Caregivers’ satisfaction with hospice care in the last 24 hours of life

Casarett, David; Hirschman, Karen B.; Crowley, Roxane; Galbraith, Linda D.; Leo, Melinda

doi:10.1177/104990910302000309

Cited by 23 publications

(18 citation statements)

References 15 publications

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“…He wasn't real familiar with it and he was just so sick, he just took it, somebody to help me when I go Downloaded by [Simon Fraser University] at 08:01 17 November 2014 home, you know?" This sentiment was similar to other studies' findings that patients and families only found out about the most beneficial aspects of hospice after enrollment (Casarett et al, 2004;Casarett et al, 2003).…”

Section: Understanding Of Hospicesupporting

confidence: 91%

“…The median length of service was 20 days, down from 20.6 in 2006 (NHPCO, 2008). Recent studies have reported that families receiving hospice services had lower rates of unmet needs, in particular, emotional needs (Teno et al, 2004), and were satisfied with the level of care provided (Casarett, Hirschman, Crowley, Galbraith, & Leo, 2003;Rhodes, Mitchell, Miller, Connor, & Teno, 2008;Teno et al, 2004). It is now widely accepted that hospice services can improve the multidimensional symptoms often present at the end of life; however, the proportion of individuals near the end of life that would ideally benefit from hospices services or what the optimal length of care is in general is still unknown (Casarett & Quill, 2007).…”

mentioning

confidence: 95%

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Bereaved Hospice Caregivers' Views of the Transition to Hospice

Csikai

Martin

2010

Social Work in Health Care

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This study was conducted to explore the communication process between patients, caregivers, and health care professionals, including social workers, through which the decision to choose hospice occurred. Ten bereaved hospice caregivers of patients over age 60 receiving home hospice services participated in this qualitative (phenomenological) study. They represented a range of patient and caregiver characteristics such as age, ethnicity, diagnoses, length of hospice service use, and caregiver relationship to patient. A semi-structured interview guide was used to capture key components in the end-of-life communication process, including discussions caregivers had with health care professionals regarding patients' diagnoses, prognoses, end-of-life care treatment options, and eventual referral to hospice. Themes that emerged included: involvement of health care professionals, relationship with physicians, involvement of patients in decisions, content of discussion, understanding of hospice, and suggestions for improvement. Physicians and social workers were noted to be most involved in the communication, decision making, and transition to hospice; however, a need exists for a more coordinated approach to discussing end-of-life care options with seriously ill patients and their families.

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Section: Understanding Of Hospicesupporting

confidence: 91%

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confidence: 95%

Bereaved Hospice Caregivers' Views of the Transition to Hospice

Csikai

Martin

2010

Social Work in Health Care

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“…Two studies that have used cognitive interviews have explored how bereaved respondents answer questions in retrospective surveys; they found that respondents were drawing on memories of the deceased and not just their own feelings in answering questions 67 68. Other researchers have found that bereavement respondents’ feelings of distress were not related to their satisfaction scores,69 or that both respondent characteristics and characteristics of services determined satisfaction 70. The current evidence therefore discounts the possibility that retrospective surveys only reflect bereavement distress.…”

Section: Discussioncontrasting

confidence: 60%

Developing the methods and questionnaire (VOICES-SF) for a national retrospective mortality follow-back survey of palliative and end-of-life care in England

Hunt

Richardson

Darlington

et al. 2017

BMJ Support Palliat Care

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The National Survey of Bereaved People was conducted by the Office for National Statistics on behalf of NHS England for the first time in 2011, and repeated annually thereafter. It is thought to be the first time that nationally representative data have been collected annually on the experiences of all people who have died, regardless of cause and setting, and made publicly available informing palliative and end-of-life policy, service provision and development, and practice. This paper describes the development of the questionnaire used in the survey, VOICES-SF, a short-form of the VOICES (Views Of Informal Carers-Evaluation of Services) questionnaire, adapted specifically to address the aims of the national survey. The pilot study to refine methods for the national survey is also described. The paper also reports on the development of the retrospective, after-death or mortality follow-back method in palliative and end-of-life care, and reviews its strengths and weaknesses.

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“…According to primary caregivers as well, patients' life quality increased after hospice services were implemented (McMillan and Mahon 1994). Previous studies also indicate that family members are very satisfied with hospice care, especially when compared to the care offered by other institutions (Ringdal et al 2002;Casarett et al 2003;Teno et al 2004). Studies conducted in an Australian hospice showed that there was a relationship between satisfaction with hospice care and quality of life.…”

Section: Introductionmentioning

confidence: 99%

Palliative and hospice care in social awareness in different countries

Czyżowska¹

2018

human

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Palliative and hospice care is about improving the quality of life of patients who face a life-threatening illness through pain management, treating other symptoms and providing psychological, social and spiritual support to the patients and their families. Engagement of an interdisciplinary team of specialists provides the opportunity to identify the needs of the patient and his or her family and to implement appropriate interventions to prevent and alleviate suffering. Promoting the idea of palliative and hospice care is important because it increases the chances that people in need of specialist support at the end of life and their loved ones will know what help they can get and where. The aim of this article is to analyze the findings about levels of knowledge and belief of palliative care in different countries (including the United States, Ireland, Italy and Poland), which indicate that there is still much work to be done on building public awareness. An attempt will be also made to answer the question: why do people know so little about palliative care and what can be done to change this situation?

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Caregivers’ satisfaction with hospice care in the last 24 hours of life

Cited by 23 publications

References 15 publications

Bereaved Hospice Caregivers' Views of the Transition to Hospice

Bereaved Hospice Caregivers' Views of the Transition to Hospice

Developing the methods and questionnaire (VOICES-SF) for a national retrospective mortality follow-back survey of palliative and end-of-life care in England

Palliative and hospice care in social awareness in different countries

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