Caregiver burden among diverse caregivers

Abstract

Caregivers are diverse. Research needs to focus on understanding the similarities and differences of diverse caregivers to develop the most supportive policies and programs.

Assessing the mediating role of family resilience between caregiver burden and caregiver capacity: a cross-sectional study among Chinese stroke survivors and family caregivers in a real-world setting

“…Interventions and support programmes targeting caregiver burden based on caregiver health status include health-related interventions, respite care services, education and training programmes, support groups and counselling services, and assistive technologies and home modifications. These interventions aim to improve caregivers’ physical and mental well-being, temporarily relieve caregiving duties, enhance caregiving skills and knowledge, offer emotional support and coping strategies, and provide assistive technologies and home modifications to alleviate physical strain 31 32. These interventions and support programmes can reduce caregiver burden and improve overall well-being.…”

Family caregiver experiences and needs across health conditions, relationships, and the lifespan: a Qualitative analysis

“…Historically, family caregiver research has focused primarily on caregivers of older adults or has been siloed by the relationship between caregiver and care recipient (i.e., spouse/partner, parent/child) and/or by the health condition or disease process of the care recipient (Committee on Family Caregiving for Older Adults, 2016 ; Utz & Warner, 2022 ). Gaps remain in understanding the day-to-day challenges and concerns of caregivers’ experiences, which can be best understood through the stories and voices of caregivers (Agius, 2013 ).…”

“…Gaps remain in understanding the day-to-day challenges and concerns of caregivers’ experiences, which can be best understood through the stories and voices of caregivers (Agius, 2013 ). Additional caregiving work that moves beyond the siloes and specifically queries caregivers’ lived experiences is needed to provide a comprehensive and nuanced understanding of caregivers’ similarities and unique challenges across relationships, ages, and conditions (Fenton et al, 2022 ; Utz & Warner, 2022 ). Therefore, the purpose of the current study was to gain a deeper understanding of the similarities and differences of diverse family caregivers’ lived experiences across ages, caregiving relationships, and health conditions.…”

Relationships among self-esteem, ego-resilience, and caregiver burden among families of children with hematologic and oncologic disease: A cross-sectional study

“…Caregiver burden is defined as “the extent to which caregivers perceive their emotional health, physical health, social life, and financial status as having been negatively impacted as a result of caring for their relative” (p. 261) [ 1 ]. Previous studies on caregiver burden have mostly focused on the relationship between spouses [ 2 ] and adult children of adult patients, such as patents with dementia [ 3 ] and older adults with advanced cancer [ 4 ]. However, depending on the type of caregiving dyad, the dynamics and functions of caregiving will vary [ 2 ].…”