Carers' and Users' Expectations of Services – User version (CUES–U): A new instrument to measure the experience of users of mental health services

Lelliott, Paul; Beevor, Anne; Hogman, Gary; Hyslop, Jon; Lathlean, Judith; Ward, Martin

doi:10.1192/bjp.179.1.67

Cited by 64 publications

(42 citation statements)

References 5 publications

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“…This finding, however, may also be due to the lack of a clear-cut definition of the need concept itself, or because patients and carers have different value judgements about the support patients require [34]. For example, patients place less emphasis on reducing symptoms and more emphasis on daytime activities, accommodation and social relationships [15] than family members typically do. Moreover, whereas relatives want more intensive support for patients, the latter tend to prefer a support style allowing them to maintain their independence [16].…”

Section: Comparing Staff and Patient Perceptions Of Needmentioning

confidence: 53%

“…Whilst most of the studies have compared patient and staff perception of needs, only two studies have done so with patients and their caregivers [12,13]. Previous research suggests that patients treated in community-based settings rate fewer needs than their caregivers [14] and that they also emphasise different needs [12,15,16]. Given the currently greater involvement of carers in mental health care, a better understanding of these differences has important service planning implications.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Multiple perspectives on mental health outcome: needs for care and service satisfaction assessed by staff, patients and family members

Lasalvia

Boggian²,

Bonetto

et al. 2011

Soc Psychiatry Psychiatr Epidemiol

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Section: Comparing Staff and Patient Perceptions Of Needmentioning

confidence: 53%

Section: Introductionmentioning

confidence: 99%

Multiple perspectives on mental health outcome: needs for care and service satisfaction assessed by staff, patients and family members

Lasalvia

Boggian²,

Bonetto

et al. 2011

Soc Psychiatry Psychiatr Epidemiol

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“…First, qualitative methodology could be used to identify patients' areas of concern, and then these specific areas of concern could be monitored using quantitative patient satisfaction measures. An example of a survey developed that assesses concerns identified by patients regarding psychiatric community care is the Carers' and Users' Expectations of Services -User version (CUES-U; Lelliott et al, 2001). Second, if patient satisfaction surveys are used, existing psychometrically robust surveys should be preferred (Ruggeri, 1994), and interpretation of the results could be aided by qualitative interviews.…”

Section: Discussionmentioning

confidence: 99%

Examining the concept of patient satisfaction in patients with a diagnosis of schizophrenia: a qualitative study

Duggins¹,

Shaw

2006

Psychiatr. bull.

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Examining the concept of patient satisfaction in patients with a diagnosis of schizophrenia: a qualitative study AIMS AND METHODTen people with a diagnosis of schizophrenia were interviewed. The interviews were analysed qualitatively with the aim of examining the concept of patient satisfaction in the context of a recent in-patient admission. RESULTSThe analysis identified two themes that influenced the expression of patient satisfaction: external factors and internal factors. The theme of external factors contained four categories: fear of violence, communication with staff, lack of autonomy and ward routines. The theme of internal factors comprised participants' conceptions and expectations. CLINICAL IMPLICATIONSThis small study suggests the complexity of the concept of patient satisfaction should be respected in assessing experiences of people with a diagnosis of schizophrenia.

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“…Each of the questions concerning quality of life, treatment satisfaction and needs for care to be assessed in the MECCA study are brief, simple and relevant to users' concerns (cf. Shepherd et al, 1995;Angermeyer et al, 2001;Lelliot et al, 2001).…”

Section: The Mecca Studymentioning

confidence: 97%

Focussing on quality of life in treatment

Priebe

2002

International Review of Psychiatry

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There are widespread calls for the implementation of outcomes management in mental health services, which involves routinely assessing individual patient outcomes to analyse the effectiveness of treatment. The emphasis in outcomes management is on aggregating outcome data on the level of groups and services and feeding the results back to commissioners, clinicians and managers to inform their decisions on service development and funding. The most important outcome criterion in mental health service research is quality of life, which is also the 'centrepiece' of outcomes management. In several countries, there are plans to implement the main component of outcomes management, i.e. routine outcome assessment, requiring clinicians to routinely assess patient outcome. However, valid data will only be collected if it is worthwhile for clinicians and patients at the level on which it is collected, i.e. the individual patient level. Concurrent assessment and feedback of outcome data to the clinician and patient so that the information can be used to inform treatment activities might make it worthwhile. A European multi-centre randomized controlled trial is currently underway to test the effect of such an intervention in the treatment of psychotic illness. Keyworkers will systematically elicit patients' views on their quality of life, treatment satisfaction and needs for additional/different care over 1 year. It is hypothesized that the intervention will improve patient outcome by prompting explicit discussion about reasons for progress-and lack of progress-in treatment as a basis for further treatment decisions. If the intervention is effective, it is hypothesized that the effect will be mediated by more appropriate treatment decisions and/or a better therapeutic relationship. Focussing on the patient's perspective in the therapeutic interaction may also facilitate patient involvement in decision-making. Finally, outcomes management is still a technical term, which could benefit from further specification and development in order to exploit its potential for improving treatment processes in mental health care.

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Carers' and Users' Expectations of Services – User version (CUES–U): A new instrument to measure the experience of users of mental health services

Abstract: The development and testing of CUES-U suggest that it might be feasible to apply a self-rated measure of the expectations and experience of users of mental health services.

Cited by 64 publications

References 5 publications

Multiple perspectives on mental health outcome: needs for care and service satisfaction assessed by staff, patients and family members

Multiple perspectives on mental health outcome: needs for care and service satisfaction assessed by staff, patients and family members

Examining the concept of patient satisfaction in patients with a diagnosis of schizophrenia: a qualitative study

Focussing on quality of life in treatment

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