Caregivers’ Incongruence: Emotional Strain in Caring for Persons with Stroke

Pierce, Linda L.; Thompson, Teresa L.; Govoni, Amy L.; Steiner, Victoria

doi:10.1002/rnj.35

Cited by 40 publications

(51 citation statements)

References 20 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…mood 7, 9, 28, 36, 38, 40, 69, 74, 77, 78 – “ I’m just at the end of my tether with these mood swings. One minute he is okay, joking and carrying on and then the next he just shouts at you all the time.” 28 …”

Section: Figurementioning

confidence: 99%

See 2 more Smart Citations

Needs of Stroke Survivors as Perceived by Their Caregivers

Krishnan

Pappadis

Weller

et al. 2017

American Journal of Physical Medicine &Amp; Rehabilitation

View full text Add to dashboard Cite

Objective Caregivers usually are not involved while planning the stroke survivor’s medical and rehabilitation goals and interventions. This review aimed to identify the needs of stroke survivors as perceived by their caregivers. Design A literature search from 2003 until 2014 was conducted using Medline, CINAHL, PsychINFO and Google Scholar. Sixty-six studies were included. Most studies excluded did not encompass caregivers’ perspectives. Four reviewers screened the titles, abstracts, and full texts of the articles for inclusion. The data extracted from these studies were synthetized into meta-themes. Results Fifty-two qualitative, ten quantitative survey, and four mixed methods studies were included in the final synthesis. The studies came from eleven countries. The data synthesis produced three meta-themes: a) body functional needs, including psychological function, physical function, cognitive function, and uncertainty related to function; b) activity and participatory needs, including healthy lifestyle, physical activities, speech, independence, cognitive activities, and uncertainty related to activities and participation; and c) environmental needs, encompassing support, services, safety, accommodation and accessibility, and uncertainty related to environmental factors. Conclusion This scoping review identified a range of needs of stroke survivors as perceived by their caregivers. Incorporating the caregiver’s preference and values into clinical decisions may improve outcomes among stroke survivors.

show abstract

Section: Figurementioning

confidence: 99%

“…anger and agitation 30, 59, 65, 69 , anxiety, 47, 81 and changes in behavior 23, 40, 70 – “He is more irritable because he realizes his limitations.” 65 …”

Section: Figurementioning

confidence: 99%

See 1 more Smart Citation

Needs of Stroke Survivors as Perceived by Their Caregivers

Krishnan

Pappadis

Weller

et al. 2017

American Journal of Physical Medicine &Amp; Rehabilitation

View full text Add to dashboard Cite

show abstract

“…[15] Family members are worried about both the affected family member and themselves, of being trapped in a caring role and about their future. [14,16] They also suffer severe emotional stress [12,17] and high levels of distress. [18] Thus, family members are looking for a new sense of normality and to overcome desolation.…”

Section: Living With Strokementioning

confidence: 99%

Responses after participating in Family Health Conversations in families with a family member who has suffered a stroke: A mixed methods research study

Sundin¹,

Bäckström²,

Lindh³

et al. 2016

Clinical Nursing Studies

View full text Add to dashboard Cite

Background: It has been proposed that support for families in which a family member has suffered a stroke should involve the whole family system. Aim: The aim was to evaluate the responses of Family Health Conversation (FamHC) in families with a member under the age of 65 who has been diagnosed with stroke. Methods: In this mixed methods research study, families were included in an intervention group and in a control group. For both groups pre-and post-intervention quantitative data was collected and for the intervention group, qualitative data was collected post-intervention. Underlying theoretical propositions and the two data sets were then integrated. Results: Family health measured as "the general atmosphere of the interaction of the family" had improved in the intervention group when compared to the control group. The intervention families, moreover, described how they had become more cooperative, their communication had improved, they had become more confident with their situation and also when planning for the future when comparing to before the FamHC. Conclusions: Based on the empirical results supporting the theoretical proposition underlying FamHC, we conclude that it works as intended, and the evidence for the theoretical proposition is thereby strengthened. This paper contributes to the scientific evidence concerning FamHC. With the available evidence, RNs are suggested to consider changing practice so as to work in a more family-centred way to support families living with ill-health. Implementing FamHC can be one way of undertaking such supportive work.

show abstract

“…Selama pasien di rumah sakit, perhatian besar caregiver adalah kondisi kesehatan pasien dan ketakutan bahwa pasien dapat saja meninggal. Hanya setelah kesehatan pasien stabil, caregiver mulai kembali ke kehidupan rutin mereka dan melakukan banyak pekerjaan (Pierce, Thompson, Govoni & Steiner, 2012;Kerr & Smith, 2000). Hasil data demografi menunjukkan bahwa mayoritas partisipan merawat pasien strok selama satu sampai dengan tiga tahun sebesar 43,8%.…”

Section: Penelitian Yang Dilakukan Oleh Arksey Danunclassified

Pengalaman Keluarga sebagai Caregiver dalam Merawat Pasien Strok di Rumah

Daulay¹,

Setiawan²,

S³

2014

JKP

View full text Add to dashboard Cite

AbstrakSebagian besar pasien strok yang kembali ke rumah mengalami kecacatan. Kecacatan akibat strok tidak hanya berdampak bagi pasien, akan tetapi juga berdampak bagi anggota keluarga yang akan menjadi caregiver. Penelitian pada caregiver ini penting karena caregiver berperan terhadap keberhasilan pengobatan dan perawatan pasien strok. Penelitian ini bertujuan untuk mengeksplorasi secara mendalam tentang makna pengalaman keluarga sebagai caregiver pasien strok di rumah. Penelitian ini merupakan studi fenomenologi deskriptif. Pengumpulan data dilakukan dengan indepth interview. Partisipan dalam penelitian ini berjumlah 16 orang yang dipilih dengan teknik purpossive sampling. Data yang diperoleh dianalisis dengan pendekatan Colaizzi. Hasil analisis penelitian ditemukan lima tema yaitu: memberikan dukungan total, memenuhi kebutuhan dasar, penderitaan dan hikmah bagi caregiver, kurangnya keterampilan dalam merawat, dan keterbatasan caregiver. Caregiver menderita masalah fisik, psikologis, dan sosial. Pada umumnya, caregiver merasa terabaikan, mereka membutuhkan informasi terkait penyakit pasien, cara merawat pasien strok, dan sumber-sumber komunitas pelayanan kesehatan. Berdasarkan hasil penelitian, perawat disarankan untuk melakukan perencanaan pulang individual yang lebih berpusat pada keluarga daripada pendekatan berpusat pada pasien.Kata kunci: Caregiver keluarga, merawat, pasien strok. The Live Experience of Caregiver Caring for Patient with Stroke at Home AbstractMost of the strok patients who return home suffer from disabilities. Disability caused by strok not only impact on strok patients, but also impact on family members who will be the caregiver. The concern to the caregiver is important because the success of the treatment and care of strok patients can not be separated from the help and support provided by the caregiver. This study aims to explore deeply the meaning of family experience as caregiver for strok patients at home. This study is a descriptive phenomenological study. Data were collected through indepth interview. Participants in this study were 16 people who were selected by purposive sampling technique. The data obtained were analyzed by using Colaizzi approach. Results of analysis found 5 (five) themes, namely: giving total support, meeting basic needs, suffering and wisdom for the caregiver, lack of skills in caring for, and limitations of caregiver. Caregiver suffering from physical, psychological, and social problems. In general, caregivers feel neglected, they need information about the patient's illness and how to care for them as well as community resources for health services. Based on the results of the research, it is suggested that discharge planning approach should be focused more on family rather than patient.

show abstract

Caregivers’ Incongruence: Emotional Strain in Caring for Persons with Stroke

Cited by 40 publications

References 20 publications

Needs of Stroke Survivors as Perceived by Their Caregivers

Needs of Stroke Survivors as Perceived by Their Caregivers

Responses after participating in Family Health Conversations in families with a family member who has suffered a stroke: A mixed methods research study

Pengalaman Keluarga sebagai Caregiver dalam Merawat Pasien Strok di Rumah

Contact Info

Product

Resources

About