Caregiving for relatives with Alzheimer's disease: feelings of Chinese-Canadian women

Ho, Bertha; Friedland, Judith; Rappolt, Susan; Noh, Samuel

doi:10.1016/s0890-4065(03)00028-8

Cited by 69 publications

(85 citation statements)

References 28 publications

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“…Support programs for carers should also include strategies to manage competing values in decision-making and dealing with family disagreements in the context of dementia. As other researchers have suggested, it is important that health service providers be sensitive to different family structures and be prepared for conflict when several or many family members are involved in decisions (Gallagher-Thompson 2006) -as people may hold different cultural values (Ho et al 2003) which will impact on decisions made about care-giving. It is important that the multiple demands facing CALD carers be given due consideration by all clinicians and educators involved with families in dementia care.…”

Section: Discussionmentioning

confidence: 99%

Culturally and Linguistically Diverse (CALD) Families Dealing with Dementia: An Examination of the Experiences and Perceptions of Multicultural Community Link Workers

Boughtwood¹,

Shanley

Adams

et al. 2011

J Cross Cult Gerontol

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Dementia is a chronic illness involving increasing levels of care, often provided by family members, particularly in culturally and linguistically diverse (CALD) communities. Multicultural community link workers are often the primary service providers assisting families to access health and welfare services and as such have extensive experience of, and possess in-depth knowledge about, CALD family care-giving for dementia. While research has been undertaken on dementia in CALD communities, this research has not focused on the experiences and perceptions of these multicultural workers with regards to CALD family care-giving. In response to this gap in the research, this paper presents the results of an empirical investigation of multicultural workers' perspectives with regard to the cultural traditions informing CALD family care-giving, CALD families' understandings of the term 'carer' and family arrangements regarding care. Due to their close relationship and knowledge of families, multicultural workers can offer an important perspective that is invaluable in informing the provision of carer education and support within CALD communities.

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Section: Discussionmentioning

confidence: 99%

Culturally and Linguistically Diverse (CALD) Families Dealing with Dementia: An Examination of the Experiences and Perceptions of Multicultural Community Link Workers

Boughtwood¹,

Shanley

Adams

et al. 2011

J Cross Cult Gerontol

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“…The data from caregivers who participated in the FG and SSI-, who rejected the idea of their relatives living in long term care institutions, had a profound sense of family participation (which included encouraging the patients to participate in self-care and occupational activities) (Vallone et al, 2002;Ho et al, 2003).…”

Section: Discussionmentioning

confidence: 99%

Understanding care of people with dementia in Spain: Cohabitation arrangements, rotation and rejection to long term care institution

Rivera

Bermejo

Franco

et al. 2008

Int J Geriat Psychiatry

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“…For Asian caregivers, caregiving is an expected stage in their lives (Ho et al 2003) and viewed as a cultural, lifelong reciprocal obligation for aging parents (Jones et al 2002;Tang 2011). Thus, scholars (Jones et al 2002;Kim and Theis 2000;Lai 2007Lai , 2010 identified the association between caregiving role and caregivers' overall positive health outcomes when caregivers can meet their reciprocal obligations.…”

Section: Caregiving Attitudes Of Asian American Caregivers Of Older Amentioning

confidence: 99%

“…Thus, scholars (Jones et al 2002;Kim and Theis 2000;Lai 2007Lai , 2010 identified the association between caregiving role and caregivers' overall positive health outcomes when caregivers can meet their reciprocal obligations. Similar to Hispanic caregivers, Asian caregivers tend to use more informal than formal support within their family members (Ho et al 2003;Jones et al 2002) because of their cultural beliefs and/or taboos to use outside formal services (Han et al 2008;Jones et al 2002;Kong et al 2010;Lai 2007Lai , 2010Zhan 2004). This pattern is strongly associated with caregivers and care recipients' language barriers (Han et al 2008;Kong et al 2010;Zhan 2004) and a lack of linguistically appropriate, culturally sensitive formal services (Han et al 2008;Tang 2011;Zhan 2004).…”

Section: Caregiving Attitudes Of Asian American Caregivers Of Older Amentioning

confidence: 99%

Caregiving Practice Patterns of Asian, Hispanic, and Non-Hispanic White American Family Caregivers of Older Adults Across Generations

Miyawaki

2016

J Cross Cult Gerontol

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This study is a cross-sectional investigation of caregiving practice patterns among Asian, Hispanic and non-Hispanic White American family caregivers of older adults across three immigrant generations. The 2009 California Health Interview Survey (CHIS) dataset was used, and 591 Asian, 989 Hispanic and 6537 non-Hispanic White American caregivers of older adults were selected. First, descriptive analyses of caregivers' characteristics, caregiving situations and practice patterns were examined by racial/ethnic groups and immigrant generations. Practice patterns measured were respite care use, hours and length of caregiving. Three hypotheses on caregiving patterns based on assimilation theory were tested and analyzed using logistic regression and generalized linear models by racial/ethnic groups and generations. Caregiving patterns of non-Hispanic White caregivers supported all three hypotheses regarding respite care use, caregiving hours and caregiving duration, showing less caregiving involvement in later generations. However, Asian and Hispanic counterparts showed mixed results. Third generation Asian and Hispanic caregivers used respite care the least and spent the most caregiving hours per week and had the longest caregiving duration compared to earlier generations. These caregiving patterns revealed underlying cultural values related to filial responsibility, even among later generations of caregivers of color. Findings suggest the importance of considering the cultural values of each racial/ethnic group regardless of generation when working with racially and ethnically diverse populations of family caregivers of older adults.

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Caregiving for relatives with Alzheimer's disease: feelings of Chinese-Canadian women

Cited by 69 publications

References 28 publications

Culturally and Linguistically Diverse (CALD) Families Dealing with Dementia: An Examination of the Experiences and Perceptions of Multicultural Community Link Workers

Culturally and Linguistically Diverse (CALD) Families Dealing with Dementia: An Examination of the Experiences and Perceptions of Multicultural Community Link Workers

Understanding care of people with dementia in Spain: Cohabitation arrangements, rotation and rejection to long term care institution

Caregiving Practice Patterns of Asian, Hispanic, and Non-Hispanic White American Family Caregivers of Older Adults Across Generations

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