Caregiving for children with type 1 diabetes and clinical outcomes in central India: The
            <scp>IDREAM</scp>
            study

Friedemann-Sánchez, Greta; Capistrant, Benjamin D.; Ron, James; Novak, Lindsey; Zuijdwijk, Caroline; Anderson, Barbara J.; Moran, Antoinette; Pendsey, Sharad

doi:10.1111/pedi.12567

Cited by 14 publications

(32 citation statements)

References 17 publications

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“…This investigation into diabetes in Jamaica has partly agreed with other research conducted in developing countries on caregivers, 6,7,14,26,27 whose primary difference from studies in developed countries is the salience of lack of access to resources 6,14,26 and cultural factors. 6,14 In this study, a salient cultural factor was participants' religiosity, as demonstrated by their dependence on religion as a coping strategy.…”

Section: Discussionsupporting

confidence: 80%

“…3,5,14 Poor coping involves overprotective behaviour, poor communication, distancing, and emotional instability. 8,15 In the diabetes literature, relatively few studies focus on caregivers of children with diabetes in developing countries 7 or make rural/urban comparisons. Jamaican diabetes research is predominantly quantitative: studies focus on adults and epidemiological concerns such as risk factors, prevalence, knowledge, and morbidity.…”

mentioning

confidence: 99%

“…Research shows that “caregiving is pivotal to optimal outcomes” for children living with diabetes. 7,p.2;5,8,9 At the same time, caregiver stress can negatively impact the child’s diabetes management. 5,10 Therefore, attention to caregivers’ coping strategies – cognitive and behavioural techniques for mediating between a stressor and distress 11 – is important not only for the adult’s health but the child’s as well.…”

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confidence: 99%

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“How am I gonna cope?”: Caregivers of adolescents with diabetes in Jamaica

Anderson

Tulloch‐Reid

2018

Chronic Illness

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Objective To determine the challenges, coping strategies and needs of urban and rural Jamaican caregivers of adolescents with diabetes, and suggest ways to assist coping. Methods This qualitative study comprised four focus groups (two urban and two rural) with a total of nineteen caregivers of adolescents with diabetes. Thematic analysis was conducted on the data. Results The main challenges caregivers faced were keeping their children healthy, managing conflict with their children, and financial concerns. They met these challenges with problem-focused and emotion-focused coping strategies. Caregivers used the problem-focused strategies of vigilance, advocacy, minimising their children's negative emotions, coercion, education, and seeking support, and the emotion-focused strategies of relying on their identity as parents and turning to their faith. Caregivers wanted assistance acquiring medication and equipment, increased diabetes education, and support groups. Discussion More resources should be channelled toward provision of diabetes supplies. Diabetes education is necessary in schools and for the general public. Healthcare practitioners should explore issues beyond diabetes management, such as caregivers' coping and the caregiver-child relationship. Support groups are needed to facilitate learning. Special attention must be paid to rural areas: rural residents appeared to be in greater need than their urban counterparts.

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Section: Discussionsupporting

confidence: 80%

mentioning

confidence: 99%

mentioning

confidence: 99%

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“How am I gonna cope?”: Caregivers of adolescents with diabetes in Jamaica

Anderson

Tulloch‐Reid

2018

Chronic Illness

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“…10 5-1619 (10)(11)(12)(13)(14)(15)(16)(17)(18)(19)(20)(21)(22)(23)(24)(25)(26)(27) <0.001* patients were aged ≥65 years; thus, they were categorized into the ≥45 years age group (Table 2). Regarding health insurance schemes, the majority of patients (67.4%) had Universal Health Coverage Scheme, 13.1% had Civil Servant Medical Benefit Scheme and 10.1% were covered by Social Security Scheme.…”

Section: Patient Characteristicsmentioning

confidence: 99%

Type 1 diabetes management and outcomes: A multicenter study in Thailand

Dejkhamron

Santiprabhob

Likitmaskul

et al. 2020

J of Diabetes Invest

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Aims/Introduction: The Thai Type 1 Diabetes and Diabetes Diagnosed Before Age 30 Years Registry, Care and Network was established in 2014 and involved 31 hospitals. The objective of the registry was to evaluate glycemic control and complications of patients with type 1 diabetes. Materials and Methods: Patients' demographics, clinical data, frequencies of daily selfmonitoring of blood glucose (SMBG), glycemic control and complications were collected. Results: Among the 1,907 type 1 diabetes patients, the mean age was 21.2-11.3 years. The mean glycated hemoglobin level was 9.35-2.41%, with significant variations among age groups (P < 0.001). Conventional insulin treatment and intensive insulin treatment were used in 43 and 57% of patients, respectively. Mean glycated hemoglobin levels were significantly higher in patients treated with conventional insulin treatment compared to those treated with intensive insulin treatment (9.63-2.34 vs 9.17-2.46%, P = 0.002). Compared to the conventional insulin treatment group, significantly more patients in the intensive insulin treatment group achieved good glycemic control (P < 0.001), and fewer had diabetic retinopathy (P = 0.031). The prevalence of microvascular complications increased significantly with age (P < 0.001). Multivariate analysis showed good glycemic control to be associated with age 25 to <45 years, intensive insulin treatment with SMBG three or more times daily and diabetes duration of 1 to <5 years. Conclusions: Most Thai type 1 diabetes patients were not meeting the recommended glycemic target. As a result of this study, the national program to improve the quality of diabetes treatment and education has been implemented, and the results are ongoing.

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“…In particular, school nurses recognized the significance of partnerships between schools and families. For example, in an interventional study, parental involvement in disease management, such as determining insulin dose, was associated with lower hemoglobin A1c levels among children with diabetes (Friedemann‐Sanchez et al, 2018). This is similar to another review that found school nurses provide collaboration and communication in the care coordination process for children with complex needs (McClanahan & Weismuller, 2015).…”

Section: Discussionmentioning

confidence: 99%

School nurses' perceptions regarding barriers and facilitators in caring for children with chronic diseases in school settings: A mixed studies review

Uhm

Choi

Lee

2020

Nursing & Health Sciences

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This study aimed to understand school nurses' perceptions regarding barriers to and facilitators for health care services for children with chronic diseases in school settings. Using the PubMed, Cumulative Index to Nursing and Allied Health Literature, Embase, and Web of Science databases, a mixed studies review was conducted for literature published between January 2011 and June 2020. We performed a mixedmethods systematic review using a convergent integrated approach. A quality appraisal of the included studies was conducted using a mixed-methods appraisal tool. Twenty-seven articles (10 qualitative, 10 quantitative, and seven mixedmethods) that met the inclusion criteria were analyzed. Integrated findings that emerged from data synthesis were categorized into four levels (intrapersonal level, interpersonal level, institutional level, and community and public policy level) based on a socio-ecological model framework. This mixed systematic review provides a comprehensive understanding of school nurses' perceived barriers and facilitators when providing school health care for students with chronic diseases and how these barriers and facilitators interact across multiple systems. Further policies and strategies should be developed to provide effective school health services considering this study's findings. K E Y W O R D S childhood chronic disease, mixed systematic review, school health services, school nursing 1 | INTRODUCTION Although advances in hygiene, sanitation, vaccinations, and medications have led to decreasing child mortality, the prevalence of chronic diseases among children is increasing worldwide (Perrin, Anderson, & Van Cleave, 2014). The major chronic diseases in childhood are asthma, diabetes, epilepsy, food allergies, and cancer. Asthma is a common chronic disease among children below 18 years of age, with a prevalence rate of 8.5%, followed by epilepsy and diabetes, with prevalence rates of 0.

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Caregiving for children with type 1 diabetes and clinical outcomes in central India: The IDREAM study

Cited by 14 publications

References 17 publications

“How am I gonna cope?”: Caregivers of adolescents with diabetes in Jamaica

“How am I gonna cope?”: Caregivers of adolescents with diabetes in Jamaica

Type 1 diabetes management and outcomes: A multicenter study in Thailand

School nurses' perceptions regarding barriers and facilitators in caring for children with chronic diseases in school settings: A mixed studies review

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