Caregiving‐related needs of family caregivers of older Singaporeans

Ajay, Shweta; Østbye, Truls; Malhotra, Rahul

doi:10.1111/ajag.12370

Cited by 6 publications

(4 citation statements)

References 19 publications

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“…Our findings are in congruence with current literature which suggests that much like healthcare providers, family caregivers tend to prioritize the care of patients, often causing the latter to neglect their own well-being [ 9 , 10 , 35 ]. This could possibly explain the ward nurses’ initial resistance towards adopting the programme as part of their daily workflow, and the caregivers’ reluctance towards accepting formal support.…”

Section: Discussionsupporting

confidence: 90%

“…This includes increased emergency room attendance and prolonged hospital stay of the care-recipient [ 8 ]. Furthermore, caregivers tend to devote most of their time to caregiving and learning to better manage their care-recipient’s condition, instead of their own well-being and self-care [ 9 ]. This may eventually result in caregivers developing adverse health conditions such as chronic diseases and depression [ 10 ].…”

Section: Introductionmentioning

confidence: 99%

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Applying the RE-AIM framework to evaluate a holistic caregiver-centric hospital-to-home programme: a feasibility study on Carer Matters

Chan

et al. 2022

BMC Health Serv Res

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Background Prolonged caregiving of an older adult can cause family caregivers to be overwhelmed, potentially affecting the well-being of both the caregivers and their care-recipients. Carer Matters is a holistic hospital-to-home programme, centred on caregivers’ needs as their care-recipients transit from hospital to home. The programme was piloted to support caregivers through caregivers needs assessment, tailored resources, tele-support, training courses, and community support network. This study aimed to examine the feasibility of Carer Matters in a tertiary hospital in Singapore. Methods This feasibility study was conducted on the pilot implementation from January to December 2021, during the Covid-19 pandemic. It adopted the Reach, Effectiveness, Adoption, Implementation, and Maintenance (RE-AIM) framework. The study highlighted quantitative data collected from key process indicators, such as number of caregivers screened, assessed on their needs and provided with assistance. Additionally, qualitative data was collected from in-depth interviews with 51 stakeholders involved in the implementation to examine their perspectives and experiences. These included family caregivers, clinician caregiver support nurses, hospital leaders and community partners. Results During the pilot, 550 caregivers were enrolled. All caregivers received educational resources when they completed the needs assessment, while 69 of them who reported high burden were given tele-support and 252 attended our caregiver training courses. Despite initial recruitment challenges and obstacles to adoption, stakeholders interviewed found Carer Matters to be effective in providing caregivers with emotional support, knowledge and skills that improved their caregiving abilities, and reduced their sense of isolation and caregiving stress. Among caregivers, the training courses were effective with majority of caregivers agreeing that the courses addressed their needs (99%) and improved their knowledge of the relevant disease conditions (97%). Programme maintenance considered among stakeholders included strategies such as multipronged approach in recruiting caregivers and inviting caregiver advocates to share their experiences. Conclusion This feasibility study highlights that Carer Matters is a valuable component to the ecosystem of support for family caregivers and their care recipients. Carer Matters extends the current patient-centric care model to a more holistic post-discharge continuity of care for both caregivers and their care-recipients, improving and maintaining their overall well-being to better allow transition from hospital-to home. Trial registration Feasibility Study of Project Carer Matters for Family Caregivers of Persons with Dementia (NCT number: NCT05205135).

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Section: Discussionsupporting

confidence: 90%

Section: Introductionmentioning

confidence: 99%

Applying the RE-AIM framework to evaluate a holistic caregiver-centric hospital-to-home programme: a feasibility study on Carer Matters

Chan

et al. 2022

BMC Health Serv Res

View full text Add to dashboard Cite

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“…The strength of the study is that the study tool utilized in this study (21-item modified-Caregiver Reaction Assessment [m-CRA]) is widely used in the literature [ 1 ] and has been validated in three of the official languages in our local population [ 2 ].…”

Section: Discussionmentioning

confidence: 99%

“…Family caregiving, linked with both negative and positive experiences for the caregiver, is an important aspect of the multidisciplinary care for older persons [ 1 – 4 ]. Older blunt trauma patients often present with a unique combination of emergency conditions on a background of physical frailty and cognitive impairment, and are susceptible to higher adjusted morbidity, mortality and readmission [ 5 – 8 ].…”

Section: Introductionmentioning

confidence: 99%

Negative and positive experiences of caregiving among family caregivers of older blunt trauma patients

Wong

Tan²,

Loo³

et al. 2022

PLoS ONE

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Objectives Family caregivers play a fundamental role in the care of the older blunt trauma patient. We aim to identify risk factors for negative and positive experiences of caregiving among family caregivers. Design Prospective, nationwide, multi-center cohort study. Setting and participants 110 family caregivers of Singaporeans aged≥55 admitted for unintentional blunt trauma with an Injury Severity Score (ISS) or New Injury Severity Score (NISS)≥10 were assessed for caregiving-related negative (disturbed schedule and poor health, lack of family support, lack of finances) and positive (esteem) experiences using the modified-Caregiver Reaction Assessment (m-CRA) three months post-injury. Methods The association between caregiver and patient factors, and the four m-CRA domains were evaluated via linear regression. Results Caregivers of retired patients and caregivers of functionally dependent patients (post-injury Barthel score <80) reported a worse experience in terms of disturbed schedule and poor health (β-coefficient 0.42 [95% Confidence Interval 0.10, 0.75], p = .01; 0.77 [0.33, 1.21], p = .001), while male caregivers and caregivers who had more people in the household reported a better experience (-0.39 [-0.73, -0.06], p = .02; -0.16 [-0.25, -0.07], p = .001). Caregivers of male patients, retired patients, and patients living in lower socioeconomic housing were more likely to experience lack of family support (0.28, [0.03, -0.53], p = .03; 0.26, [0.01, 0.52], p = .05; 0.34, [0.05, -0.66], p = .02). In the context of lack of finances, caregivers of male patients and caregivers of functionally dependent patients reported higher financial strain (0.74 [0.31, 1.17], p = .001; 0.84 [0.26, 1.43], p = .01). Finally, caregivers of male patients reported higher caregiver esteem (0.36 [0.15, 0.57], p = .001). Conclusions and implications Negative and positive experiences of caregiving among caregivers of older blunt trauma patients are associated with pre-injury disability and certain patient and caregiver demographics. These factors should be considered when planning the post-discharge support of older blunt trauma patients.

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The needs of older people receiving home care: a scoping review

et al. 2020

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Caregiving‐related needs of family caregivers of older Singaporeans

Abstract: Caregivers should not neglect themselves when engaging in care provision. Families and service providers should explore whether reported lack of needs reflects limited awareness and/or under-reporting.

Cited by 6 publications

References 19 publications

Applying the RE-AIM framework to evaluate a holistic caregiver-centric hospital-to-home programme: a feasibility study on Carer Matters

Applying the RE-AIM framework to evaluate a holistic caregiver-centric hospital-to-home programme: a feasibility study on Carer Matters

Negative and positive experiences of caregiving among family caregivers of older blunt trauma patients

The needs of older people receiving home care: a scoping review

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