Care difficulties and burden during COVID‐19 pandemic lockdowns among caregivers of people with schizophrenia: A cross‐sectional study

Yasuma, Naonori; Yamaguchi, Sosei; Ogawa, Makoto; Shiozawa, Takuma; Abe, Makiko; Igarashi, Momoka; Kawaguchi, Takayuki; Sato, Sayaka; Nishi, Daisuke; Kawakami, Norito; Fujii, Chiyo

doi:10.1002/npr2.12171

Cited by 23 publications

(29 citation statements)

References 11 publications

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“…Frequently cited psychological concerns included fear (Carballo et al, 2021;Cohen et al, 2020;D'herde et al, 2021;Fisher et al, 2021;Ng et al, 2020;Simblett et al, 2021;West et al, 2021) 40% of carers believed their own health was more endangered compared to the period before the pandemic. More specifically, carers reported worries about contracting the virus or being quarantined (Vaitheswaran et al, 2020;Yasuma et al, 2021), while increased sedentary behaviour and screen time was documented by Greaney et al (2021). Other studies highlighted exacerbation of care recipients' symptoms during COVID-19 as a source of worry for carers (Alexopoulos et al, 2021;Borelli et al, 2021;Budnick et al, 2021;Carbone et al, 2021;Pongan et al, 2021;Prasad et al, 2020;Rainero et al, 2021;Salari et al, 2020;Tsapanou et al, 2021;Yasuma et al, 2021).…”

Section: Decline In Psychological Wellbeingmentioning

confidence: 99%

“…More specifically, carers reported worries about contracting the virus or being quarantined (Vaitheswaran et al, 2020;Yasuma et al, 2021), while increased sedentary behaviour and screen time was documented by Greaney et al (2021). Other studies highlighted exacerbation of care recipients' symptoms during COVID-19 as a source of worry for carers (Alexopoulos et al, 2021;Borelli et al, 2021;Budnick et al, 2021;Carbone et al, 2021;Pongan et al, 2021;Prasad et al, 2020;Rainero et al, 2021;Salari et al, 2020;Tsapanou et al, 2021;Yasuma et al, 2021).…”

Section: Decline In Psychological Wellbeingmentioning

confidence: 99%

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Impact of the COVID‐19 pandemic on family carers in the community: A scoping review

Muldrew

Fee

Coates

2021

Health Social Care Comm

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Family carers, referred to in this paper as carers, are family members, friends and neighbours who look after others 'who need help because of their illness, frailty, disability, a mental health problem or an addiction and cannot cope without their support. The care they give is unpaid' (NHS England, 2018). It is estimated that between 10% and 25% of the total population are carers across Europe, the United States and Australia

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Section: Decline In Psychological Wellbeingmentioning

confidence: 99%

Section: Decline In Psychological Wellbeingmentioning

confidence: 99%

Impact of the COVID‐19 pandemic on family carers in the community: A scoping review

Muldrew

Fee

Coates

2021

Health Social Care Comm

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“…This suggests that the psychosocial effects of the pandemic would similarly affect patients diagnosed with schizophrenia, and their caregivers. It is possible that the psychosocial effects of the COVID-19 pandemic, when affecting an individual within a group, will in turn affect the rest of the group members, especially those involved in care for pre-existing disorders such as schizophrenia (Yasuma et al, 2021) and dementia (Greenberg et al, 2020;Altieri and Santangelo, 2021), or those raising children with cerebral palsy, autism, and attention-deficit/hyperactivity disorder (Dhiman et al, 2020).…”

Section: Discussionmentioning

confidence: 99%

“…Prior to the COVID-19 pandemic, the quality of life for caregivers of people with schizophrenia was already low (Boyer et al, 2012;Stanley et al, 2017). During the pandemic, caregivers are concerned not only for their own health, but also for the continuity of care and well-being of their family member with schizophrenia (Yasuma et al, 2021). While it is quite possible that there is a similar perception of the impact of COVID-19 among patients with schizophrenia and their caregivers, the disconnect associated with schizophrenia and the greater burden on the caregiver associated with avoiding COVID-19 infection would be expected to result in a greater perceived impact from caregivers.…”

Section: Introductionmentioning

confidence: 99%

Psychosocial Effects of the COVID-19 Pandemic on Patients With Schizophrenia and Their Caregivers

et al. 2021

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The aim of this study was to analyze the psychosocial effects of the COVID-19 pandemic on 120 patients with schizophrenia, and their caregivers (control group), in the city of Arica, northern Chile. The hypotheses of this study hold that (1) self-reports of the impact of the COVID-19 pandemic among patients and caregivers would be positively correlated, (2) caregivers would self-report a greater impact of the pandemic on their daily lives, and (3) patients infected with COVID-19 would experience lower levels of mental health improvement and higher levels of psychological distress. Hypotheses were tested using correlations, mean differences, and effect sizes (Cohen’s d). The results showed that patients with schizophrenia who had been in quarantine for almost a year showed similar levels of concern as their caregivers in the domains of health and social life. However, caregivers showed significant differences from patients in the areas of income, concern, and employment status. In addition, patients who were infected with COVID-19 showed lower levels of well-being and worse psychological recovery. The implications of the findings highlight the need to incorporate mental health interventions in the pandemic health context for caregivers of people with schizophrenia. Finally, the results suggest that Covid-19 infection has a significant effect on the recovery and psychological well-being of patients with schizophrenia.

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“…The main concerns of family members of patients with severe mental disorders include who would care for the patients if their family members became infected with COVID-19, whether the patients would be refused appropriate medical services because of their mental illness and concerns regarding restrictions on the use of community services and the deterioration of family relationships due to the longer stay at home during the lockdown (Yasuma et al, 2021 ). Lebow ( 2020 ) warned that the COVID-19 pandemic could introduce additional difficulties to families with troubled family members when help from others is not possible and the frequency of contact between family members is already a problem (Lebow, 2020 ).…”

Section: Introductionmentioning

confidence: 99%

Psychological Impact of the COVID-19 Pandemic on Families of People with Severe Mental Disorders Participating in Community Peer Support Groups in Brazil

et al. 2022

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People with severe mental disorders are at increased risk of dying from COVID-19 and more susceptible to the impacts of the pandemic. This study aims to understand how the families of patients with severe mental disorders followed up in community peer support groups experienced the beginning of the pandemic in Brazil and how they fared during the period of restricted physical contact. Family members ( n = 82) and patients ( n = 27) belonging to community groups in Rio de Janeiro responded to an online survey that included assessments of quality of life and well-being along with open-ended questions. Thematic analysis of the answers showed that the majority of remarks were positive, despite the concerns, fears, and feelings common at the time. Positive feelings were also mentioned significantly. These findings demonstrate that this population was adaptive and resilient in coping with the restrictions on physical contact. The main concerns and difficulties of this population are discussed.

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Care difficulties and burden during COVID‐19 pandemic lockdowns among caregivers of people with schizophrenia: A cross‐sectional study

Abstract: This is an open access article under the terms of the Creative Commons Attribution-NonCommercial License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.

Cited by 23 publications

References 11 publications

Impact of the COVID‐19 pandemic on family carers in the community: A scoping review

Impact of the COVID‐19 pandemic on family carers in the community: A scoping review

Psychosocial Effects of the COVID-19 Pandemic on Patients With Schizophrenia and Their Caregivers

Psychological Impact of the COVID-19 Pandemic on Families of People with Severe Mental Disorders Participating in Community Peer Support Groups in Brazil

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