Carers’ experiences of the National Disability Insurance Scheme workforce: A qualitative study informing workforce development

Hurley, John; Hutchinson, Marie

doi:10.1002/ajs4.181

Cited by 8 publications

(17 citation statements)

References 16 publications

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“…Instead, Australia has seen an uptick in guardianship applications and financial management orders [ 60 ]. Additionally, carers of people with disabilities report that the NDIA/Local Area Coordinators (LAC) staff have inadequate levels of understanding of disability and do not have the requisite empathy and compassion that would ameliorate this inexperience [ 74 ].…”

Section: Resultsmentioning

confidence: 99%

“…Informal supports describe extensive difficulties negotiating with NDIA [ 34 ]. LACs and planners have been described as judgmental, dismissive, and possessing limited capabilities to work collaboratively with informal supports of NDIS participants [ 74 ]. As part of the NDIS process, carers are often excluded from planning meetings, resulting in unmet participant support needs.…”

Section: Resultsmentioning

confidence: 99%

“…There are few opportunities for professional development, and many feel they will not continue working in the disability sector. This, ultimately, will limit choice and control, further disempowering NDIS participants, particularly those in rural and remote areas [ 34 , 37 , 50 , 74 , 82 , 105 , 116 , 117 , 118 , 119 ].…”

Section: Resultsmentioning

confidence: 99%

“…NDIS providers report that the caps and lower remuneration from the NDIS have resulted in difficulties with recruiting and retaining qualified staff [ 74 , 92 , 117 ], particularly those with mental health training [ 34 , 37 ]. They advise that the needs of NDIS participants already exceed the system’s ability to supply the supports required, particularly in rural and remote areas [ 74 , 95 ]. In addition, thin market issues have not been alleviated by the new, inexperienced NDIS providers entering the sector [ 95 ].…”

Section: Resultsmentioning

confidence: 99%

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NDIS Participants with Psychosocial Disabilities and Life-Limiting Diagnoses: A Scoping Review

Boschen

Phelan

Lawn

2022

IJERPH

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This research aimed to map evidence about system supports and gaps for Australians with psychosocial disabilities and life-limiting diagnoses. A scoping review of available policy documents, academic, and grey literature was completed to discover key characteristics of this concept and provide context around the phenomenon. Our focus was on Australia’s National Disability Insurance Scheme (NDIS), a key reform providing support to the disability population nationally. No peer-reviewed or grey literature was retrieved on the phenomena. Therefore, three lines of enquiry were developed: experiences of NDIS participants living with psychosocial disabilities; the death, dying, and palliative care supports and experiences of NDIS participants of any disability type; and the experiences for people living with severe and persistent mental illness (SPMI) and life-limiting diagnoses. Five themes were identified: (1) the person; (2) advocacy; (3) informal supports; (4) formal supports; and (5) existing research. NDIS participants living with SPMI and their informal and formal support systems are still struggling to navigate the NDIS. While there are no specific publications about their end-of-life experiences, people with SPMI often experience poor end-of-life outcomes. Rigorous research into their death, dying, and palliative care experiences is needed to inform improved support to them, including their end-of-life care.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

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NDIS Participants with Psychosocial Disabilities and Life-Limiting Diagnoses: A Scoping Review

Boschen

Phelan

Lawn

2022

IJERPH

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“…Although the workforce has increased in size over the last 10 years, reports and evaluations of the NDIS implementation 20,21 and the disability services workforce [22][23][24] show that the workforce is struggling to meet community service demand in a changing policy environment. Literature reviews by Gilroy et al 12 and Trounson et al 21 reported that the disability services sector needs an Aboriginal and Torres Strait Islander designed and managed workforce strategy, which must include a cultural safety model underpinned by community-based rehabilitation principles.…”

Section: What Is Already Known On This Subjectmentioning

confidence: 99%

Disability workforce and the NDIS planning process in regional, rural and remote regions of Australia: Scoping review

Gilroy

Veli-Gold

Wright³

et al. 2023

Australian J Rural Health

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BackgroundThe Australian geographically rural and remote disability workforce has historically demonstrated difficulties to keep up with the demand for quality services and supports for people with disability. In 2013, the National Disability Insurance Scheme (NDIS) was launched to provide individualised disability support packages to meet people's needs. To receive funding, people with disability are required to develop a NDIS plan. That plan is then funded by the National Disability Insurance Agency (NDIA), the government agency responsible for managing the NDIS. Although the NDIS has been operating for almost 10 years, there is limited research into the planning experiences of the workforce in regional, rural and remote regions of Australia. This review aims to ascertain the level of scholarly investigation into workers' experiences of NDIS planning.MethodologyResearch publication databases were searched using a specific search string to identify publications that included reference to the workforce's experiences of the NDIS planning process in regional, rural and remote regions of Australia. The Mixed Methods Appraisal Tool (MMAT) was adopted to appraise the quality of the research publications. Research publications that focused on those working with Aboriginal and Torres Strait Islander people were also appraised using the Aboriginal and Torres Strait Islander Quality Appraisal Tool developed by the Centre for Excellence in Aboriginal Chronic Disease Knowledge Translation and Exchange. A thematic synthesis of the publications was undertaken to ascertain disability and health workforce experiences of the NDIS planning process.ResultsSeven papers met the selection criteria. Two papers were policy reviews and reported the improvements of the NDIS planning process since its inception. These studies reported four reoccurring themes: (1) cultural/socioeconomic and geographical factors; (2) administrative burden and bureaucracy; (3) values, culture and geography; and (4) burden on allied health workers.ConclusionThe NDIS planning process has developed and progressed since its rollout in 2013. There are limited research papers available that describe the workforce's experience of the planning process in regional, rural and remote regions. More research in this area is needed to identify the experiences of the disability workforce in relation to the NDIS planning process.

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Training and supervision of disability support workers: Perspectives of NDIS participants using unregistered providers

West,

Yates,

Dickinson

2024

Aust J Social Issues

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Training and supervision of disability support workers (DSWs) has, in most developed countries, been the primary means of supporting quality of service, adequate worker skill and prevention of violence, abuse, neglect and exploitation of both service users and DSWs. However, in Australia, there is no requirement for DSWs to obtain a minimum level qualification. This paper examines service user perception and decision making in relation to training and supervision of their DSWs. We report findings from semi‐structured interviews with 30 National Disability Insurance Scheme (NDIS) participants. These findings suggest that users of disability services do not universally prioritise formal DSW supervision and training. Many interviewees described that being able to train and supervise DSWs themselves achieved better support outcomes and reduced power differentials in receipt of services. We discuss the implications of these findings in the context of recent policy reviews and the need to refocus safeguarding schemes on providing people with disability with the tools they need to ensure the quality and safety of their services.

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Carers’ experiences of the National Disability Insurance Scheme workforce: A qualitative study informing workforce development

Abstract: The Australian National Disability Insurance Scheme (NDIS) requires a skilled workforce capable of assessing the diverse needs of service participants and providing tailored services accordingly. There is currently

Cited by 8 publications

References 16 publications

NDIS Participants with Psychosocial Disabilities and Life-Limiting Diagnoses: A Scoping Review

NDIS Participants with Psychosocial Disabilities and Life-Limiting Diagnoses: A Scoping Review

Disability workforce and the NDIS planning process in regional, rural and remote regions of Australia: Scoping review

Training and supervision of disability support workers: Perspectives of NDIS participants using unregistered providers

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