2021
DOI: 10.3389/fneur.2021.665694
|View full text |Cite
|
Sign up to set email alerts
|

Caregiving for Patients With Frontotemporal Dementia in Latin America

Abstract: Latin America is a vast heterogeneous territory where chronic diseases such as mild cognitive impairment or dementia are becoming higher. Frontotemporal dementia (FTD) prevalence in this region is estimated to be around 12–18 cases per thousand persons. However, this prevalence is underestimated given the lack of awareness of FTD even among healthcare professionals. Family members are responsible for the care of patients with FTD at home. These caregivers deliver care despite being ill-equipped and living in t… Show more

Help me understand this report

Search citation statements

Order By: Relevance

Paper Sections

Select...
2
1
1

Citation Types

0
7
0

Year Published

2022
2022
2023
2023

Publication Types

Select...
3

Relationship

0
3

Authors

Journals

citations
Cited by 3 publications
(7 citation statements)
references
References 70 publications
0
7
0
Order By: Relevance
“…Nevertheless, there are no clear guidelines on which patients would benefit from a multidimensional assessment. Considering the barriers to access specialist bvFTD evaluation centers ( 42 , 267 ), the diagnosis process of bvFTD could be improved with the availability of evidence-based guidelines to help identify patients that could benefit from a multidimensional assessment.…”
Section: Discussionmentioning
confidence: 99%
See 1 more Smart Citation
“…Nevertheless, there are no clear guidelines on which patients would benefit from a multidimensional assessment. Considering the barriers to access specialist bvFTD evaluation centers ( 42 , 267 ), the diagnosis process of bvFTD could be improved with the availability of evidence-based guidelines to help identify patients that could benefit from a multidimensional assessment.…”
Section: Discussionmentioning
confidence: 99%
“…Patients with FTD and its spectrum face difficulties in access to diagnosis, thereby increasing the burden on patients and their caregivers ( 267 ). Therefore, promoting a consensual and multidimensional assessment of FTD and its spectrum through an LAC consortium with validated and reliable tools for the main clinical dimension of FTD, i.e., cognition, functional, behavioral, and motor, could contribute toward addressing diagnosis barriers.…”
Section: Discussionmentioning
confidence: 99%
“…Furthermore, caregivers may perceive these behaviors as deliberate, not recognizing them as symptoms of FTD, which delays evaluation, diagnosis, and treatment—with adverse impacts on the levels of caregiver burden. For PPA specifically, the loss of communications pertaining to traditions and heritage can contribute to frustration and guilt 9 …”
Section: Care Needsmentioning
confidence: 99%
“…It is also to be noted that the FTD clinical research literature has relied heavily on data from individuals of European descent living in North America, Western Europe, and Australia—owing to advantages in social and medical capital, expertise, expendable resources, and public health priorities 6 . Furthermore, in most low‐ and middle‐income countries (LMICs), poverty, low literacy, cultural norms, and local practices are barriers to neurodegenerative disease research 7–9 …”
Section: Introductionmentioning
confidence: 99%
“…Advancing age has been linked to cognitive decline in adults aged over 60 (Salthouse, 2009), and the prevalence of cognitive deteriorative diseases, such as mild cognitive impairment (MCI) and Alzheimer's disease (AD), is increasing in this age group. These cognitive impairments affect the quality of life and social functioning of older adults, and they also place a heavy financial burden on families and health‐care systems (Piña‐Escudero et al, 2021).…”
mentioning
confidence: 99%