Caregiver resilience and patients with severe musculoskeletal traumatic injuries

Heathcote, Kathy; Sun, Jing; Horn, Zachary; Gardiner, Philippa; Haigh, Rebecca; Wake, Elizabeth; Wullschleger, Martin

doi:10.1080/09638288.2019.1698662

Cited by 8 publications

(5 citation statements)

References 77 publications

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“…Our findings revealed a similar trajectory of resistance development, consistent with previous studies (Chen et al., 2020; Lee et al., 2022; Sharp et al., 2022). However, the findings differed from those in a recent study (Heathcote et al., 2021) where caregivers of patients who experienced acute traumatic injury exhibited a significant decline in resilience from the acute stage to 3 months after patient discharge. This variation might be attributed to caregivers facing additional stressful life events during the rehabilitation of patients who experience severe trauma.…”

Section: Discussioncontrasting

confidence: 99%

“…Furthermore, the patient's functional status emerged as the most important covariate in shaping the resilience trajectory, with significant effects on the baseline resilience level and the rate of resilience growth. This aligns with our predictions and corroborates findings from previous longitudinal studies (Foster et al., 2019; Heathcote et al., 2021; Lee et al., 2022), suggesting that caregivers of patients with a low health status were more susceptible to lower resilience levels. This indicates that caregivers initially exhibit lower resilience, which gradually improves in tandem with an improvement in the patient's health status.…”

Section: Discussionsupporting

confidence: 93%

“…This indicates that caregivers initially exhibit lower resilience, which gradually improves in tandem with an improvement in the patient's health status. For instance, Heathcote et al (2021) observed a significant reduction in resilience levels from baseline to the 3month follow-up after patient discharge, underscoring the positive and independent relationship between caregivers' resilience and the patient's physical function. Moreover, Lee et al (2022) reported that the good performance status of patients with cancer significantly predicted more positive trajectories in overall resilience.…”

Section: Predictors Changes In Resilience Across the Follow-up Periodmentioning

confidence: 83%

“…For instance, Heathcote et al. (2021) observed a significant reduction in resilience levels from baseline to the 3‐month follow‐up after patient discharge, underscoring the positive and independent relationship between caregivers' resilience and the patient's physical function. Moreover, Lee et al.…”

Section: Discussionmentioning

confidence: 99%

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Predictors of changes in resilience among spousal caregivers of patients with advanced cancer within the first 6 months after initial treatment

Sun,

Chen,

Chen

et al. 2023

Journal of Clinical Nursing

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BackgroundWhile previous research has established that resilience is affected by various factors, these studies have primarily focussed on individual variables associated with resilience, without providing insights into how to influence the rate of change in resilience.AimTo examine the trajectory of resilience and identify the factors associated with changes in resilience among spousal caregivers of patients with newly diagnosed advanced cancer receiving treatment during the first 6 months.DesignAn observational longitudinal study.MethodsA total of 312 spousal caregivers of patients with newly diagnosed advanced cancer were recruited from January 2022 to December 2022 in Yancheng, China. Three data collection points were established, spanning from the first month to 6 months after initial cancer treatment. A latent growth model was employed to depict the resilience trajectory at various time points. A latent growth model with time‐invariant covariates was adopted to determine the factors influencing resilience trajectory. The study adhered to the STROBE checklist for proper reporting.ResultsThroughout the follow‐up period, the participants experienced a significant increase in resilience. Gender, family income, the patient's health status, spirituality and belief in familism were significantly associated with the baseline resilience level. Moreover, family income, the patient's health status, spirituality, caregiver burden and belief in familism were significantly associated with the rate of resilience change over time.ConclusionsSpousal caregivers demonstrated a linear increase in resilience during the first 6 months after initial treatment. Meanwhile, changes in resilience were influenced by multiple factors during the early phase of cancer treatment. Thus, more attention should be paid to early identification and implementation of targeted interventions.Relevance to Clinical PracticeHealthcare professionals should understand the change in resilience among spousal caregivers and conduct timely mental health interventions to enhance the resilience of families affected by cancer.Patient or Public ContributionThe Guidance for Reporting Involvement of Patients and the Public‐Short Form reporting checklists were used to improve patient and public involvement.

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Section: Discussioncontrasting

confidence: 99%

Section: Discussionsupporting

confidence: 93%

Section: Predictors Changes In Resilience Across the Follow-up Periodmentioning

confidence: 83%

Section: Discussionmentioning

confidence: 99%

See 2 more Smart Citations

Predictors of changes in resilience among spousal caregivers of patients with advanced cancer within the first 6 months after initial treatment

Sun,

Chen,

Chen

et al. 2023

Journal of Clinical Nursing

View full text Add to dashboard Cite

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“…A patients’ social support network will frequently be relied upon to provide ongoing care and recovery to the trauma patient, often in the role of an informal caregivers. The informal care giver role can have consequences with caregivers experiencing increased psychological distress and decreased resilience [ 43 ]. This is especially relevant within the paediatric trauma population where the caregivers, usually the parents, often experience increased feelings of guilt and responsibility [ 42 , 44 , 45 ].…”

Section: Discussionmentioning

confidence: 99%

Follow-up after major traumatic injury: a survey of services in Australian and New Zealand public hospitals

Wake,

Ranse,

Campbell

et al. 2024

BMC Health Serv Res

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Background Increased survival from traumatic injury has led to a higher demand for follow-up care when patients are discharged from hospital. It is currently unclear how follow-up care following major trauma is provided to patients, and how, when, and to whom follow-up services are delivered. The aim of this study was to describe the current follow-up care provided to patients and their families who have experienced major traumatic injury in Australia and New Zealand (ANZ). Methods Informed by Donabedian’s ‘Evaluating the Quality of Medical Care’ model and the Institute of Medicine’s Six Domains of Healthcare Quality, a cross-sectional online survey was developed in conjunction with trauma experts. Their responses informed the final survey which was distributed to key personnel in 71 hospitals in Australia and New Zealand that (i) delivered trauma care to patients, (ii) provided data to the Australasian Trauma Registry, or (iii) were a Trauma Centre. Results Data were received from 38/71 (53.5%) hospitals. Most were Level 1 trauma centres (n = 23, 60.5%); 76% (n = 16) follow-up services were permanently funded. Follow-up services were led by a range of health professionals with over 60% (n = 19) identifying as trauma specialists. Patient inclusion criteria varied; only one service allowed self-referral (3.3%). Follow-up was within two weeks of acute care discharge in 53% (n = 16) of services. Care activities focused on physical health; psychosocial assessments were the least common. Most services provided care for adults and paediatric trauma (60.5%, n = 23); no service incorporated follow-up for family members. Evaluation of follow-up care was largely as part of a health service initiative; only three sites stated evaluation was specific to trauma follow-up. Conclusion Follow-up care is provided by trauma specialists and predominantly focuses on the physical health of the patients affected by major traumatic injury. Variations exist in terms of patient selection, reason for follow-up and care activities delivered with gaps in the provision of psychosocial and family health services identified. Currently, evaluation of trauma follow-up care is limited, indicating a need for further development to ensure that the care delivered is safe, effective and beneficial to patients, families and healthcare organisations.

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The prevalence of physical activity among informal carers: a systematic review of international literature

et al. 2022

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BackgroundPrevious research has found physical activity levels among carers are low, and that carers are at greater risk of physical inactivity than their non-carer counterparts. Alternatively, research also suggests providing care may be associated with higher levels of physical activity than the general population, due to physically active care duties. Overall, there is a need to better understand the physical activity levels of carers to develop appropriate interventions and policies to promote health and wellbeing among carers. AimTo systematically review studies reporting the prevalence of physical activity among carers. MethodPubMed, SPORTDiscus, PsycINFO, and CINAHL, OpenGrey, Google and Google Scholar were searched for eligible articles. ResultsA total of 77 observational studies and 20 interventional studies were included. In low quality studies which examined adherence to physical activity guidelines, 16%-84% of carers self-reported not meeting PA guidelines, whilst medium-high quality studies found 29.9% -99%< of carers self-reported not meeting physical activity guidelines. However, it is not clear if carers are at higher risk of physical inactivity than non-carers. Studies which compared the physical activity levels of carers to non-carers reported conflicting results, and the association between hours of carers time, burden or strain, and physical activity was not consistent across studies. ConclusionFurther research with validated measures of different physical activity domains (leisure time, daily physical activity, caregiving duties), mental and physical health, is needed to better understand the physical activity behaviours of carers, and the associated health outcomes.

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Caregiver resilience and patients with severe musculoskeletal traumatic injuries

Cited by 8 publications

References 77 publications

Predictors of changes in resilience among spousal caregivers of patients with advanced cancer within the first 6 months after initial treatment

Predictors of changes in resilience among spousal caregivers of patients with advanced cancer within the first 6 months after initial treatment

Follow-up after major traumatic injury: a survey of services in Australian and New Zealand public hospitals

The prevalence of physical activity among informal carers: a systematic review of international literature

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