Caring for older culturally and linguistically diverse patients with Cancer: Healthcare Providers' perceived barriers to communication

Sungur, Hande; Muijsenbergh, Maria van den; Weert, Julia C.M. van; Schouten, Barbara C.

doi:10.1016/j.jgo.2022.04.009

Cited by 9 publications

(4 citation statements)

References 38 publications

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“…Literacy deficits, compounded by being in a new environment, with an unfamiliar health care system can be quite daunting for immigrants. Older immigrants usually tend to depend on their children for interpretation when they visit the health care system (Sungur et al, 2022). However, attending primary health care with a family member may not always be possible.…”

Section: Discussionmentioning

confidence: 99%

Palliative and End-of-Life Care Access for Immigrants Living in High-income Countries: A Scoping Review

Phiri,

Muge-Sugutt,

Porock

2023

Gerontology and Geriatric Medicine

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This scoping review aimed to explore what is known about palliative and End-of-Life (EOL) care access by immigrants with culturally and linguistically diverse (CALD) background living in high-income Organization for Economic Co-operation and Development (OECD) countries. CaLD immigrants have low utilization of palliative care services with patients’ family members taking up the role of caring, leading to immigrants not fully benefiting from the specialized services that are offered to alleviate suffering and promote quality of life. While there is some research in this area mainly in Europe, it cannot be said about all high-income OECD countries. Achieving person-centered care in high-income countries, requires identifying and addressing barriers to care access, especially by immigrants with CaLD background. Five-stage methodological framework by Arksey and O’Malley was used to undertake the review. Immigrants in OECD countries experience challenges in accessing palliative and EOL care services. The review also identified limited literature on the subject and establishes need for more research on the subject.

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Section: Discussionmentioning

confidence: 99%

Palliative and End-of-Life Care Access for Immigrants Living in High-income Countries: A Scoping Review

Phiri,

Muge-Sugutt,

Porock

2023

Gerontology and Geriatric Medicine

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“…Cultural variations in attitudes regarding health care, and patients receiving treatment in their native countries, present serious challenges for health care providers. Additionally, language barriers can create hurdles for patients, as they may be subject to less information and less involved in the decision‐making process (Sungur et al, 2022). Additionally, family members of patients of Turkish origin often possess the same authority as older patients when deciding their course of treatment (Demirkapu et al, 2021), so healthcare providers must take this into consideration.…”

Section: Discussionmentioning

confidence: 99%

“…There is a bidirectional relationship between language barriers and communication barriers for older migrant patients. Providing insufficient information and excluding older patients from informed decision‐making could lead to a lack of participation in healthcare, reduced self‐management of their own health, feelings of prejudice and ultimately mistrust in healthcare providers or the healthcare system (Sungur et al, 2022). Lastly, our study showed that when hospitalized patients were cared for well and followed up effectively after discharge they valued their healthcare experience.…”

Section: Discussionmentioning

confidence: 99%

‘Hearing silences’: Exploring culturally safe transitional care: A qualitative study among Turkish‐speaking migrant frail older adults

Dolu,

Hayter,

Serrant

et al. 2023

Journal of Advanced Nursing

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AimsThis study aimed to investigate the experiences and transitional care needs of Turkish frail older adults living in the UK and determine how this information can be utilized to improve the provision of culturally sensitive care during the transitional period.DesignQualitative descriptive research with semi‐structured individual interviews.Methods“The ‘Silences’ Framework guided the research design, from conceptualizing the research question to structuring the report of final outputs. For this study, semi‐structured, in‐depth interviews were conducted with sixteen older adults living with frailty and five family caregivers between January and May of 2023 in the United Kingdom.ResultsMajor themes that were identified included: (i) information and communication, (ii) care and support, (iii) the role of culture and (iv) trust and satisfaction. Further analysis, through discussion and immersion in the data, revealed that care transition periods were presented alongside three phases of transitional care: pre‐transition (during hospitalization), early‐transition (the period between discharge and the 7th day after discharge) and late transition (the period between the 8th day and 12th month after discharge).ConclusionsOur study revealed that the communication and informational needs of frail older individuals change during the transition period. While Turkish older adults and family caregivers expressed satisfaction with healthcare services in the UK, many struggled due to a lack of knowledge on how to access them.ImpactThe support of family caregivers is a crucial component in facilitating transitional care for frail older patients, as they help in accessing healthcare services and using technological devices or platforms. It should be noted that family caregivers often hold the same level of authority as their elderly Turkish counterparts.Patient or Public ContributionNo patient or public contribution.

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“…In a study conducted in the Netherlands, the fact that patients do not know the scope of their information needs and cultural differences in views on diseases and their treatments is among these obstacles. It has been observed that family members who obstruct communication and family translators who translate incorrectly effectively prevent the patient’s participation in medical decisions (Sungur et al , 2022). Having a communicative proficiency in two languages is a social strategy that also provides integration between two cultures.…”

Section: Literature Review and Theoretical Frameworkmentioning

confidence: 99%

Assessment of attitudes toward patient rights of people live from a Turkey town and migrating to Belgium

KORKMAZ

Demirsoy

2022

IJHRH

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Purpose The purpose of this study is to assess the attitudes of individuals living in Belgium and in Emirdag in regard to patient rights and the effect of cultural differences in developing the attitude. This study measures the attitudes of two groups of people living in different geographies, “individuals living in Emirdag and Individuals emigrated from Emirdag to Belgium,” and yet having the same ethnic origin, common social and cultural capital. Design methodology/approach Implementing quantitative research, the data for the current study was obtained from a total of 1,043 participants, who were administered the Likert type “Patient Rights Attitude Scale” along with demographic questionnaire. Findings The total score mean of the scale is 126.09 ± 15.21 in the Emirdag group, whereas in the Belgian group, it is 129.78 ± 13.356. While the attitude with the highest mean score about patient rights in both groups observed under “the right to seek medical attention” and “the right to consent in medical and drug researches” items and thusthese items are considered as a common denominator, the two groups differed in the scale items that received the lowest average. Social implications It is important to determine the effects of attitudes toward patient rights and cultural differences on the development of attitudes, to determine the problems in the delivery of health services and health service procurement. Originality/value The structures that direct the choices and decisions of individuals in critical subjects such as organ transplantation and euthanasia, and thus having different practices in the doctrine, can be affected by individuals and even society’s rules, beliefs and values. It was concluded that immigrant participants’ dominating culture and related beliefs, rules and values play a role in the making of decision and choice.

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Caring for older culturally and linguistically diverse patients with Cancer: Healthcare Providers' perceived barriers to communication

Cited by 9 publications

References 38 publications

Palliative and End-of-Life Care Access for Immigrants Living in High-income Countries: A Scoping Review

Palliative and End-of-Life Care Access for Immigrants Living in High-income Countries: A Scoping Review

‘Hearing silences’: Exploring culturally safe transitional care: A qualitative study among Turkish‐speaking migrant frail older adults

Assessment of attitudes toward patient rights of people live from a Turkey town and migrating to Belgium

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