Caregiver Burden Among Informal Caregivers of Persons Living with HIV/AIDS in Liangshan Prefecture, China

Song, Young Sun; Wang, Huan; Yin, Yanling; Nie, Anliu; Ye, Hui; Liu, Ying; Lin, Tong; Zhong, Hua; Zhang, Liao; Chen, Hong

doi:10.2147/ppa.s357580

Cited by 2 publications

(2 citation statements)

References 35 publications

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“…For instance, a cross-sectional study conducted in the Liangshan Yi region of China revealed that most caregivers experienced a heavy burden, with older caregivers and those in poor health facing greater burdens. 39 In the Udagan region, most family caregivers reported a mild to moderate burden. 40 In contrast to our findings, a study conducted in Thailand reported a relatively low caregiver burden.…”

Section: Discussionmentioning

confidence: 99%

Real experience of caregivers of patients with HIV/AIDS from the perspective of iceberg theory: a qualitative research

Tang,

Ren,

Wang

et al. 2024

BMJ Open

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ObjectiveThis study aimed to investigate the caregiving behaviours and supportive needs of caregivers of patients with HIV/AIDS and provide a basis for healthcare institutions to carry out caregiver interventions.DesignA purposive sampling method was used to select 11 caregivers of patients with HIV/AIDS in the Infectious Disease Department of a tertiary hospital in Nanjing, China, to conduct semistructured interviews. Colaizzi analysis was used to collate and analyse the interview data.SettingAll interviews were conducted at a tertiary hospital specialising in infectious diseases in Nanjing, Jiangsu Province.ParticipantsWe purposively sampled 11 caregivers of people with HIV/AIDS, including nine women and two men.ResultsAnalysing the results from the perspective of iceberg theory, three thematic layers were identified: behavioural, value and belief. The behavioural layer includes a lack of awareness of the disease, physical and mental coping disorders, and an increased sense of stigma; the values layer includes a heightened sense of responsibility, the constraints of traditional gender norms, the influence of strong family values and the oppression of public opinion and morality and the belief layer includes the faith of standing together through storms and stress.ConclusionHealthcare professionals should value the experiences of caregivers of patients with HIV/AIDS and provide professional support to improve their quality of life.

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Section: Discussionmentioning

confidence: 99%

Real experience of caregivers of patients with HIV/AIDS from the perspective of iceberg theory: a qualitative research

Tang,

Ren,

Wang

et al. 2024

BMJ Open

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“…13 Therefore, it is necessary to investigate the real experience and feelings of informal caregivers of PLWHA. But in China most of the current researches on care experience of informal caregivers of PLWHA are quantitative in nature, 7,14 which may appear insufficient for understanding informal caregivers' lived experiences and perceptions. However, a qualitative approach would provide a more nuanced understanding of the caregivers' perspectives.…”

Section: Introductionmentioning

confidence: 99%

Beyond the Burden: A Qualitative Inquiry into the Experiences of Chinese Informal Caregivers for People Living with HIV or AIDS

Zhang,

Liu,

Han

et al. 2024

PPA

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Purpose Informal caregivers are defined as families or close friends of patients, which take considerable responsibilities for providing care to people living with HIV/AIDS (PLWHA). Although there have been a number of studies in caregiver of PLWHA, research studies that sought to quantify the effects of informal caregiving for the caregivers failed to successfully provide empirical understanding of the nature of caregiving experience. Therefore, this study adopted a qualitative approach to explore the experiences and feelings of caregivers of PLWHA during the long-term care process. Methods The qualitative study was conducted in August 2023 in Beijing, China. Data were collected through individual in-depth semi-structured interviews with informal caregivers of PLWHA. Theme analysis was used to identify themes from the interview transcripts. Results A total of 21 participants were recruited into our study, 16 were family members of PLWAHA, and 5 were homosexual lover or close friend of PLWHA. Three major themes and ten sub themes were identified by thematic analysis: (1) care burden experience (including 5 sub-themes: negative emotional experience, psychological burden, economic burden, physical health loss and limitation of social interaction); (2) benefit findings from care (including 3 sub-theme: positive emotional experience, perceived social support, health promotion); (3) Demands for caregiving capacity (including 2 sub-theme: inadequate caregiving capacity and inadequate psychological comfort capacity). Conclusion This qualitative study provides a comprehensive exploration of the experiences faced by informal caregivers of PLWHA in China, uncovering the complex spectrum of psychological, physical, social, and economic challenges inherent in their caregiving roles, while predominantly challenging, caregivers also reported personal growth, increased social support, and emotional fulfillment. The research results could help in developing effective interventions to reduce the caregiver burden and improve their mental health.

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Caregiver Burden Among Informal Caregivers of Persons Living with HIV/AIDS in Liangshan Prefecture, China

Cited by 2 publications

References 35 publications

Real experience of caregivers of patients with HIV/AIDS from the perspective of iceberg theory: a qualitative research

Real experience of caregivers of patients with HIV/AIDS from the perspective of iceberg theory: a qualitative research

Beyond the Burden: A Qualitative Inquiry into the Experiences of Chinese Informal Caregivers for People Living with HIV or AIDS

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