Caregiver burden in Danish family members of patients with severe brain injury: The chronic phase

Doser, Karoline; Norup, Anne

doi:10.3109/02699052.2015.1114143

Cited by 59 publications

(70 citation statements)

References 37 publications

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“…The results of our study are robust, since burden increased both in terms of mean CBS scores and when measured as minimal clinically important changes. A recent study from Denmark assessed caregiver burden with the CBS 3-6 years after severe TBI and reported burden scores within each subscale of the CBS that were similar to those in the present study, although the Danish study assessed only one time point (Doser & Norup, 2016).…”

Section: Caregiver Burdensupporting

confidence: 70%

“…In the past decades, studies on the impact of severe TBI on family members has highlighted a high level of caregiver burden, diminished life satisfaction, unmet family needs, adaptation to new roles, anxiety, depression, social isolation, emotional difficulties and challenges with family functioning (Bayen et al, 2013;Braine, 2011;Doser & Norup, 2016;Douglas & Spellacy, 1996;Gillen et al, 1998;Godwin & Kreutzer, 2013;KolakowskyHayner et al, 2001;L. A. Livingston et al, 2010b;Manskow et al, 2015;McKinlay et al, 1981;Norup et al, 2010;Norup et al, 2012;Oddy et al, 1978).…”

Section: Introductionmentioning

confidence: 99%

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Patterns of change and stability in caregiver burden and life satisfaction from 1 to 2 years after severe traumatic brain injury: A Norwegian longitudinal study

Manskow

Friborg

Røe

et al. 2017

NRE

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OBJECTIVE:To assess burden and life satisfaction in family members of patients with severe traumatic brain injury (sTBI) at 1 and 2 years post-injury, examine if change in burden can be predicted by family member and patient demographics, patient's functional status, family members social network or level of burden at 1 year. METHODS:Prospective national multicenter study. Self-report from family members, patient data collected from a national cohort study on patients with sTBI. 80 family members participated. MAIN OUTCOME MEASURE:The Caregiver Burden Scale (CBS), life satisfaction. RESULTS:Total burden increased between years 1 and 2 post-injury (P=0.04). Thirty percent of the family members reported an increased burden, 55% were stable, and 15% had a decrease in burden between the two follow-up times. Logistic regression analyses revealed that experiencing loneliness was an independent predictor of increased burden from 1 to 2 years post-injury (OR=4.35, P<0.05). Life Satisfaction was lower at the 2 year follow-up than at 1 year (p=0.03). CONCLUSIONS:The results demonstrate a need for long-term follow-up of patients and family members that focuses on professional support to relieve burden and risk of loneliness or social isolation. This group may benefit from additional follow-up interventions tailored to their needs.

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Section: Caregiver Burdensupporting

confidence: 70%

Section: Introductionmentioning

confidence: 99%

Patterns of change and stability in caregiver burden and life satisfaction from 1 to 2 years after severe traumatic brain injury: A Norwegian longitudinal study

Manskow

Friborg

Røe

et al. 2017

NRE

View full text Add to dashboard Cite

show abstract

“…Particularly for those with severe injuries, caregiving can become chronic and difficult (23). Caregiving after TBI has been associated with financial and marital strain, poor quality of life, and mental and physical health problems (24–28).…”

Section: Discussionmentioning

confidence: 99%

Targeted areas for improving health literacy after traumatic brain injury

et al. 2017

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Objective: To develop a framework to identify targeted areas for improving health literacy for caregivers after traumatic brain injury (TBI). Method: Qualitative study using inductive and deductive qualitative content analysis was conducted in a large, urban, level I trauma center. Interviews were conducted with 23 caregivers of persons TBI. Participants perspectives on communication and preparation for discharge were explored and understanding of commonly used words and discharge instructions were assessed. Results: Four types of communication patterns were identified: formal, informal, indirect, and caregiver-initiated. Informal and caregiver-initiated communication were most common. All caregivers reported confusion about family member’s condition, care plan or discharge plan. Caregivers were not able to define commonly used terms in discharge instructions, and were confused by formatting and medical language. Caregivers were not aware of expected caregiving roles upon discharge. Conceptualizing findings within a Family-Centered Care model, we offer specific strategies to improve health communication and caregiver capacity building to enhance health literacy. Conclusions: Health literacy and caregiver capacity to care for loved ones with TBI after hospital discharge is low. We offer specific targets for improvement in the areas of verbal and written communication and capacity building that take into account provider, patient, and family characteristics.

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“…[16][17][18][19] Family members of patients with ABI often report poor family functioning, which does not improve with time. [20][21][22] Supporting families of patients with ABI may include various interventions modalities, such as support groups for family members of patients requiring intensive care, communication interventions, and/or flexible visiting hours. 23 To date, a few studies have explored interventions targeted at the patient and their family for this population.…”

Section: Introductionmentioning

confidence: 99%

Family-oriented interventions for adults with acquired brain injury and their families: a scoping review protocol

Goumoëns

Rio

Ramelet

2018

JBI Database of Systematic Reviews and Implementation Reports

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Caregiver burden in Danish family members of patients with severe brain injury: The chronic phase

Cited by 59 publications

References 37 publications

Patterns of change and stability in caregiver burden and life satisfaction from 1 to 2 years after severe traumatic brain injury: A Norwegian longitudinal study

Patterns of change and stability in caregiver burden and life satisfaction from 1 to 2 years after severe traumatic brain injury: A Norwegian longitudinal study

Targeted areas for improving health literacy after traumatic brain injury

Family-oriented interventions for adults with acquired brain injury and their families: a scoping review protocol

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