Caring for the caregiver of those living with autism-spectrum disorders: Minimizing burden and optimizing well-being

Levin, Leanne Katz; Machado-Gonzalez, Yanivis

doi:10.1016/b978-0-443-27366-7.00001-8

Understanding Autism 2025

DOI: 10.1016/b978-0-443-27366-7.00001-8

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Caring for the caregiver of those living with autism-spectrum disorders: Minimizing burden and optimizing well-being

Leanne Katz Levin,

Yanivis Machado-Gonzalez

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2025

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Cited by 1 publication

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Nursing Approaches to Autism Stigma, Bullying, and Inclusion, Alkharj- Saudi Arabia

Fathi Zaghamir,

Megahed Ibrahim

2025

Salud, Ciencia y Tecnología

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Introduction: Autism spectrum disorder (ASD) presents challenges such as social stigma, bullying, and difficulties in fostering inclusive environments. Addressing these barriers requires exploring healthcare utilization, parental advocacy, and social experiences within a cultural context. The objective of this study was to explore and analyze the factors influencing understanding, stigma, and bullying towards individuals with autism, and to identify effective strategies for fostering inclusive environments.Methods: A cross-sectional study was conducted at King Khalid Hospital's outpatient clinic in Saudi Arabia. A total of 200 families were selected through convenience sampling. Data were collected using the Autism Quotient (AQ), Social Responsiveness Scale (SRS), Community Attitudes Toward Disability Scale (CATD), Bullying and Peer Relations Questionnaire, Cultural Competence Assessment Tool (CCAT), and Parent Advocacy Scale. Data analysis involved descriptive and inferential statistics to explore correlations.Results: The sample consisted of 55% females, with 80% being Saudi nationals. Moderate autistic traits were noted (AQ mean score: 126.7), and significant social challenges were identified (SRS mean score: 159.1). Community attitudes were generally positive (CATD mean score: 94.2), but bullying was prevalent (mean score: 54.5). Cultural competence was moderate (CCAT mean score: 103.2), and parental advocacy was identified as a key factor in improving outcomes (Parent Advocacy Scale mean score: 116.2).Conclusion: The study highlights the need for increased support, reduced bullying, and improved cultural competence to foster inclusive environments for individuals with autism. Parental advocacy emerged as critical for better outcomes.

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Nursing Approaches to Autism Stigma, Bullying, and Inclusion, Alkharj- Saudi Arabia

Fathi Zaghamir,

Megahed Ibrahim

2025

Salud, Ciencia y Tecnología

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Caring for the caregiver of those living with autism-spectrum disorders: Minimizing burden and optimizing well-being

Cited by 1 publication

References 99 publications

Nursing Approaches to Autism Stigma, Bullying, and Inclusion, Alkharj- Saudi Arabia

Nursing Approaches to Autism Stigma, Bullying, and Inclusion, Alkharj- Saudi Arabia

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