2014
DOI: 10.1007/s00520-014-2194-3
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Caregivers as healthcare managers: health management activities, needs, and caregiving relationships for colorectal cancer survivors with ostomies

Abstract: Purpose While the burdens and rewards of cancer caregiving are well-documented, few studies describe the activities involved in cancer caregiving. We employed a social-ecological perspective to explore the work of cancer caregiving for long-term colorectal cancer (CRC) survivors with ostomies. We focused on healthcare management, defined here as the ways in which informal caregivers participate in healthcare-related activities such as managing medical appointments and information, obtaining prescriptions and s… Show more

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Cited by 29 publications
(29 citation statements)
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References 27 publications
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“…Within colorectal cancer patients, coping with a stoma can have numerous detrimental effects such as sleep disruption and difficulty handling daily and social activities (Neuman et al., ). Stoma care requires significant time, stamina and commitment from caregivers (Cotrim & Pereira, ; McMullen et al., ), thus adding to the disruption caused to caregivers’ schedules, over and above their other care tasks. The need for additional support from the family or the healthcare system (perhaps in the form of community nurses) for caregivers of patients with stomas, and those who have received chemotherapy (which emerged as a significant predictor of impact on family support), is also highlighted in our study.…”
Section: Discussionmentioning
confidence: 99%
See 1 more Smart Citation
“…Within colorectal cancer patients, coping with a stoma can have numerous detrimental effects such as sleep disruption and difficulty handling daily and social activities (Neuman et al., ). Stoma care requires significant time, stamina and commitment from caregivers (Cotrim & Pereira, ; McMullen et al., ), thus adding to the disruption caused to caregivers’ schedules, over and above their other care tasks. The need for additional support from the family or the healthcare system (perhaps in the form of community nurses) for caregivers of patients with stomas, and those who have received chemotherapy (which emerged as a significant predictor of impact on family support), is also highlighted in our study.…”
Section: Discussionmentioning
confidence: 99%
“…These effects have primarily been attributed to the perceived burden of caregiving (Adelman, Tmanova, Delgado, Dion, & Lachs ; Applebaum & Breitbart, ; Girgis, Lambert, Johnson, Waller, & Currow, ; Romito et al., ). Cancer caregivers must take diverse roles, ranging from medical and instrumental, to social and emotional (McMullen et al., ). This can involve substantial time commitments and disruptions to schedule (Yabroff & Kim, ), impose a considerable financial burden (Grov, Fosså, Sørebø, & Dahl, ), and may be further compounded by a perceived lack of social support (Rodakowski, Skidmore, Rogers, & Schulz, ; Yoon, Kim, Jung, Kim, & Kim, ).…”
Section: Introductionmentioning
confidence: 99%
“…Qualitative studies have helped to explore various aspects of individuals' experiences of colorectal cancer such as the psychosocial impact and quality of life (Dunn et al, 2005;Ramfelt et al, 2002;Sahay et al, 2001), adjustment to diagnosis and treatment (Hubbard et al, 2010;Taylor et al, 2001Taylor et al, , 2010 including an ostomy or stoma (McMullen et al, 2008(McMullen et al, , 2014, and healthcare needs or preferences (Beaver et al, 2010;McCaughan et al, 2011McCaughan et al, , 2012Rozmovits et al, 2004). Some studies have included partners or other relatives, describing issues such as their information needs (Broughton et al, 2004), the impact of treatment (Emslie et al, 2009;Ohlsson-Nevo et al, 2011, caregiving and daily life (Houldin, 2007;Sjovall et al, 2011), along with the economic and emotional consequences (Céilleachair et al, 2012).…”
Section: Introductionmentioning
confidence: 99%
“…Finally, applying information from a research study to an individual patient is challenging, because no patient is average, and many factors affect the individual's long‐term bowel function and QOL. For example, men and women differ in their response to rectal cancer surgery as do those with comorbidities, with greater or less social support, or who depend on others for personal care …”
Section: Key Predictors Of Qolmentioning
confidence: 99%