Caregiver tele-support group for Parkinson's disease: A pilot study

Shah, Shital; Glenn, Gretchen; Hummel, Eileen; Hamilton, Jane Meier; Martine, Rebecca; Duda, John E.; Wilkinson, Jayne

doi:10.1016/j.gerinurse.2015.02.002

Cited by 29 publications

(19 citation statements)

References 23 publications

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“…There is qualitative support for interventions that offer education and fellowship with other caregivers [41][42][43]73 but thus far only a preliminary study of the utility of peer support. 103 The role of mindfulness is yet to be adequately studied among PD caregivers. 104 Rehabilitation.…”

Section: Other Important Measuresmentioning

confidence: 99%

Caregiver Burden in Parkinson Disease: A Critical Review of Recent Literature

Mosley

Moodie

Dissanayaka

2017

J Geriatr Psychiatry Neurol

230

287

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Burden is a negative psychological state induced in caregivers by the demands of providing care to a person with an illness or a disability. Managing caregiver burden in Parkinson disease (PD) is significant because informal caregivers make a substantial contribution to the well-being of persons with PD, incurring financial, social, and personal losses. Failure to recognize and manage caregiver burden may lead to burnout and premature institutionalization of the person with PD. We conducted a comprehensive literature review to identify and summarize factors that may amplify burden, including motor and nonmotor symptoms of PD, caregiver psychiatric symptoms, and caregiver coping style. We review instruments designed to sample the construct of burden among caregivers and evaluate interventions that may reduce burden, either by directly targeting caregivers or by treating PD symptoms associated with burden. We aim to provide a concise synopsis of these issues for the clinician or researcher working with this population in order to facilitate recognition of caregiver burden, provide accurate assessment, administer appropriate interventions, and stimulate further research in this area.

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Section: Other Important Measuresmentioning

confidence: 99%

Caregiver Burden in Parkinson Disease: A Critical Review of Recent Literature

Mosley

Moodie

Dissanayaka

2017

J Geriatr Psychiatry Neurol

230

287

View full text Add to dashboard Cite

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“…35 This effect was not maintained at 6 months in another study examining the same intervention in clinical practice. 28 Coping was measured as self-efficacy in two studies. In one study, cognitive rehabilitation therapy did not improve selfefficacy significantly at 6 months 24 and in the other study it did improve at 7 weeks after an educational intervention.…”

Section: Needs and Copingmentioning

confidence: 99%

Current Knowledge on the Evolution of Care Partner Burden, Needs, and Coping in Parkinson's Disease

Hulshoff

Book

Dahodwala

et al. 2021

Movement Disord Clin Pract

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Background Care partners support people with Parkinson's disease through a long journey ranging from independence to dependence for many daily tasks. Longitudinal studies are important to understand the evolution of this process and predictors of future needs of care partners. Methods A scoping review was conducted, searching PubMed for longitudinal studies examining care partner burden, needs or coping in Parkinson's disease published through May 2020. Results Eight observational studies and 19 interventional studies met the eligibility criteria. Longitudinal observation ranged from 7 weeks to 10 years, involving between six and 8515 care partners. All studies addressed care partner burden, while two and three studies respectively addressed needs and coping. Only one study related burden to specific stages or duration of disease. Results from identified studies show that care partners in Parkinson's disease are at risk for increasing burden over time. Multiple predictors of future burden have been identified related to the person with Parkinson's disease, the care partner, or an intervention. No studies examined the evolution of needs and coping in caregiving in Parkinson's disease. Conclusion The scarcity of longer term, observational research on the temporal evolution of burden and particularly needs and coping in caregiving for someone with PD is a main identified gap. Even within these observational studies, the impact of caregiving is not often reported. Longitudinal studies on these topics are needed to help understand their change over time and relation to each other, which can inform support planning for care partners.

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“…Se reportan estudios con resultados similares a los obtenidos en esta investigación (35,36), implementando TIC como plataformas virtuales y teleconferencias que procuran brindar educación al cuidador sobre la enfermedad, redes de apoyo social e interacción con otros cuidadores, con el fin de aminorar la carga de cuidado, lo que evidencia baja adherencia de los cuidadores a las TIC, sin cambios significativos sobre la variable de percepción de carga.…”

Section: Discussionunclassified

Efecto de una intervención de soporte social en cuidadores de personas con enfermedad crónica

et al. 2020

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Objetivo: determinar el efecto de la intervención de enfermería “Alguien apoya al que cuida” sobre las percepciones de soporte social y de sobrecarga con el cuidado de cuidadores familiares de personas con enfermedad crónica.Metodología: estudio de tipo cuantitativo cuasiexperimental con un grupo experimental y de control, al que se le realizó medición antes y después de la intervención aplicando los instrumentos de soporte social percibido de Sherbourne y Stewart y entrevista de sobrecarga de Zarit en un total de 137 participantes que cumplieron con los criterios de inclusión de ser cuidador principal por más de seis meses y estar vinculado al programa “Cuidando a los Cuidadores®” de la Facultad de Enfermería de la Universidad Nacional de Colombia. Los datos fueron analizados por medio de estadística descriptiva e inferencial no paramétrica en la que se aplicó la prueba de Mann-Whitney para el análisis intergrupos.Resultados: no existe diferencia significativa entre grupos en las mediciones pre y posprueba en ninguna de las variables, además se presenta un mínimo cambio entre las medias de la variable de sobrecarga entre la pre y la posprueba del grupo experimental.Conclusión: se advierte que el efecto mínimo de la intervención propuesta se presenta por la multidimensionalidad del soporte social, además del uso de otro tipo de TIC diferentes a las propuestas en este estudio.

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Caregiver tele-support group for Parkinson's disease: A pilot study

Cited by 29 publications

References 23 publications

Caregiver Burden in Parkinson Disease: A Critical Review of Recent Literature

Caregiver Burden in Parkinson Disease: A Critical Review of Recent Literature

Current Knowledge on the Evolution of Care Partner Burden, Needs, and Coping in Parkinson's Disease

Efecto de una intervención de soporte social en cuidadores de personas con enfermedad crónica

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