term motivation. Therefore, TR may serve as a viable replacement for conventional rehabilitation when considered relevant. Further research is needed to enhance long-term motivation, and maybe telerehabilitation can help to achieve this.

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Section: Discussionsupporting

confidence: 89%

Conventional Rehabilitation Therapy Versus Telerehabilitation in Cardiac Patients: A Comparison of Motivation, Psychological Distress, and Quality of Life

Spindler

Leerskov

Joensson

et al. 2019

IJERPH

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“…In the Teledialog project, the patients did not seem to have any technological challenges, perhaps due to the inclusion criteria in this study, where the selected patients had to have user-level competence in information and communication technologies. In a substudy, the patients expressed the view that the ActiveHeart Web portal was easy to access, user friendly, and written in an understandable language [31].…”

Section: Discussionmentioning

confidence: 99%

Integration of Rehabilitation Activities Into Everyday Life Through Telerehabilitation: Qualitative Study of Cardiac Patients and Their Partners

et al. 2019

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Background Implementation of cardiac rehabilitation has not been optimal, with patient participation rates below 50%. Factors that contribute to cardiac patients’ lack of participation in rehabilitation programs are patient motivation, logistical difficulties in getting to the rehabilitation facilities, lack of psychosocial elements, and individualization of activities in the rehabilitation programs. Telerehabilitation has been proposed as a new way to address the challenge of engaging and motivating cardiac patients and their partners to participate in rehabilitation. Objective The aim of this study was to explore the experiences of cardiac patients and their partners of participating in the Teledialog Telerehabilitation Program (TTP). The Teledialog program consisted of a digital rehabilitation plan, transmission of health data from patient’s home to hospital and health care center, and an interactive Web portal with information and training videos. Methods This case study used a theoretical approach combining the “community of practice” approach and self-determination theory. A triangulation of data collection techniques was used, including documents, participant observation (72 hours), and qualitative interviews with cardiac patients and their partners enrolled in the telerehabilitation group. A total of 14 cardiac patients, 12 patient spouses/partners, and 1 son participated in the study. The participants were interviewed at enrollment in the telerehabilitation program and after 12 weeks of participation in the program. Interview data were analyzed using NVivo 11.0. Results Patients and their partners found the Web portal ActiveHeart.dk and the electronic rehabilitation (e-rehabilitation) plan to be helpful tools for health education, coordinating rehabilitation goals, creating an overview of the data, and ensuring continuity in the rehabilitation process. The patients felt that the TTP treated them as individuals, gave them a sense of autonomy, and provided enhanced relatedness to health care professionals and partners and a sense of competence as active participants in their own rehabilitation process. Some patients missed being part of a community of practice with other cardiac patients and did not use the Web forum. Patients’ partners found that the telerehabilitation program gave them a sense of security and helped them balance their involvement as a partner to the patient and not push the patient too hard. Conclusions Cardiac patients and their partners found telerehabilitation technologies a useful digital toolbox in the rehabilitation process. Telerehabilitation motivated the patients to integrate rehabilitation activities into their work schedule and everyday life and made them feel like unique individuals. Participating in the Teledialog Telerehabilitation Program might not be a suitable strategy for all cardiac patients. Being a patient’s partner in the telerehabilit...

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“…Systematic reviews conducted in different chronic disease cases have steadily stated that eHealth interventions for people with chronic diseases have considerable impact on enhancing self-management and patient engagement for their healthcare [ 11 – 14 ]. Despite of the limited number of studies from the perspective of chronic patients in middle and low-income countries, eHealth literacy is pointed in several literatures as one of the major skill required to be acquired by patients with chronic diseases if eHealth interventions are tailored to improve patient’s self-management and facilitating patient’s engagement in the care service [ 11 , 15 , 16 ]. In addition to the low internet penetration in Ethiopia (15%), the gap in skill to find and evaluate online resources is another challenge.…”

Section: Introductionmentioning

confidence: 99%

E-health literacy and associated factors among chronic patients in a low-income country: a cross-sectional survey

Shiferaw

Tilahun

Endehabtu

et al. 2020

BMC Med Inform Decis Mak

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Background: Chronic patients persistently seek for health information on the internet for medication information seeking, nutrition, disease management, information regarding disease preventive actions and so on. Consumers ability to search, find, appraise and use health information from the internet is known as eHealth literacy skill. eHealth literacy is a congregate set of six basic skills (traditional literacy, health literacy, information literacy, scientific literacy, media literacy and computer literacy). The aim of this study was to assess eHealth literacy level and associated factors among internet user chronic patients in Northwest Ethiopia. Methods: Institutional based cross-sectional study design was conducted. Stratified sampling technique was used to select 423 study participants among chronic patients. The eHealth literacy scale (eHEALS) was used for data collection. The eHEALS is a validated eight-item Likert scaled questionnaire used to asses self-reported capability of eHealth consumers to find, appraise, and use health related information from the internet to solve health problems. Statistical Package for Social science version 20 was used for data entry and further analysis. Multivariable logistic regression was used to examine the association between the eHealth literacy skill and associated factors. Significance was obtained at 95% CI and p < 0.05. Result: In total, 423 study subjects were approached and included in the study from February to May, 2019. The response rate to the survey was 95.3%. The majority of respondents 268 (66.3%) were males and mean age was 35.58 ± 14.8 years. The multivariable logistic regression model indicated that participants with higher education (at least having the diploma) are more likely to possess high eHealth literacy skill with Adjusted Odds Ratio (AOR): 3.48,

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Cardiac patients’ experiences with a telerehabilitation web portal: Implications for eHealth literacy

Cited by 50 publications

References 17 publications

Conventional Rehabilitation Therapy Versus Telerehabilitation in Cardiac Patients: A Comparison of Motivation, Psychological Distress, and Quality of Life

Conventional Rehabilitation Therapy Versus Telerehabilitation in Cardiac Patients: A Comparison of Motivation, Psychological Distress, and Quality of Life

Integration of Rehabilitation Activities Into Everyday Life Through Telerehabilitation: Qualitative Study of Cardiac Patients and Their Partners

E-health literacy and associated factors among chronic patients in a low-income country: a cross-sectional survey

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