Caregiving for Dementia in Asian Communities: Implications for Practice

Wang, Donna S.

doi:10.1080/15313204.2012.700496

Cited by 21 publications

(24 citation statements)

References 34 publications

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“…Although limited knowledge of dementia in the general Korean American population has been documented (Jang et al, 2010;, our study shows that even Korean Americans who are actually caring for someone with dementia continue to have little knowledge about the disease beyond the symptoms they have observed. As suggested in previous research with a general Korean American sample as well as other Asian Americans (Laditka et al, 2013;Wang, 2012), Korean American caregivers in our study continued to regard dementia as part of the normal aging process and believed that people with certain personalities were susceptible to the disease. This finding illustrates the pattern observed by Jones and colleagues (2006) that Asian Americans seem to be aware of dementia, but that their beliefs about dementia are often affected by their "folk wisdom" and "culturally acceptable partial truths as scientific information" (p. 11).…”

Section: Discussionsupporting

confidence: 63%

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The Experience of Family Caregivers of Older Korean Americans With Dementia Symptoms

Casado

Lee

Hong

et al. 2015

Clinical Gerontologist

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Despite the rapid growth of the older ethnic minority population, knowledge about dementia care for this population is limited. This study examined the experience of dementia caregiving among Korean Americans. We conducted four focus groups with 23 family caregivers of older Korean Americans with dementia symptoms and identified eight themes: (a) struggling and overwhelmed; (b) keeping the cultural roles and responsibility; (c) doing it by themselves; (d) family as a source of stress; (e) limited knowledge and misconceptions; (f) learning as they go; (g) undiagnosed dementia and misunderstandings about medical care; and (h) barriers to use of services and need for culturally responsive services. The findings underscore that Korean Americans need dementia caregiver programs that are linguistically and culturally responsive.

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Section: Discussionsupporting

confidence: 63%

“…In general, we found that family responsibility rooted in the Asian cultural tradition of caring for the family, or familism, Wang, 2012) sustained participants' motivation and commitment for caregiving. Korean American caregivers with a strong sense of family responsibility seemed to accept the caregiving role as given.…”

Section: Discussionmentioning

confidence: 93%

The Experience of Family Caregivers of Older Korean Americans With Dementia Symptoms

Casado

Lee

Hong

et al. 2015

Clinical Gerontologist

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“…12 Due to stigma and loss of face, Chinese caregivers tend to only seek help, particularly emotional support, from close family members instead of professional assistance. 15,17,18 For Chinese immigrant families, acculturation, immigration factors and generation differences can create further caregiving challenges 19,20 ; linguistic and cultural barriers to service can limit the support that Chinese caregivers seek from formal systems and their communities. 19,21 Considering the ethnic differences in caregiving and culture-specific challenges, caregiving interventions require tailoring to meet caregivers' needs in their sociocultural contexts.…”

Section: Introductionmentioning

confidence: 99%

An international systematic review of dementia caregiving interventions for Chinese families

Saw

2020

Int J Geriat Psychiatry

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Older Asians and Chinese are among the least studied populations in the dementia caregiving literature. This review seeks to critically synthesize the literature on intervention characteristics, components and tailoring strategies for dementia family caregivers in Chinese communities globally. Methods: Five electronic databases (PsychINFO, PubMed, CINAHL, ScienceDirect and Google Scholar) were searched for articles published between 1980 and July 2018. The protocol of this review was registered with PROSPERO (CRD42019132800). Results: Twenty-nine unique interventions across 39 papers met inclusion criteria. Results from descriptive and thematic syntheses revealed that most interventions were psychoeducational, CBT-based, multicomponent, structured, and less than a year in duration. Disease education, management of behavioral and psychological symptoms of dementia, stress coping techniques, and referral to community resources were frequently included in interventions. Community-, culture-and language-focused strategies were used to tailor interventions. The most common tailoring strategies were: (a) using community networks and media for outreach and recruitment; (b) making translations and language adaptations to the intervention materials; and (c) focusing on trust and therapeutic alliance. Most interventions produced desired outcomes, particularly reducing caregiver burden and increasing self-efficacy. Conclusions: To our knowledge, this is the first review to date that systematically synthesized the characteristics and tailoring of dementia caregiving interventions for Chinese families globally. Current findings suggest that most interventions are effective, although many only superficially address Chinese culture. Future research should incorporate Chinese values and cross-cultural challenges into caregiving interventions for deep-level adaptations that could potentially be more effective to engage and support Chinese caregivers.

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“…There are estimated to be 670,000 family members and friends acting as primary carers [11]. Dementia can be debilitating not only for the older person with dementia, but for family members as well [12]. However, there is little discussion about the British South Asian community and dementia in the literature, and there are no exact figures regarding the prevalence of dementia in Black, Asian, and Minority Ethnic (BAME) groups in the UK [13,14].…”

Section: Introductionmentioning

confidence: 99%

Dementia Knowledge and Attitudes of the General Public among the Bangladeshi Community in England: A Focus Group Study

Hossain

Stores

Hakak

et al. 2019

Dement Geriatr Cogn Disord

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Background: Increasing life expectancy worldwide means more people will develop dementia. Despite the rapid growth in older Bangladeshi immigrants living in the UK, there is little evidence of how community members understand and view the process of ageing and dementia. However, Bangladeshis have a higher risk of developing type 2 diabetes and heart disease, both of which are important indicators of dementia development in old age. This study aimed to explore and analyse the perception and knowledge of, and attitudes towards, ageing and dementia among the Bangladeshi community. Methods: A qualitative research approach guided two separate focus group discussions held with Bangladeshi adults in Portsmouth, UK. A topic guide was used alongside two vignettes depicting either early-or latestage dementia to stimulate discussion. The data were recorded, transcribed, and analysed thematically using NVivo qualitative software. Results: Three main themes emerged: (1) knowledge and perceptions of dementia; (2) perceived causes of dementia; and (3) perceptions of stigma about dementia. Lack of knowledge and understanding of dementia was evident, but the stigma about dementia was non-existent. This study fills a research gap by providing qualitative research examining knowledge about and attitudes towards dementia among a Bangladeshi community in England. Conclusion: Future research must highlight the importance of raising dementia awareness among, and providing information about dementia caregiving to, Bangladeshi community members, as well as providing religiously sensitive healthcare services.of dementia among Bangladeshi community members, has been highlighted. The results will provide insight for service providers, policy makers, and researchers into how dementia is perceived in the Bangladeshi community and why it has remained unreported and labelled within the broader BAME communities. It is also hoped that this study has explored the concept of dementia in depth and examined the impact of stigma on individuals, caregivers, and communities.

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Caregiving for Dementia in Asian Communities: Implications for Practice

Cited by 21 publications

References 34 publications

The Experience of Family Caregivers of Older Korean Americans With Dementia Symptoms

The Experience of Family Caregivers of Older Korean Americans With Dementia Symptoms

An international systematic review of dementia caregiving interventions for Chinese families

Dementia Knowledge and Attitudes of the General Public among the Bangladeshi Community in England: A Focus Group Study

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