Caring about carers: only half the picture?

Lloyd, Liz

doi:10.1177/026101830002000106

Cited by 52 publications

(36 citation statements)

References 2 publications

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“…It is further assumed that the primary care-giver, whilst experiencing initial stresses during the period of transfer from community to institutional care, will, within a relatively short period, experience relief from the stresses of caring and will gradually become reintegrated into those everyday routines of daily living that have been placed on the 'back burner' during the 'caring episode'. Such assumptions reveal an attitude to caring that diminishes the relationship and its importance to both the informal carer and care recipient and fail to acknowledge the interdependence and mutuality of care (Lloyd 2000).…”

Section: Placing Residential Nursing Home Carementioning

confidence: 99%

Location or dis-location? Towards a conceptualization of people and place in the care-giving experience

Milligan

2003

Social & Cultural Geography

137

101

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Over the last two decades we have seen an increased interest in informal care within both political and academic communities in the UK. This has stemmed in large part from an increased emphasis on the home-space as the preferred site of care provision and a resultant increase in the complexity of the care-giving relationship. The explicitly spatial dimensions of this caring relationship, however, are vastly under-researched. This paper represents one attempt to redress the gap by examining the importance of place, and its conceptualization, in the care of frail older people. In doing so, the paper focuses, firstly, on the spatial manifestation of care at various scales, identifying some of the processes behind variations in the care-giving experience and, secondly, using the example of dementia care, it considers how Augé's concepts of anthropological place and non-space, when applied to domestic and institutional care settings, can facilitate a more nuanced understanding of the importance of people and place in the construction and delivery of care to frail older people.

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Section: Placing Residential Nursing Home Carementioning

confidence: 99%

Location or dis-location? Towards a conceptualization of people and place in the care-giving experience

Milligan

2003

Social & Cultural Geography

137

101

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“…In addition, taking 'the care for the carer approach', marginalises or excludes the person with dementia and neglects that 'the carer is only half the picture' (Lloyd, 2000). At times, 'the care for the carer approach' allows the carer to be seen 'as the expert' (Brown et al, 2001) and views them as 'senior partners'.…”

Section: Trevor Adamsmentioning

confidence: 99%

Developing an inclusive approach to dementia care

Adams¹

2003

Practice

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“…22 23 Questions remain, however, about the effectiveness of these measures, the adequacy of the resources available, and the implications of targeting heavily involved carers. 24 This paper summarises what is presently known about carer transitions in Britain, drawing on new evidence from a prospective, population based survey. It provides up to date estimates of transitions into and out of caring, compares rates of turnover between subgroups of carers, and investigates time trends in carer transitions.…”

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confidence: 99%

Transitions to informal care in Great Britain during the 1990s

Hirst

2002

Journal of Epidemiology &Amp; Community Health

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Objectives: To estimate annual changes and trends in the population of informal carers and to investigate transitions to caregiving by age, gender, locus of care, and level of involvement. Design: Longitudinal analysis of data from the British household panel survey, 1991 to 1998, an annual prospective survey of a nationally representative sample of more than 5000 private households in England, Scotland, and Wales. Subjects: Over 9000 adults over 16 years interviewed personally in successive waves of the survey, including around 1300 informal carers each year. Results: One third of co-resident carers and 40% of extra-resident carers start caregiving each year and similar proportions cease to provide care. Five year period rates are at least 75% higher than the one year prevalence estimates. Almost everyone is involved in caregiving at one time or another and over half are likely to provide 20 hours or more care per week at some point in their lives. Recent trends indicate that more adults are becoming heavily involved in providing longer episodes of care. Although the onset of caregiving peaks in late middle and early older age, above average incidences span three decades or more of adult life. Age variations in the start of caring relationships are driven by the changing demands for care within and between generations over the life course. There is no firm evidence that carers increase their involvement in caring activities over the first three years of a caring episode.Conclusions: The population of carers is constantly changing as some people stop providing care and others take on a caring role or vary their level of involvement. Policy measures responsive to the diversity of caring roles, and geared around key transitions, are likely to be most effective in supporting carers through changing circumstances. Recognition and support for carers who are heavily involved in caring activities from the outset should be a priority.T he market value, or replacement cost, of unpaid care provided by family members and friends to ill and disabled adults in the United States was estimated to be $196 billion in 1997. 1 The economic value of informal caregiving in Britain is reported to be around £34 billion per year, although the methodologies used to produce such estimates are contested. 1a 2 However, few would argue that state provision of care could ever replace the carers' role or that, without their contribution, community health and social care services could cope with the additional demands on their resources. On the contrary, supporting informal carers in their caring role is high on the public policy agendas of many developed countries.With mounting concern about funding the long term care needs of older people, a determined shift from institutional arrangements to community and home based provision, and uncertainty about the impact of demographic and social change on the demand for and supply of family care, government policies towards carers and the people they care for are evolving rapidly. 3 Central to policy ...

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Caring about carers: only half the picture?

Cited by 52 publications

References 2 publications

Location or dis-location? Towards a conceptualization of people and place in the care-giving experience

Location or dis-location? Towards a conceptualization of people and place in the care-giving experience

Developing an inclusive approach to dementia care

Transitions to informal care in Great Britain during the 1990s

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