2021
DOI: 10.1186/s12877-021-02354-z
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“Caregiving is like on the job training but nobody has the manual”: Canadian caregivers’ perceptions of their roles within the healthcare system

Abstract: Background Stepping into the role of an unpaid caregiver to offer help is often considered a natural expectation of family members or friends. In Canada, such contributions are substantial in terms of healthcare provision but this comes at a considerable cost to the caregivers in both health and economic terms. Methods In this study, we conducted a secondary analysis of a collection of qualitative interviews with 39 caregivers of people with chroni… Show more

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Cited by 26 publications
(21 citation statements)
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“…Indigenous FCGs, like all Canadian FCGs, are essential to support the social connections, dignity, and wellbeing of the people they care for [ 7 , 24 , 25 , 26 , 27 ]. In traditional Cree culture, family caregiving is valued for the purpose that the role gives to the caregivers’ lives and for the value of caregiving to the individual and the community as a whole.…”
Section: Discussionmentioning
confidence: 99%
“…Indigenous FCGs, like all Canadian FCGs, are essential to support the social connections, dignity, and wellbeing of the people they care for [ 7 , 24 , 25 , 26 , 27 ]. In traditional Cree culture, family caregiving is valued for the purpose that the role gives to the caregivers’ lives and for the value of caregiving to the individual and the community as a whole.…”
Section: Discussionmentioning
confidence: 99%
“…8,9 Further, the presence of a caregiver has been linked to improved outcomes for cancer survivors, including their physical, functional, and emotional wellbeing. 10 Given caregivers receive little to no preparation for this role 11,12 and few interventions include support for cancer caregivers, 13,14 it is unsurprising that caregivers experience elevated anxiety and depression and significant unmet needs for information and support. [15][16][17] In patientcaregiver dyads, the emotional distress experienced by the caregiver has been shown to be as high as, or even higher than, the patient's level of distress.…”
Section: Introductionmentioning
confidence: 99%
“…The broader societal implications of caregiving are also significant, as most family caregivers report negative impacts on employment, income, and life opportunities 5 . Providing ongoing care for persons with chronic progressive conditions may be particularly stressful, and caregivers often struggle to cope with their caregiving responsibilities 6 . Given the crucial role of caregivers in bridging the gap between what formal health and social care systems can provide and the amount of care required by people with chronic progressive conditions, 7 supporting caregivers in maintaining their health and well-being is critical.…”
Section: Introductionmentioning
confidence: 99%