Care coordination assisted by technology for multiethnic caregivers of persons with dementia: a pilot clinical demonstration project on caregiver burden and depression

Dang, Stuti; Remon, Nilber; Harris, Julia G.; Malphurs, Julie; Sandals, Lauran; Cabrera, Angeles Lozada; Nedd, Nicole

doi:10.1258/jtt.2008.080608

Cited by 29 publications

(50 citation statements)

References 16 publications

(23 reference statements)

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“…Family and professional caregivers in this study only seem to feel a need for those functionalities supporting communication and joint care registration (and only if an active contribution of all caregivers involved would be guaranteed). This is in line with previous studies reporting that the value of (assistive) technologies mainly lies in functionalities that facilitate care coordination or communication between family and/or professional caregivers [25, 27, 28]. Although today's technological possibilities in care settings are far reaching (e.g., remote care and video calls), networks of caregivers do not really seem to miss such possibilities.…”

Section: Discussionsupporting

confidence: 89%

An Online Platform to Support the Network of Caregivers of People with Dementia

Boessen

Verwey

Duymelinck

et al. 2017

Journal of Aging Research

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Increasing numbers of persons with dementia (PWD) augment the pressure on dementia care, especially informal care. Care technology can support the network of PWD. We tested the usability and perceived value of an online platform that aims to support the communication and collaboration between family and professional caregivers of PWD. A mixed methods design was used for this pilot study, including semistructured interviews, a postal questionnaire, and monitoring of log data. Seven family and thirty-two professional caregivers involved with four PWD participated during a 10-week period. Overall, the results indicate that the platform is easy to use and valuable for both family and professional caregivers. They felt better informed and prepared regarding the situation of the PWD and felt supported by the more direct lines of communication within the network. Also, a broadening and deepening of the relationship between family and professional caregivers was experienced. Although connecting care organizations' record systems with the platform and an active contribution of all care professionals involved (e.g., general practitioners and those working at day care units) were suggested for optimal use of the platform, family and professional caregivers positively valued the platform for improving the efficiency and ease of communication and collaboration.

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Section: Discussionsupporting

confidence: 89%

An Online Platform to Support the Network of Caregivers of People with Dementia

Boessen

Verwey

Duymelinck

et al. 2017

Journal of Aging Research

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“…The types of patients varied, including patients with chronic disease or disability (Alzheimer’s disease, AD), 26–28 dementia, 11,29–33 cancer, 34–36 stroke, 20,37,38 heart disease, 39–41 spinal cord injury, 42 brain injury, 17,43 chronic disease 16,44–46 ) (38%), mental illness (schizophrenia) (3%), 25,47 end-of-life care (5%), 48–50 and home or community-dwelling older adults (5%). 51–53 …”

Section: Resultsmentioning

confidence: 99%

A systematic review of telehealth tools and interventions to support family caregivers

2014

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Summary We conducted a systematic review of studies employing telehealth interventions which focused on family caregivers’ outcomes. The Embase, CINHAL, Cochrane and PubMed databases were searched using combinations of keywords including “telehealth,” “telemedicine,” “telecare,” “telemonitoring,” “caregiver” and “family.” The initial search produced 4205 articles, of which 65 articles met the inclusion criteria. The articles included 52 experimental studies, 11 evaluation studies, one case study and one secondary analysis. Thirty-three articles focused on family caregivers of adult and older patients, while 32 articles focused on parental caregivers of paediatric patients. The technologies included video, web-based, telephone-based and telemetry/remote monitoring. Six main categories of interventions were delivered via technology: education, consultation (including decision support), psychosocial/cognitive behavioural therapy (including problem solving training), social support, data collection and monitoring, and clinical care delivery. More than 95% of the studies reported significant improvements in the caregivers’ outcomes and that caregivers were satisfied and comfortable with telehealth. The review showed that telehealth can positively affect chronic disease care, home and hospice care.

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“…Among African Americans, several studies using multicomponent skills training or social support interventions demonstrated improvements in terms of decreased burden, 32–34 decreased upset with memory related problems of the care recipient, 26 better affect, 26 more positive ratings of caregiving, 35 greater happiness, 36 and greater self-efficacy for providing assistance with Instrumental Activities of Daily Living (IADLs). 37 Most of these studies described no or little ethnic tailoring of interventions.…”

Section: Resultsmentioning

confidence: 99%

Reviews: Developing Culturally Sensitive Dementia Caregiver Interventions: Are We There Yet?

Nápoles

Chadiha

Eversley

et al. 2010

Am J Alzheimers Dis Other Demen

191

128

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Despite evidence of ethnic differences in family caregivers’ experiences, the extent to which caregiver interventions are culturally tailored to address these differences is unknown. A systematic review of literature published from 1980–2009 identified: differences in caregiving experiences of African American, Latino and Chinese American caregivers; psychosocial support interventions in these groups; and cultural tailoring of interventions. Ethnic differences in caregiving occurred at multiple levels (intrapersonal, interpersonal, environmental) and in multiple domains (psychosocial health, life satisfaction, caregiving appraisals, spirituality, coping, self-efficacy, physical functioning, social support, filial responsibility, familism, views toward elders, use of formal services and health care). Only 18 of 47 intervention articles reported outcomes by caregiver ethnicity. Only 11 reported cultural tailoring; 8 were from the REACH initiative. Cultural tailoring addressed: familism, language, literacy, protecting elders, and logistical barriers. Results suggest that more caregiver intervention studies evaluating systematically the benefits of cultural tailoring are needed.

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Care coordination assisted by technology for multiethnic caregivers of persons with dementia: a pilot clinical demonstration project on caregiver burden and depression

Cited by 29 publications

References 16 publications

An Online Platform to Support the Network of Caregivers of People with Dementia

An Online Platform to Support the Network of Caregivers of People with Dementia

A systematic review of telehealth tools and interventions to support family caregivers

Reviews: Developing Culturally Sensitive Dementia Caregiver Interventions: Are We There Yet?

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