Carnet de santé : informativité et confidentialité

Dommergues, J.P.

doi:10.1016/s0929-693x(04)90024-3

Cited by 5 publications

(3 citation statements)

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“…Asking mothers to copy information from the PCHR probably increased the reliability of reports for birth size and head circumference, leading to excellent agreement as for birth weight. The few studies that have examined the completeness of neonatal data in French PCHRs found that factual information related to birth, such as weight, was nearly always recorded [35,36]. Apgar scores, however, were more often missing in PCHRs, and when they were recorded, they were probably overestimated in comparison with the scores collected by the French Department for Mother and Infant Welfare [37].…”

Section: Discussionmentioning

confidence: 99%

“…Incorrect reporting of Apgar scores in PCHRs may explain the poor reliability of maternal reports of these scores, whereas agreement was excellent for other neonatal information. A French study has suggested that some information considered as sensitive, such as genetic diseases or low Apgar scores, might be less often recorded in PCHRs by physicians because they fear that confidentiality may be not respected [35].…”

Section: Discussionmentioning

confidence: 99%

“…As the PCHR exists in most European countries, this approach could be possible almost everywhere [32]. English, Australian and French studies that have examined use of PCHRs, although they did not specifically assess the validity of the neonatal information they contained, suggested that items on the neonatal period (birth weight, Apgar scores and information related to delivery) were satisfactorily completed and so potentially useful in epidemiological studies [33][34][35][36][37].…”

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confidence: 99%

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Perinatal factors reported by mothers: do they agree with medical records?

et al. 2008

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As perinatal events have been linked with diseases of later onset, epidemiological studies on child development and adult health require information on the perinatal period. When national neonatal registers do not exist, review of medical records may be impractical. However, neonatal information could be obtained by asking mothers to complete a postal questionnaire using data from the Personal Child Health Record (PCHR). We assessed agreement between medical records and mothers' reports for information on delivery and the newborn's condition at birth, based on the PCHR, a short time after delivery. Of 711 women giving birth in 3 French hospitals and invited to participate in the study, 580 (82%) completed a postal questionnaire 6 weeks after delivery, copying the data recorded in the PCHR when available. Information on pregnancy, delivery and the newborn's health at birth was independently extracted from medical records by physicians of the maternity departments. Agreement between medical records and maternal reports for a range of perinatal factors was assessed in 580 newborn-mother dyads using kappa coefficients. Agreement was excellent for first and second stages of delivery, gestational age, birth weight, birth size and head circumference (kappa coefficients 0.80-1.00) and good for hospitalization during pregnancy, but poor for Apgar scores. With this exception, mothers' reports appeared reliable when compared with medical records. As PCHRs exist in most developed countries, this approach could be used in epidemiological studies on child development to increase the reliability of mothers' reports of their newborn's condition at birth.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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confidence: 99%

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