Caring for the Child With an Autism Spectrum Disorder in the Acute Care Setting

Scarpinato, Nina; Bradley, Jana; Kurbjun, Kay; Bateman, Xenia; Holtzer, Brenda; Ely, Beth

doi:10.1111/j.1744-6155.2010.00244.x

Cited by 99 publications

(91 citation statements)

References 36 publications

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“…In such circumstances, parents felt they were positively accommodated and "received by warm hands" when they had the opportunity to provide information about the child's specific routines and needs to the treating nurses (17). However, this cannot be taken to an extreme; it is important to refrain from allocating full responsibility for the child's care onto the parents, as this can be unnecessarily burdensome and unwanted (17,33,34). A good interaction between the nurse and the family has been shown to result in successful care for children with ASD (24).…”

Section: Discussionmentioning

confidence: 99%

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Perioperative and Anesthesia Guidelines for Children with Autism: A Nationwide Survey from Sweden

Berglund

Huus

Enskär

et al. 2016

J Dev Behav Pediatr

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Perioperative and anesthesia guidelines for children with autism: A nationwide survey from Sweden. Developmental and Behavioral Pediatrics, 37(6) The overall aim of this study was to describe the current set of guidelines for the preparation and care for children with Autism spectrum disorder (ASD) in the perioperative setting across Sweden and explore the content of these guidelines in detail. Method: An online questionnaire was distributed to the chairpersons of all anesthesia departments (n= 68) and pediatric departments (n= 38) throughout Sweden. Follow-up phone calls were made to those departments that did not return the questionnaire. The presence of guidelines was analyzed via descriptive statistics. These guidelines and comments on routines used in these departments were analyzed inspired by conventional content analysis. Results: Seven out of the 68 anesthesia departments and none out of the 38 pediatric departments across Sweden have guidelines for preparing and/or administering care to children with ASD within the perioperative setting. From the guidelines and routines used, 3 categories emerge: "lacking the necessary conditions," "no extra considerations needed" and "care with specific consideration for children with ASD." These 3 categories span a continuum in the care. In the first category, the anesthesia induction could result in the child with ASD being physically restrained. In the last category, the entire encounter with the health care service would be adapted to the specific needs of the child. Conclusion: There is a lack of evidence-based guidelines specifically designed to meet the needs of children with ASD in the preoperative period in Sweden. Further research is needed to understand if children with ASD would benefit from evidence-based guidelines. Journal of

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Section: Discussionmentioning

confidence: 99%

“…In essence, there are multiple means to administer a calm anesthesia induction. This would help to prevent noncompliant behavior from the child (17,33,34). Davignon et al (2014) found that alterations in the organization and administration of healthcare services is essential for the successful care of children with ASD (24).…”

Section: Discussionmentioning

confidence: 99%

Perioperative and Anesthesia Guidelines for Children with Autism: A Nationwide Survey from Sweden

Berglund

Huus

Enskär

et al. 2016

J Dev Behav Pediatr

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“…Healthcare providers may be challenged with difficulties related to communication, lack of communicative skills, maladaptive behavior, and/or expressive and receptive comprehension difficulties while caring for patients with autism (Bradley & Lofchy, 2005;Sakai, Miller, Brussa, Maepherson, & Augustyn, 2014). To date, there are few educational resources for front-line emergency caregivers on providing best practices for challenging ASD characteristics in the emergency setting Olejnik, 2004;Scarpinato et al, 2010;Shellenbarger, 2004). This lack of best practices, coupled with the increases in both prevalence of ASD and reported visits to the ED, have the potential to place the ED staff in a unique and often challenging position.…”

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confidence: 91%

Emergency department visits by children with and without autism spectrum disorder: An initial comparison evaluating multiple outcome measures at one urban children's hospital

Casey

Williamson

Miller

et al. 2015

Research in Autism Spectrum Disorders

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“…In addition, children and young people with autism often have coexisting health care needs such as seizures, gastrointestinal problems, allergies, and sometimes intellectual disabilities, which require continued management and access to a comprehensive range of healthcare services (Liptak, Stuart, & Auigner 2006). This poses difficulties for health care providers as the child's behavioural responses to medical investigations and interventions are frequently not predictable (Scarpinato et al, 2010;Volkmar, Weisner, & Westphal, 2006).…”

Section: Introductionmentioning

confidence: 96%

Continuous Service Quality Improvement and Change Management for Children and Young People with Autism and Their Families: A Model for Change

Kennedy

Binns

Brammer

et al. 2016

Comprehensive Child and Adolescent Nursing

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A case study approach was used that included data collection from a wide range of sources, e.g., a stakeholder conference, audit, questionnaires, and evaluative feedback from carers, families, staff, and Autism Champions. Integrated pathways for patient care improvement were developed. Families and carers were involved in raising awareness of the needs of children with autism and policy development to meet these needs. Increased involvement from interdisciplinary working strengthened the work of the Recognising Autism Management Programme (RAMP) and improved patient care outcomes. The interventions undertaken by the RAMP resulted in improved patient /carer satisfaction, the reduction of challenging behaviour, complaints, and treatment refusal. The Autism Champions played a significant role in signposting resources and the cascading of education and practice development. All children and young people (0-25 years) on the Autism Spectrum and their families benefit from safe, individualised, high quality care in a supportive environment. Education of staff and families and targeted actions in adapting attitudes and behaviours in communication and care management will result in positive experiences for staff, children and families and financial benefit to the NHS Trust by reducing cancellation of appointments and operating theatre slots. ARTICLE HISTORY

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Caring for the Child With an Autism Spectrum Disorder in the Acute Care Setting

Cited by 99 publications

References 36 publications

Perioperative and Anesthesia Guidelines for Children with Autism: A Nationwide Survey from Sweden

Perioperative and Anesthesia Guidelines for Children with Autism: A Nationwide Survey from Sweden

Emergency department visits by children with and without autism spectrum disorder: An initial comparison evaluating multiple outcome measures at one urban children's hospital

Continuous Service Quality Improvement and Change Management for Children and Young People with Autism and Their Families: A Model for Change

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