Carers’ experience of using assistive technology for dementia care at home: a qualitative study

Sriram, Vimal; Jenkinson, Crispin; Peters, Michele

doi:10.1136/bmjopen-2019-034460

Cited by 22 publications

(28 citation statements)

References 47 publications

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“…The findings in this review are also commensurate with four others from the last year, and the AT reviewed are similar [66][67][68][69][70]. AT interventions can be beneficial to quality of life, social interaction, reducing neuropsychiatric symptoms such as depression, anxiety, and agitation, but continued use of AT becomes problematic due to the progressive nature of dementia [69,70]. Both carers and PWD shared observations on aspects of AT such as ease of use, stability and flexibility of technology, and the importance of privacy and confidentiality [67,68].…”

Section: Summary Of Evidencesupporting

confidence: 88%

Evaluating the Facilitators, Barriers, and Medical Outcomes Commensurate with the Use of Assistive Technology to Support People with Dementia: A Systematic Review Literature

et al. 2020

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Background: Assistive technologies (AT) have been used to improve the daily living conditions of people living with dementia (PWD). Research supports the positive impact of the use of AT such as decreased burden on caregivers and behavioral support for people with dementia. Four reviews in the last six years have analyzed AT and PWD, but none have incorporated the dimension of medical outcomes. Objectives: The purpose of this review is to identify the facilitators, barriers, and medical outcomes commensurate with the use of AT with PWD. Method: This review queried The Cumulative Index of Nursing and Allied Health Literature (CINAHL), Web of Science, Science Direct, and PubMed databases for peer-reviewed publications in the last five years for facilitators, barriers, and medical outcomes commensurate with the use of AT with PWD. The study is reported and conducted in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analysis (PRISMA) and the Kruse Protocol for conducting a systematic review. Results: 48 studies were analyzed. Fourteen types of AT, 17 facilitators, 17 barriers, and 16 medical outcomes were identified in the literature. The two most frequently mentioned ATs were cognitive stimulators (9/48, 19%) and social robots (5/48, 10%). The two most frequently mentioned facilitators were caregivers want AT (8/68, 12%) and enables increased independence (7/68, 10%). The top two barriers were cost (8/75, 11%) and PWD reject AT (8/75, 11%). The top medical outcomes were improved cognitive abilities (6/69, 9%), increased activities of daily living (ADLs), and increased autonomy (each at 5/69, 7%): Zero negative outcomes were reported. Conclusion: The systematic review revealed the positive relations that occur when PWD and their caregivers use AT. Although many reservations surrounding the use of AT exist, a majority of the literature shows a positive effect of its use. Research supports a strong support for AT by caregivers due to many positive medical outcomes, but also a reticence to adopt by PWD. If ATs for PWD are a way to reduce stress on caregivers, barriers of cost and complexity need to be addressed through health policy or grants.

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Section: Summary Of Evidencesupporting

confidence: 88%

Evaluating the Facilitators, Barriers, and Medical Outcomes Commensurate with the Use of Assistive Technology to Support People with Dementia: A Systematic Review Literature

et al. 2020

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“…To avoid this, focus of care for a person with dementia should be seen as a long-term condition, with an unpredictable progression. Health care providers, carers and persons with dementia would bene t from a centrally-funded access point to high-quality information on AT (this is currently only being provided by charities/third sector organisations) and establishing local loan stores for AT [15]. Interestingly ethical reasons are not highlighted as a prime reason for abandoning AT, this could be because carers feel the overriding reasons of safety and welfare of the person with dementia is more important [12,28].…”

Section: Discussionmentioning

confidence: 99%

“…The development of the questionnaire is described elsewhere [manuscript under consideration], brie y it involved developing items for the questionnaire based on a systematic review [9] and qualitative study [15]; designing and conducting cognitive interviews to test items of the questionnaire; iterative revision of questionnaire based on the cognitive interviews; and nal testing on volunteers of the patient and public advisory group. The questionnaire contains questions on types and uses of AT, support provided by the AT, impact of using AT and questions to collect socio-demographic information; with free-text spaces for respondents to qualify their answers if necessary.…”

Section: Questionnairementioning

confidence: 99%

Carers’ Experiences of Assistive Technology Use in Dementia Care: A Cross Sectional Survey

Sriram

Jenkinson

Peters

2020

Preprint

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BackgroundAssistive Technology (AT) supports persons with dementia and their carers (family, friends and neighbours), yet little is known about experiences and the impact of AT on carers. We report on an exploratory survey that examined the types, uses, costs and impact of AT on carers as well as their quality of life.MethodsA cross-sectional survey using the Carers Assistive Technology Experience Questionnaire collected data from carers in the UK, who used at least one AT in the previous year and provided more than 10 hours of care for a person with dementia, living at home. Carers completed the questionnaire online or on paper and information on AT, socio-demographic details, and Short-Form Health Survey (SF-12) data were collected. Descriptive and inferential statistics were used to report results and draw conclusions. ResultsData from 201 carers was analysed. Smartphones and tablet computers were the most frequently used AT. AT were used predominantly for safety, communication, and reminders. Carers usually make decisions on buying and continued use of AT. Multiple AT devices were used in the care of persons with dementia and number of AT used was associated with perceived satisfaction. Satisfaction with AT was not related to age, living arrangements and relationship of carers. From the SF-12, Mean Physical Component Score was 49.19 (95%CI- 47.75 to 50.63) and Mental Component Score was 45.37 (95%CI- 43.93 to 46.80). Women, carers in the 46-65 age group and carers who were not extremely satisfied with AT had lower MCS scores. Carers who lived with the person with dementia and older carers had lower PCS scores. ConclusionsCarers report that AT has a beneficial impact. Carers use multiple ATs, perceive AT to be satisfactory and recommend AT use to others. To support carers, we recommend establishment of centrally funded information sources and a loan store for AT. Further research on incremental addition of AT and changes to formal/paid care because of using AT should be undertaken. Practitioners, academics, manufactures and policy makers should consider the experiences of carers in research, development and use of AT to facilitate improved community living of people with dementia.

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“…The items of CATEQ were developed on the basis of results from a systematic review 3 18 and a qualitative study 4 and are intended to be administered as an electronic survey. The CATEQ explores themes that carers (family, friends and neighbours) described as relevant for use of AT for dementia care in the community.…”

Section: Methodsmentioning

confidence: 99%

Using rapid cycle tests of change to develop the Carers Assistive Technology Experience Questionnaire: a cognitive interview study in the UK

2021

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We describe the use of rapid cycle tests of change to pretest and develop a Carers Assistive Technology Experience Questionnaire for a survey of informal carers of persons with dementia. The Plan-Do-Study-Act (PDSA) cycle is a commonly used improvement process in healthcare settings. We used this method for conducting rapid cycle tests of change through cognitive interviews to pretest the questionnaire. The items for the questionnaire were developed based on an earlier systematic review and qualitative study. PDSA cycles were used incrementally with learning from each cycle used to inform subsequent changes to the questionnaire prior to testing on the next participant.DesignQualitative with use of cognitive interviews through rapid cycle tests of change.SettingUK.ResultsNine participants were recruited based on eligibility criteria and purposive sampling. Cognitive interviewing using think aloud and concurrent verbal probing was used to test the comprehension, recall, decision and response choice of participants to the questionnaire. Seven PDSA cycles involving the participants helped identify problems with the questionnaire items, instructions, layout and grouping of items. Participants used a laptop, smartphone and/or tablet computer for testing the electronic version of the questionnaire and one participant also tested the paper version. A cumulative process of presenting items in the questionnaire, anticipating problems with specific items and learning from the unanticipated responses from participants through rapid cycle tests of change allowed rich learning and reflection to progressively improve the questionnaire.ConclusionUsing rapid cycle tests of change in the pretesting questionnaire phase of research provided a structure for conducting cognitive interviews. Learning and reflections from the rapid testing and revisions made to the questionnaire helped improve the process of reaching the final version of the questionnaire, that the authors were confident would measure what was intended, rapidly and with less respondent burden.

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Carers’ experience of using assistive technology for dementia care at home: a qualitative study

Cited by 22 publications

References 47 publications

Evaluating the Facilitators, Barriers, and Medical Outcomes Commensurate with the Use of Assistive Technology to Support People with Dementia: A Systematic Review Literature

Evaluating the Facilitators, Barriers, and Medical Outcomes Commensurate with the Use of Assistive Technology to Support People with Dementia: A Systematic Review Literature

Carers’ Experiences of Assistive Technology Use in Dementia Care: A Cross Sectional Survey

Using rapid cycle tests of change to develop the Carers Assistive Technology Experience Questionnaire: a cognitive interview study in the UK

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