Care poverty: unmet care needs in a Nordic welfare state

Kröger, Teppo; Puthenparambil, Jiby Mathew; Aerschot, Lina Van

doi:10.1332/239788219x15641291564296

Cited by 61 publications

(71 citation statements)

References 24 publications

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“…More in-depth research is needed to assess the ability of home care and other support services to provide adequate care for home-dwelling older people at the end of life. A recent study of home care workers’ reflections on their work (Kröger, Van, Aerschot, & Puthenparambil, 2018) suggest that their increasingly demanding work with clients with multiple care needs has not been taken thoroughly into account in home care planning. It might also be necessary to add to the resources available for round-the-clock LTC to guarantee good-quality end-of-life care for the older population, given that formal home care topped up with informal care is not available to everyone.…”

Section: Discussionmentioning

confidence: 99%

The Joint Impact of Age at Death and Dementia on Long-Term Care Use in the Last Years of Life: Changes From 1996 to 2013 in Finland

Aaltonen

Forma

Pulkki

et al. 2019

Gerontology and Geriatric Medicine

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Welfare states increasingly rely on aging in place policies and have cut back on institutional long-term care (LTC) provision. Simultaneously, the major determinants of LTC use, that is, dementia and living to very old age, are increasing. We investigated how increasing longevity and concomitant dementia were associated with changes in round-the-clock LTC use in the last 5 years of life between 1996 and 2013. Retrospective data drawn from national registers included all those who died aged 70+ in 2007 and 2013, plus a 40% random sample from 2001 ( N = 86,554). A generalized estimating equations (GEE) were used to estimate the association of dementia and age with LTC use during three study periods 1996-2001, 2002-2007, and 2008-2013. Between the study periods, the total number of days spent in LTC increased by around 2 months. Higher ages at death and the increased number of persons with dementia contributed to this increase. The group of the most frequent LTC users, that is, people aged 90+ with or without dementia, grew the most in size, yet their LTC use decreased. The implications of very old age and concomitant dementia for care needs must be acknowledged to guarantee an adequate quantity and quality of care.

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Section: Discussionmentioning

confidence: 99%

The Joint Impact of Age at Death and Dementia on Long-Term Care Use in the Last Years of Life: Changes From 1996 to 2013 in Finland

Aaltonen

Forma

Pulkki

et al. 2019

Gerontology and Geriatric Medicine

View full text Add to dashboard Cite

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“…Policy goals should therefore include recognising coping strategies and strengthening positive coping strategies. Policies must be assessed not only by the resources they use or how many services they provide, but also by whether they achieve their objectives (see [42]). Research on family relations and well-being in the caregiving context within multigenerational households showed that care issues are an important issue in family conflicts [43] and that this is insufficiently addressed by public policies.…”

Section: Coping Strategies: Related Literaturementioning

confidence: 99%

Sustainable Care in a Familialist Regime: Coping with Elderly Care in Slovenia

2020

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In countries with prevalent family care and less developed care services, it is important to understand the ways families cope with the care needs of their frail family members as part of policy learning to make care systems more sustainable. Filial care is a vital element of family care, yet is significantly restrained by the involvement of carers in the labour market; unequal gender distribution of the care burden; and insufficient recognition of, and policy support, for family care. This article considered the issue of the sustainability of elderly care in a familialist country, Slovenia, by identifying the coping strategies families adopt for the provision of care. To this end, in-depth qualitative data based on a purposeful sample of 55 community-resident users of social home care services and their 55 family carers were used. We identified five external coping strategies: use of formal care services, use of extended family network, use of wider community network, cohabitation, and home adjustments. Among internal strategies, we detected work-related adjustments; abandoning leisure activities; abandoning vacations; establishing new routines; accepting and finding satisfaction in care; increased psychological distress, such as worries and overburdening; and some unmet care recipient needs. Very few strategies may be described as supported by policy actions, despite such support being essential for increasing the sustainability of the family-based care model.

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“…Similar policies are favoured in many countries (Iecovich, 2014). As the number of people staying at home with less-formal care is increasing rapidly (Alastalo et al, 2017;Kröger et al, 2019), it is vital to discover new means of meeting the holistic needs of the ageing population.…”

Section: Introductionmentioning

confidence: 99%

Relational aspects of meaning in life among older people – a group-interview gerontechnology study

2020

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Earlier studies show that experiencing life as meaningful in old age promotes holistic wellbeing and health among older people. As more and more people are living with reduced capacities in their own homes, there is an urgent need to find new ways of promoting holistic wellbeing of the ageing population. Analysing data gathered from existential discussion groups on Service TV (STV), we show how strongly relationality and meaning in life are intertwined for older people. Our findings indicate that respect and support for the autonomy of older people is very important: in order to continue living at home, and prepare for a future with reduced capacities, they need family members for support. Autonomy of ageing becomes relational as choices and wishes are negotiated with family members. Relationships also contribute to loss of meaning. When older people felt that they were not close enough to their family, longed for friends of the same age, were bereaved or widowed, the relational gap caused a violation of meaning. In contrast, participation and activities with peers brought deep joy and connectedness to the lives of the participants. STV provided a new channel for participants to find and form meaningful relationships. Therefore, it is concluded that relationality can be supported by technological means of care.

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Care poverty: unmet care needs in a Nordic welfare state

Cited by 61 publications

References 24 publications

The Joint Impact of Age at Death and Dementia on Long-Term Care Use in the Last Years of Life: Changes From 1996 to 2013 in Finland

The Joint Impact of Age at Death and Dementia on Long-Term Care Use in the Last Years of Life: Changes From 1996 to 2013 in Finland

Sustainable Care in a Familialist Regime: Coping with Elderly Care in Slovenia

Relational aspects of meaning in life among older people – a group-interview gerontechnology study

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