Caregivers' experiences of medication management advice for people living with dementia at discharge

Sawan, Mouna; Jeon, Yun‐Hee; Bond, Christine; Hilmer, Sarah N.; Chen, Timothy; Wennekers, Damian; Gnjidic, Danijela

doi:10.22541/au.160431303.35072748/v1

Cited by 4 publications

(14 citation statements)

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“…The content of the tool was informed by the findings of the two previous studies conducted by the research team, qualitative research 13 and a systematic review, 7 and two resources, the Australian Commission National Safety and Quality Health Service Standards 24 and the WHO Medication Safety in Transitions of Care. 25…”

Section: Methodsmentioning

confidence: 99%

“…The qualitative study explored the experiences of 31 informal carers about the medication management advice they received at hospital discharge for people with dementia. 13 The study identified that carers experienced: (1) insufficient medication management information at discharge, (2) limited carer involvement in decisions about medication management and (3) challenges in obtaining medication supply after discharge. The systematic review identified tools evaluating medication management for informal carers of people with dementia and summarised carer involvement in aspects of medication management.…”

Section: Methodsmentioning

confidence: 99%

“…For pretesting, a minimum of five cognitive interviews are recommended until saturation is achieved. 21 For this reason, 13 informal carers from across Australia who participated in the earlier qualitative study and consented to participate in further research 13 (see the Domain and item generation section) were invited to participate in cognitive interviews via email. Additional consent was obtained from carer participants for participation in cognitive interviews.…”

Section: Methodsmentioning

confidence: 99%

“…The research question and the first draft of the tool were informed by the experiences and preferences of carers on medication management advice they received at hospital discharge for people with dementia. 13 The draft and final version of the tool were reviewed by the research advisory group and the Sydney Dementia Network Lived Experience Expert Advisory Panel (members are people with lived experience in dementia). In addition, carer participants were recruited via consumer groups and networks.…”

Section: Methodsmentioning

confidence: 99%

“…This is important as carers often report that they feel unprepared to manage medications for the person with dementia after hospitalisation. 13 Therefore, an understanding of the overall medication management guidance which carers are given at discharge is needed to identify areas of improvement to ensure safe use of medications. At present, there are no published validated tools that describe or quantify these aspects of medication management.…”

Section: Introductionmentioning

confidence: 99%

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Development of a tool to evaluate medication management guidance provided to carers of people living with dementia at hospital discharge: a mixed methods study

et al. 2022

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ObjectiveMedication management guidance for carers of people with dementia at hospital discharge is important to prevent medication-related harm during transitions of care. This study aimed to develop a tool to evaluate medication management guidance provided to carers of people with dementia at hospital discharge.DesignThe tool was developed using mixed methods involving two stages. Stage 1 involved item generation and content validation. Items were based on a previous qualitative study and systematic review. Content validation involved experts and consumers with knowledge or experience of medication management guidance in the acute care setting, and rating each item on importance and relevance. Stage 2 involved conducting cognitive interviews with carers of people with dementia to pretest the tool.SettingFor stage 1, experts and consumers from Australia, USA and New Zealand were included. For stage 2, carers of people with dementia were recruited across Australia.Participants18 experts and consumers participated in round 1 of content validation, and 13 experts and consumers completed round 2. Five carers of people with dementia participated in cognitive interviews.ResultsThe final tool contained 30 items capturing information across five domains: (1) provision of medication management guidance at hospital discharge; (2) carer understanding of medication management guidance provided at discharge; (3) carer engagement in discussing the safe use of medications at discharge; (4) carer preparedness to conduct medication management activities after discharge; and (5) co-ordination of medication management guidance after discharge.ConclusionsWe developed the first tool to assess medication management guidance provided for carers of people with dementia at hospital discharge. The tool may be useful to inform future research strategies to improve the delivery of medication management guidance at discharge.

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%