Caregiver burden among family caregivers of older patients receiving hemodialysis and its relevant factors

Lakhara

J Holist Nurs Midwifery

et al. 2021

Introduction: There is a scarcity of literature about the burden of hemodialysis patients’ caregivers. Caregivers often receive little attention, and the primary focus is always on the patients. Frequent hospitalizations and factors associated with the disease can lead to depression and reduce the caregiver’s quality of life. Objective: The study aimed to determine the burden of caregivers of patients undergoing hemodialysis at a tertiary care hospital. Materials and Methods: This cross-sectional analytical study was conducted in a tertiary care hospital in northern India. A total of 110 caregivers who were providing care to their patients for more than 3 months were selected by purposive sampling method. The study data were collected by self-prepared demographic questionnaire to collect basic information regarding patients and caregivers, and the level of burden was assessed by a revised Zarit Burden Interview (ZBI) standardized on a 5-point scale. Descriptive and inferential (the Chi-square and Fisher exact test, 1-way ANOVA test) statistics were used for data analysis. Results: The mean±SD age of caregivers was 37±13 years. Nearly half of caregivers, 50 (45.46%), reported mild to moderately burdened, while 15 (13.63%) caregivers had moderate to severely burdened. The caregivers were mild to moderately burdened as the mean burden score was 25±12. There was no significant association between the levels of burden scores and selected sociodemographic variables of the participants. Conclusion: It was found that caregivers of hemodialysis patients experienced moderate burden while caring and being with the patient, which may alter their health and quality of life.

Section: Discussioncontrasting

confidence: 99%

“…Also, Adejumo et al [21] used a modified ZBI questionnaire with 12 questions was used in our study. In contrast, Senmar et al [22] used Novak and Guest caregiver burden inventory to assess the burden of caregivers.…”

Section: Discussionmentioning

confidence: 99%

The Burden of Caregivers of Patients Undergoing Hemodialysis

Lakhara

J Holist Nurs Midwifery

et al. 2021

Research Intellect Disabil

“…In this study, the care burden of primary caregivers was slightly higher than the median value (2.72 ± 0.68). The overall average was 65.38, which was higher than the caregiver's burden of 57.4 reported for the case of older patients undergoing haemodialysis (average age 72.4 in patients) in a study using the same tool conducted in Iran (Senmar et al., 2019). In addition, the proportion of participants who experienced a severe burden was higher (38.0%) than the 25.0% reported by Senmar et al These high burden scores demonstrate the need for interest in the burden of caregivers of children with intellectual disabilities.…”

Section: Discussionmentioning

confidence: 62%

“…The total score ranges from 24 to 120, with higher scores indicating a higher burden of care. Scoring between 24 and 39, 40 and 71, and 72 and 120 was considered to indicate a mild, moderate and severe level of burden, respectively (Senmar et al, 2019). Internal reliability (Cronbach's alpha) ranged from 0.73 to 0.86 for each subconcept at the time of development and was 0.91 for all questions in this study.…”

Section: Methodsmentioning

confidence: 99%

Mediating effects of family functioning on the relationship between care burden and family quality of life of caregivers of children with intellectual disabilities in Mongolia

Kim

Park³

et al. 2020

Background Intellectual disabilities are characterized by constant and complex needs for care that place a heavy burden on the families of affected individuals and affect their overall quality of life. We evaluated the mediating effects of family functioning on the relationship between care burden and the family quality of life of caregivers of children with intellectual disabilities in Mongolia. Methods Data were collected from a sample of 150 caregivers of children with intellectual disabilities from October 2017 to November 2017. Multiple linear regression analyses were performed to examine the mediating effects of family functioning. Results Family functioning had a partial mediating effect (β = .702, p < .001) on the relationship between care burden and family quality of life. Conclusion Family functioning should be considered when developing a social support intervention to improve family quality of life among caregivers of children with intellectual disabilities.

“…Of the included studies, 35 used a cross sectional design [5,[9][10][11][12] and three provided cross sectional data within other designs; one used a quasi-experimental design [46], one used a longitudinal design [47], and one a mixed method design [6]. Studies included in the review were completed in a variety of countries, including: seven in Turkey [11,[22][23][24]27,33,46], four in the USA [5,18,29,44], four in Iran [31,34,37,39], two in Brazil [25,26], two in Japan [34,41,43], two in Saudi Arabia [9,21], three in China [12,42,45], two in Nigeria [6,17], two in Jordan [16,19], two in India [32,35]; and a single study in Nepal [10], Canada [38], Pakistan [40], Greece [36], Spain [20], Singapore [47], Vietnam [30], and Indonesia…”

Section: Characteristics Of Included Studiesmentioning

confidence: 99%

Factors Associated with Burden in Caregivers of Patients with End-Stage Kidney Disease (A Systematic Review)

et al. 2021

Background: Caring for a patient with end-stage kidney disease (ESKD) is highly stressful and can impact negatively on the physical and psychological well-being of caregivers. To accurately assess caregiver burden (CB), health care providers (HCPs) need to identify characteristics associated with an increase in CB. Aim: The aim of this review is to explore CB in caregivers of adult patients with ESKD and to identify characteristics associated with any increase in CB. Method: A comprehensive literature search was completed using five electronic databases. Medline, Embase, CINHAL, PsycINFO, and Scopus. The Joanna Briggs Institute checklist (JBI) was used to quality appraise full text papers included in the review. No time limit for the date of publication of studies was employed, to enable the inclusion of more extensive literature. Results: A total of 38 relevant studies from 18 countries were identified and included in the review. A variety of patient and caregiver factors can impact positively or negatively on CB, including socio-demographic factors of patients and caregivers, disease-related factors, situational and relational factors, environmental factors, and psychological factors. Conclusion: This review provides awareness to HCPs of the important factors associated with CB, when assessing or targeting interventions for caregivers experiencing burden.