Caregiver Burden Domains and Their Relationship with Anxiety and Depression in the First Six Months of Cancer Diagnosis

García-Torres, Francisco; Jabłoński, Marcin; Solís, Ángel Gómez; Jaén-Moreno, María José; Gálvez-Lara, Mario; Moriana, Juan Antonio; Moreno-Díaz, María José; Aranda, Enrique

doi:10.3390/ijerph17114101

Cited by 27 publications

(32 citation statements)

References 26 publications

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“…In studies conducted before the COVID-19 pandemic, the mean ZBI score of caregivers of PWC was higher compared to our study [ 23 , 52 , 53 ]. This may be related to the decrease in the rate of hospital admissions due to lockdowns during the pandemic.…”

Section: Discussioncontrasting

confidence: 88%

The effect of anxiety and spiritual well-being on the care burden of caregivers of cancer patients during the COVID-19 pandemic

Akkuş

Karacan

Ünlü

et al. 2021

Support Care Cancer

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Objectives The COVID-19 pandemic has adversely affected the caregivers of people with all chronic diseases, including people with cancer (PWC). This study was conducted to determine the impact of anxiety and spiritual well-being on the care burden of caregivers of PWC during the COVID-19 pandemic. Design This cross-sectional descriptive study included 250 caregivers of hematology and oncology patients registered with a cancer support association. All participants completed the following self-report questionnaires: the Spiritual Well-Being Scale (SWBS), Generalized Anxiety Disorder 7-item scale (GAD-7), and the Zarit Caregiver Burden Interview (ZBI). Results Most (82.4%) of the caregivers expressed fear that their patient may contract COVID-19, and 42.0% stated that they had difficulty getting to the hospital. The caregivers’ mean ZBI score was 21.06 ± 14.64, their mean GAD-7 score was 14.51 ± 6.02, and their mean SWBS score was 111.50 ± 16.84. According to the results of regression analysis, SWBS and GAD-7 scores had a significant effect on the ZBI score ( p < 0.05). Conclusion In this study, anxiety explained most of the care burden during COVID-19. Therefore, during the COVID-19 pandemic, it may be beneficial to implement practices to promote spirituality and reduce anxiety in caregivers of PWC. Supplementary Information The online version contains supplementary material available at 10.1007/s00520-021-06611-0.

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Section: Discussioncontrasting

confidence: 88%

The effect of anxiety and spiritual well-being on the care burden of caregivers of cancer patients during the COVID-19 pandemic

Akkuş

Karacan

Ünlü

et al. 2021

Support Care Cancer

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“…Caregivers have an extremely delicate role, which is indeed accompanied by increasing social and public concern. Being a caregiver acquires a relevant importance in the context of several chronic medical conditions because of the different and various needs of patients [ 1 , 2 , 3 , 4 ].…”

Section: Introductionmentioning

confidence: 99%

A Clinical Bridge between Family Caregivers and Older Adults: The Contribution of Patients’ Frailty and Optimism on Caregiver Burden

Sardella

Lenzo

Alibrandi

et al. 2021

IJERPH

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The association between caregiver burden and the physical frailty of older adults has been the object of previous studies. The contribution of patients’ dispositional optimism on caregiver burden is a poorly investigated topic. The present study aimed at investigating whether older adults’ multidimensional frailty and optimism might contribute to the burden of their family caregivers. The Caregiver Burden Inventory was used to measure the care-related burden of caregivers. The multidimensional frailty status of each patient was evaluated by calculating a frailty index, and the revised Life Orientation Test was used to evaluate patients’ dispositional optimism. The study involved eighty family caregivers (mean age 64.28 ± 8.6) and eighty older patients (mean age 80.45 ± 7.13). Our results showed that higher frailty status and lower levels of optimism among patients were significantly associated with higher levels of overall burden and higher burden related to the restriction of personal time among caregivers. Patients’ frailty was additionally associated with caregivers’ greater feelings of failure, physical stress, role conflicts, and embarrassment. Understanding the close connection between patient-related factors and the burden of caregivers appears to be an actual challenge with significant clinical, social, and public health implications.

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“…Recent longitudinal studies employing either quantitative or qualitative designs showed that although the caregiver burden and unmet needs tend to vary over time, they may persist throughout the cancer illness and caregiving trajectory [ 49 , 50 •, 51 •]. Caregivers who have substantial caregiver burden and psychological distress before the initiation of treatment are likely to experience higher levels of caregiver burden and psychological distress after termination of chemotherapy [ 49 , 52 ]. According to a longitudinal qualitative study, family caregivers constantly worry about the prognosis of the patient throughout the course of chemotherapy, which causes anxiety [ 50 •].…”

Section: Impact Of Caregiving On Informal Cancer Caregiversmentioning

confidence: 99%

Understanding and Supporting Informal Cancer Caregivers

Molassiotis

Wang

2022

Curr. Treat. Options in Oncol.

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Opinion statement Informal caregivers invest a significant amount of time and effort to provide cancer patients with physical, psychological, information, and social support. These challenging tasks can harm their own health and well-being, while a series of social-ecological factors may also influence the outcomes of cancer caregiving. Several instruments have been developed to help clinicians and researchers understand the multi-dimensional needs and concerns of caregivers. A growing body of evidence indicates that supportive interventions including psychoeducation, skills training, and therapeutic counseling can help improve the burden, information needs, coping strategies, physical functioning, psychological well-being, and quality of life of caregivers. However, there is difficulty in translating research evidence into practice. For instance, some supportive interventions tested in clinical trial settings are regarded as inconsistent with the actual needs of caregivers. Other significant considerations are the lack of well-trained interdisciplinary teams for supportive care provision and insufficient funding. Future research should include indicators that can attract decision-makers and funders, such as improving the efficient utilization of health care services and satisfaction of caregivers. It is also important for researchers to work closely with key stakeholders, to facilitate evidence dissemination and implementation, to benefit caregivers and the patient.

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Caregiver Burden Domains and Their Relationship with Anxiety and Depression in the First Six Months of Cancer Diagnosis

Cited by 27 publications

References 26 publications

The effect of anxiety and spiritual well-being on the care burden of caregivers of cancer patients during the COVID-19 pandemic

The effect of anxiety and spiritual well-being on the care burden of caregivers of cancer patients during the COVID-19 pandemic

A Clinical Bridge between Family Caregivers and Older Adults: The Contribution of Patients’ Frailty and Optimism on Caregiver Burden

Understanding and Supporting Informal Cancer Caregivers

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