“Caring for” and “Caring About”: Embedded Interdependence and Quality of Life

Manderson, Lenore; Warren, Narelle

doi:10.1007/978-94-007-3018-2_11

Cited by 15 publications

(14 citation statements)

References 41 publications

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“…This may have been coincidental, possibly as an artifact of their willingness to volunteer into the study. We took this as an opportunity to explore the gendered intersections of social exclusion and its chronicities (Manderson ; Manderson and Warren ).…”

Section: Methodsmentioning

confidence: 99%

“…Given this, the age of the women in our study with multiple disabling health problems, 35–65 years, is significant. Many women had not long finished their reproductive lives and still had school‐age children (5–18 years) for whom they were caring; others had husbands or parents (Manderson and Warren ). Although some women had not been in paid employment since the birth of their first child, their poor health subsequently prevented their workforce participation.…”

Section: Methodsmentioning

confidence: 99%

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“Just One Thing after Another”: Recursive Cascades and Chronic Conditions

Manderson

Warren

2016

Med Anthropol Q

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Chronic conditions and their resultant difficulties in daily living frequently occur with other health problems, sometimes due to interactions or complications at a biological level, or as a result of common pathogens or risk factors. On other occasions, they develop independently. Drawing on research conducted with Australian women that began in the mid-2000s and is still ongoing, we highlight how chronic structural factors shape the risk factors of "chronic" conditions, influencing health seeking, continuity of care, and health outcomes. Institutional, economic, and other circumstantial factors pertain and impact health trajectories as much in highly industrialized as in resource poor settings. In illustrating how poverty and social exclusion create the preconditions of multiple chronic health problems, and how chronic health problems increase such disadvantages for individuals and their households, we introduce the idea of "recursive cascades" to capture the often inevitable trajectory of increasing ill health and growing empoverishment.

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

“Just One Thing after Another”: Recursive Cascades and Chronic Conditions

Manderson

Warren

2016

Med Anthropol Q

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“…The independent/dependent dichotomy at the center of the burden concept is troubling, and relies on policy and biomedical perceptions of the work of carers, which focus on activities and function-what Manderson and Warren (2013) term "caring for." At a phenomenological level, carers find it difficult to distinguish this from their social experiences ("caring about"), which can only be understood within the context of roles which give rise to this care.…”

Section: Care and Burdenmentioning

confidence: 99%

“…While caregivers are often family members, sometimes neighbors and acquaintances also engage in such relationships (Brownlie and Spandler 2018). Caregivers adapt their understanding of their familial role-as "wife", "husband", "son", or other-to accommodate these activities of care; this shift is largely seen by carers as unproblematic, and instead is perceived as another part of caring about (Manderson and Warren 2013).…”

Section: Care and Burdenmentioning

confidence: 99%

Neurodegeneration and the Intersubjectivities of Care

Warren

Sakellariou

2019

Medical Anthropology

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Caring for a family member or friend with a serious health condition is a common feature of social life. Often, such care is framed as a burden, an unwelcome rupture in the fabric of everyday life. We draw on research conducted in Australia and the UK to examine care in the everyday lives of people living with and caring for neurodegenerative diseases and to trouble care as a burden. Participants in our studies mobilized practices of care to collaboratively produce a "good life". We argue that above all, care is a relational, enacted practice requiring examination in its local context.Caring for a family member or friend with a serious health condition is a common feature of social life, and particularly family life, globally (Seltzer and Heller 1997). Within highly industrialized settings, this is due, at least in part, to strong preferences by policy makers and funders, health providers, advocacy groups, and community members to move care away from institutionalized or residential (care facility) settings (Heaton 1999). Considerable efforts have been made to develop strategies to support people to remain in their homes for as long as possible, through subvention (grants) or pensions, caregiver support programs and advocacy, caregiver counselling services, and government-sponsored respite care. However, there is considerable variance between countries in how this is realized. In this article, we focus on research conducted in two settings-Australia and the UK-to examine the effects of these political shifts on the everyday lives of people living with and caring for age-related neurodegenerative diseases, and to consider how ideas of a good life are collaboratively produced and put into practice through acts of care. Our attention to two differentyet complementary-landscapes of care helps us bring in dialog the different ways people negotiate and assemble practices of care.Care is a relational, intersubjective activity that emerges in the spaces between people, and through practical activities that are performed by one person with or for another (Sakellariou 2016;Warren and Ayton 2018). It is idiosyncratic and takes diverse forms, from preparing medications-getting tablets out of a bottle and putting them beside a morning coffee cup, to doing activities (such as going to the pharmacy to collect medications, or doing grocery shopping or gardening), to accompanying someone to their weekly support group meeting, to toileting and bathing. Even within any one activity, caregivers and care recipients negotiate, adjust, devise and innovate, employ trial and error, and resist in order to develop strategies and practices, often with the purpose to avoid undesired outcomes and produce a good life, however defined, with a chronic condition. Through in-depth descriptions and analyses of what happens in specific instances, including those interactions when people negotiate care to effect some sort of change that can be evaluated as "good", we seek to problematize the notion of "burden" in the context of care and argue for a f...

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“…While home may have certain therapeutic qualities, and is usually the place where people with chronic conditions prefer to live (Manderson and Warren 2013), home is taken for granted as an a priori entity that naturally and unproblematically provides continuity and stability. This assumption neglects the fact that many people who have had a stroke face various struggles at home.…”

Section: Introductionmentioning

confidence: 99%

Orchestrating home

Karasaki¹,

Warren²,

Manderson³

2017

MAT

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The private space of the home is an important site of health care in most industrialised countries, and rehabilitation following intensive in-hospital treatment largely takes place in domestic settings. Home in this context is implicitly understood by individuals affected by illness (people with illness, family members, friends, carers), health care providers, and policy makers as an a priori entity that naturally provides continuity and stability. This takes for granted that family carers will maintain both therapeutic activities and the sense of 'being at home' -and all of the accompanying emotional dimensions -within the home environment. Drawing on ethnographic research with relatively young spousal carers in Victoria, Australia, we explore how the reconstruction of home as a site for post-stroke recovery changed the experiences and meanings given to the idea of home. Home as a therapeutic place depended on constant orchestrating work that reconfigured the physical, symbolic, and practical elements of home. This was not a straightforward or singular process, as tensions arose in trying to integrate the new, post-stroke therapeutic landscape and pre-stroke conceptualisations and lived realities of home life.

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“Caring for” and “Caring About”: Embedded Interdependence and Quality of Life

Cited by 15 publications

References 41 publications

“Just One Thing after Another”: Recursive Cascades and Chronic Conditions

“Just One Thing after Another”: Recursive Cascades and Chronic Conditions

Neurodegeneration and the Intersubjectivities of Care

Orchestrating home

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