“…These effects include demands on caregivers' time (Leonard, Brust, and Sapienza 1992;Harris and McHale 1989), disruption of family routines (Singhi, Goyal, Pershad, et al 1990;Romans-Clarkson, Clarkson, and Dittmer 1986), reduced social and leisure activities (Traustadottir 1991), out-of-pocket expenses for the family member with a disability (Leonard, Brust, and Sapienza 1992;Fujiura, Roccoforte, and Braddock 1994;Clark and Drake 1994), and the health and well-being of caregivers (Barnes, Given, and Given 1992;Lee, Dwyer, and Coward 1993;Dwyer and Coward 1991).…”