Care Transitions From Patient and Caregiver Perspectives

Mitchell, Suzanne; Laurens, Vivian; Weigel, Gabriela; Hirschman, Karen B.; Scott, Allison M.; Nguyen, Huong Q.; Howard, Jessica M.; Laird, Lance D.; Levine, Carol; Davis, Terry C.; Gass, Brianna; Shaid, Elizabeth; Li, Jing; Williams, Mark; Jack, Brian

doi:10.1370/afm.2222

Cited by 125 publications

(174 citation statements)

References 16 publications

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“…Overall, caregivers in our sample were inquisitive and proactive learners. Feeling prepared to manage the patient's anticipated care needs is important for both caregivers and patients experiencing hospital-to-home transitions (11). Although many caregiver participants had existing knowledge and experience of the care recipients' PF needs, for some, declines in PF after a hospitalization presented new challenges.…”

Section: Discussionmentioning

confidence: 99%

Caregivers’ Experiences Regarding Training and Support in the Post-Acute Home Health-Care Setting

Chase

Russell

Rice

et al. 2019

Journal of Patient Experience

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Background: Post-acute home health-care (HHC) services provide a unique opportunity to train and support family caregivers of older adults returning home after a hospitalization. To enhance family-focused training and support strategies, we must first understand caregivers’ experiences. Objective: To explore caregivers’ experiences regarding training and support for managing older adults’ physical functioning (PF) needs in the post-acute HHC setting. Method: We conducted a qualitative descriptive study using semi-structured telephone interviews of 20 family caregivers. Interviews were recorded, transcribed, and analyzed using conventional content analysis. Results: We identified the following primary categories: facilitators to learning (eg, past experience, learning methods), barriers to learning (eg, learning on their own, communication, timing/logistics, preferred information and timing of information delivery), and interactions with HHC providers (eg, positive/negative interactions, provider training and knowledge). Conclusion: Caregivers were responsive to learning strategies to manage older adults’ PF needs and, importantly, voiced ideas to improve family-focused training and support. HHC providers can use these findings to tailor training and support of family caregivers in the post-acute HHC setting.

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Section: Discussionmentioning

confidence: 99%

Caregivers’ Experiences Regarding Training and Support in the Post-Acute Home Health-Care Setting

Chase

Russell

Rice

et al. 2019

Journal of Patient Experience

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“…The perceived burden of care not only affects the caregiver's wellbeing but also causes the caregiver to experience stress when performing his/her caregiving role . For caregivers, stress is directly related to the way that caregivers mentally process the care that they provide . Given that stressors have direct effects on a caregiver's health, it is important to plan for interventions that can determine the caregiver's perception of the burden of care and his/her stress level and that can mitigate the stress affecting them …”

Section: Introductionmentioning

confidence: 99%

“…9,10 For caregivers, stress is directly related to the way that caregivers mentally process the care that they provide. [11][12][13] Given that stressors have direct effects on a caregiver's health, it is important to plan for interventions that can determine the caregiver's perception of the burden of care and his/her stress level and that can mitigate the stress affecting them. 12,14 In the case of diseases involving the nervous system, if nurses pay holistic attention to individuals who assume the caregiving role and examine the relationship among the caregiver burden, caregiver wellbeing, and the caregiver stress level in these individuals, this will positively affect both caregivers and patients and highlight the importance of preserving the wellbeing of the caregivers.…”

mentioning

confidence: 99%

Effects of the caregiver burden perceived by caregivers of patients with neurological disorders on caregiver wellbeing and caregiver stress

Tuncay

Fertelli

2019

Perspect Psychiatr Care

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Purpose The present study was conducted to determine the effects of the caregiver burden perceived by caregivers of patients with neurological disorders on caregiver wellbeing and stress. Design and Methods The study was designed as a descriptive, cross‐sectional, and correlational study. Findings In the study, it was determined that the care burden is related to a caregiver's wellbeing and stress level and that the caregivers’ levels of performing activities of living decreased and their stress levels increased as their perceived burden of care increased. Implications for Practice Determining caregivers’ difficulties in providing care and providing them with professional support will contribute to reducing the burden of care.

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“…37 Like us, others have noted how kindness and caring by the care team in hospital can affect the transition from hospital to home. 38 Our study highlights the limits of the coverage of Ontario's public health insurance and how these conflict with patient and caregiver expectations. Policy experts have long noted that Canada has deep public coverage for a narrow basket of services, specifically hospital, diagnostic and physician services.…”

Section: Researchmentioning

confidence: 88%

Patient and caregiver experience in the transition from hospital to home — brainstorming results from group concept mapping: a patient-oriented study

Kiran

Wells

Okrainec

et al. 2020

cmajo

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CMAJ OPEN, 8(1) E121 Plain language summary: Transitioning back home after a hospital admission can be a tricky time for patients and their caregivers.Patients have experienced changes in their health and ability to function independently, and, at the same time, are relying on different parts of the health care system to work well together. We wanted to understand what most affected patient and caregiver experience in the transition from hospital to home and use our findings to develop a provincial quality standard that outlines what good care looks like when patients are discharged from hospital to home. We conducted public outreach over 10 weeks beginning Jan. 11, 2018 to recruit patients and caregivers who had a lived experience transitioning from hospital to home in Ontario in the previous 3 years. We asked participants to brainstorm responses to a single question: "When leaving the hospital for home, some thing(s) that affected the experience were: ____." A total of 665 patients and caregivers responded to the question online, and another 71 via a facilitated group discussion. We analyzed the data for themes and found that patients and caregivers identified 6 key areas affecting their experience transitioning from hospital to home: home and community care, the discharge process, medical follow-up after discharge, medications, patient and caregiver education, and the kindness and caring of the health care team in hospital. The most common challenges were with the timeliness, sufficiency, reliability and consistency of publicly funded home care services. Understanding what matters to patients and caregivers helps us define what good care looks like and how we should focus efforts to improve our health care system.Background: Improving the quality of care for patients who return home after a hospital stay is an international priority; however, few jurisdictions have engaged broadly with patients and caregivers to understand what most affects their experience transitioning home. We performed Ontario-wide group concept mapping, beginning with a brainstorming phase, to understand patient and caregiver priorities in the transition. Methods:We used group concept mapping to engage patients and caregivers who had lived experience transitioning from hospital to home in Ontario in the previous 3 years. We report on the first phase, brainstorming, conducted over 10 weeks beginning Jan. 11, 2018 via an online survey or facilitated group discussion. Participants responded to a single focal prompt: "When leaving the hospital for home, some thing(s) that affected the experience were: ____." The study team identified recurrent concepts and overarching themes. Patients and caregivers informed the study design, recruitment and data interpretation. Results:In all, 665 people (263 patients [39.5%], 352 caregivers [52.9%] and 50 people who were both patient and caregiver [7.5%]) participated in brainstorming online, and 71 people participated in 1 of 8 group discussions. Participants identified 6 key areas affecting their experien...

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Care Transitions From Patient and Caregiver Perspectives

Cited by 125 publications

References 16 publications

Caregivers’ Experiences Regarding Training and Support in the Post-Acute Home Health-Care Setting

Caregivers’ Experiences Regarding Training and Support in the Post-Acute Home Health-Care Setting

Effects of the caregiver burden perceived by caregivers of patients with neurological disorders on caregiver wellbeing and caregiver stress

Patient and caregiver experience in the transition from hospital to home — brainstorming results from group concept mapping: a patient-oriented study

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