Caregiver strain following critical care discharge: An exploratory evaluation

McPeake, Joanne; Devine, Helen; MacTavish, Pamela; Fleming, Leanne; Crawford, Rebecca; Struthers, R.; Kinsella, John; Daniel, Malcolm; Shaw, Martin; Quasim, Tara

doi:10.1016/j.jcrc.2016.05.023

Cited by 49 publications

(52 citation statements)

References 29 publications

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“…() and McPeake et al . () both report an association with the prevalence of anxiety and depression and both increased fatigue and increased caregiver strain. Choi et al .…”

Section: Health and Well‐beingmentioning

confidence: 99%

“…Thirteen studies reported moderate to severe depressive symptoms in 20–43% of relatives 2 to 3 months after ICU discharge (Van Pelt et al ., ; Douglas et al ., ; Lemiale et al ., ; Choi et al ., ; McAdam et al ., ; Hwang et al ., ; Sundararajan et al ., ; Andresen et al ., ; Gallop et al ., ; Cameron et al ., ; McPeake et al ., ; Warren et al ., ). Cameron et al .…”

Section: Health and Well‐beingmentioning

confidence: 99%

“…Four studies highlighted that relatives frequently experience poor sleep and fatigue (Dithole and Thupayagale‐Tshweneagae, ; Choi et al ., ; Choi et al ., ; McPeake et al ., ). Choi et al .…”

Section: Health and Well‐beingmentioning

confidence: 99%

“…(, ) reported that 53.6% of relatives suffer from poor sleep 2 months after ICU discharge and may have clinically significant fatigue for up to 4 months after ICU discharge. Insomnia and fatigue have been correlated with worse caregiver strain (Choi et al ., ; McPeake et al ., ).…”

Section: Health and Well‐beingmentioning

confidence: 99%

“…Patients' relatives are also vulnerable to psychological pathologies and diminished health‐related quality of life (HRQoL) following the patients' critical illness (Wintermann et al, ). Relatives often adopt the role of caregiver, providing practical, physical, and emotional support during the patients' protracted rehabilitation (McPeake et al ., ). The combination of enduring their own psychological morbidity and the challenges associated with adopting a caregiving role may have implications for the relatives' health and the sustainability of caregiving.…”

Section: Introductionmentioning

confidence: 99%

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Outcomes and experiences of relatives of patients discharged home after critical illness: a systematic integrative review

Stayt

Venes

2018

Nursing in Critical Care

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Background Patients discharged from intensive care may experience psychological and physical deficits resulting in a long and complex rehabilitation upon discharge. Relatives are also vulnerable to psychological pathologies and diminished health‐related quality of life following the patients' critical illness. Relatives often provide care during the patients' rehabilitation, which may influence their health. Aim To report the outcomes and experiences of relatives of patients discharged home after critical illness. Design Systematic integrative review. Methods Electronic databases Cumulative Index of Nursing and Allied Health Literature, PubMed, Embase®, and PsychINFO® were searched using keywords, synonyms, and medical subject headings. Reference lists of articles and critical care journals were manually searched. Studies eligible for inclusion reported primary research and were published in English between 2007 and 2017. Studies were appraised using the Critical Appraisal Skills Programme checklists. Data were extracted and then analysed according to framework. Findings Twenty‐five studies were included: 19 quantitative, 4 qualitative, and 1 mixed method study. Three themes were identified: health and well‐being, employment and lifestyle, and caregiving role. Health and well‐being reports the incidence and significance of psychological morbidity such as post‐traumatic stress disorder, anxiety, and depression. Employment and lifestyle describes the impact of caregiving on the relative's ability to work and engage in usual social activities. The final theme describes and discusses the caregiving role in terms of activities of daily living, knowledge and skills, and adaption to the role. Conclusions There is a significant and meaningful impact on outcomes and experiences of relatives of patients discharged home after critical illness. Relatives' caregiving is embedded within the context of their psychological morbidity and social adjustment. Relevance to practice If informal care giving is to be sustainable, there is a need to design effective strategies of supporting families through all stages of the critical illness trajectory.

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“…() and McPeake et al . () both report an association with the prevalence of anxiety and depression and both increased fatigue and increased caregiver strain. Choi et al .…”

Section: Health and Well‐beingmentioning

confidence: 99%

Section: Health and Well‐beingmentioning

confidence: 99%

Section: Health and Well‐beingmentioning

confidence: 99%

Section: Health and Well‐beingmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Outcomes and experiences of relatives of patients discharged home after critical illness: a systematic integrative review

Stayt

Venes

2018

Nursing in Critical Care

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Postintensive care syndrome family: A comprehensive review

Shirasaki,

Hifumi,

Nakanishi

et al. 2024

Acute Medicine & Surgery

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Families of critically ill patients are predisposed to tremendous burdens when their relatives are admitted to the intensive care unit (ICU). Postintensive care syndrome family (PICS‐F) can be described as a devastated life, encompassing psychological, physical, and socioeconomical burdens that begin with the emotional impact experienced by the family when the patient is admitted to the ICU. PICS‐F was primarily proposed as a clinically significant psychological impairment, but it needs to be extended beyond the psychological impairment of the family to include physical and socioeconomical impairments in the future. The prevalence of physiological problems including depression, anxiety and post‐traumatic syndrome is 20–40%, and that of non‐physiological problems including fatigue is 15% at 6 months after the ICU stay. Assessment of PICS‐F was frequently conducted at 3‐ or 6‐month points, although the beginning of the evaluation was based on different assessment points among each of the studies. Families of ICU patients need to be given and understand accurate information, such as the patient's diagnosis, planned care, and prognosis. Prevention of PICS‐F requires a continuous bundle of multifaceted and/or multidisciplinary interventions including providing a family information leaflet, ICU diary, communication facilitators, supportive grief care, and follow‐up, for the patient and families from during the ICU stay to after discharge from the ICU. This is the first comprehensive review of PICS‐F to address the concept, risk factors, assessment tools, prevalence, and management to prevent PICS‐F to facilitate acute care physicians' understanding of PICS‐F.

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Burnout and Joy in the Profession of Critical Care Medicine

Kerlin¹,

McPeake²,

Mikkelsen³

2020

Annual Update in Intensive Care and Emergency Medicine

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The Intensive Care Unit (ICU) can be a stressful environment for patients and families, with well-established long-term consequences. The impact that this unique environment can have on healthcare professionals is being increasingly recognized. Challenging ethical situations, exposure to high patient mortality and difficult daily workloads can lead to excessive stress for those caring for critically ill patients. A growing body of literature suggests that this excessive stress and resultant moral distress can lead to Burnout Syndrome [BOS]. In this State of the Art (SOA) review, we focus on the epidemiology of BOS in the ICU and the impact it can have on clinicians, patients and the health service. Risk factors for BOS, alongside potential strategies to mitigate burnout and optimize fulfillment, are also discussed. We conclude that burnout is a threat to the profession of critical care medicine, with high prevalence rates across critical care provider disciplines. However, with a robust community response to the call to action, the opportunity exists to mitigate burnout and optimize fulfillment by critical care professionals to ensure that caring, compassionate, high-quality critical care is delivered to all critically ill patients.

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Caregiver strain following critical care discharge: An exploratory evaluation

Cited by 49 publications

References 29 publications

Outcomes and experiences of relatives of patients discharged home after critical illness: a systematic integrative review

Outcomes and experiences of relatives of patients discharged home after critical illness: a systematic integrative review

Postintensive care syndrome family: A comprehensive review

Burnout and Joy in the Profession of Critical Care Medicine

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