Care burden and associated factors in caregivers of children with cancer

Abstract

Background Evidence suggests that many parents who care for their children with cancer are affected by the care burden due to the chronic nature of the disease. The aim of this study was to determine the burden of care level and its related factors in the caregivers of children with cancer. Method A total of 270 caregivers of children with cancer were included in this cross-sectional study by convenience sampling method. Data collection tools were a personal information form and the Novak & Guest’s Caregiver Burden Inventory. Data were analyzed by descriptive and inferential statistics (chi-square and univariate linear regression model). Results The mean ages of caregivers and patients were 35.7 ± 7.0 and 3.1 ± 1.6 years, respectively. The mean care burden was 68.4 ± 1.5 out of 120. About 50 and 36% of caregivers had moderate and severe care burden, respectively. Conclusion Caregivers had moderate to high care burden. A number of factors associated with care burden were identified. Health authorities need to take family-centered measures to reduce the burden of caregivers.

The Effect of Benson Relaxation Technique on Caregiver Burden in the Informal Caregivers of Cancer Patients: A Randomized Controlled Trial

“…The results of the study showed that most of the caregivers in this study were women, which was consistent with the results of other studies (20,31,32). This shows the prominent role of women in caring for cancer patients in most societies.…”

The level and factors associated with caregiver burden among parents of children with cerebral palsy: A cross-sectional study in southwest China

“…The heavy time-dependent burden can deplete the caregiver's energy and increase negative emotions [42]. The present study illustrated that parents of children with cerebral palsy tend to feel time-related pressure and restriction of their social and cultural activities due to multiple additional care tasks, which is consistent with previous studies [43,44]. The result of multiple linear regressions analysis found that the level of education, caring time, visual impairment, the degree of depression and fatigue remained statistically signi cant correlates of the caregiving burden.…”

Advances for pediatricians in 2022: allergy, anesthesiology, cardiology, dermatology, endocrinology, gastroenterology, genetics, global health, infectious diseases, metabolism, neonatology, neurology, oncology, pulmonology

“…Scientific advancement has led to an increase in the survival rate of children with cancer and, as a result, living with cancer affects different aspects of life of these children and their caregivers [198]. Chaghazardi et al [199] determined the level of care burden and the factors associated with it among the caregivers of children with cancer, and have highlighted that the majority of caregivers experience moderate to high care burden. Following the diagnosis, caregivers have to face several challenges such as ignorance, instability, anxiety, helplessness, confusion, and stress.…”