Cause-Specific Mortality Among Spouses of Parkinson Disease Patients

Nielsen, Malene Mejdahl; Hansen, Johnni; Ritz, Beate; Nordahl, Helene; Schernhammer, Eva; Wermuth, Lene; Rod, Naja Hulvej

doi:10.1097/ede.0000000000000042

Cited by 21 publications

(17 citation statements)

References 29 publications

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“…14 Men as CGs in PD represent a substantial group of risk. 30 Our study emphasizes that the obvious gender differences in 29 Our study confirms previous reports that although women CGs are more likely to report greater levels of burden and attrition, in fact male CGs may be more vulnerable to caregiving stress.…”

Section: Discussionsupporting

confidence: 86%

“…28 Studies also show that men respond to stress with greater reactivity of the hypothalamic-pituitary-adrenal axis than women. 30 Our study emphasizes that the obvious gender differences in CGs, in spite of the fact that it was thought that most items investigated for CG distress are independent of gender. 25 Further studies intended to understand the effects of gender on behavior of patient with PD, and CGs are needed as well as elaboration of gender-specific strategies in the management of the disease.…”

Section: Discussionmentioning

confidence: 69%

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Quality of life in Parkinson's disease: A gender‐specific perspective

et al. 2019

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Objectives The epidemiology, manifestations, and course of Parkinson's disease (PD) may differ in men and women. Assessments of severity of the illness and quality of life (QoL), and the burden on their caregivers (CG) may change as the disease advances. We determined gender differences in assessment by patients with PD themselves and by their CGs. Methods Married couples in whom one of the partners was a PD patient and his/her spouse served as CG were separately evaluated. The patient completed the PD QoL Questionnaire (PDQ‐39), and the spouse completed the Multidimensional Caregiver Strain Index (MCSI). Comparisons were performed using statistical tests. Results We studied 122 patient‐CG pairs consisting of 86 (70.5%) male patients. Female patients reported reduced QoL due to depression and pain. Worsening of QoL in advanced PD was reported only by male patients. Female CGs felt exhaustion and damage to their health resulting from care twice as often as male CG. Social constraint and time limitations were more frequent in female CGs, whereas in male CGs it remained the same. With increasing disease severity female CGs reported that manipulations and excessive demands from their male spouses increased, while male CGs reported the same level in female patients. Male CGs, unexpectedly considered themselves more free as PD advanced in their spouses. Conclusions Male and female PD patients and CGs assess differently the severity and burden of the disease. Clinicians and social workers should be aware of these factors in attempting to improve QoL of PD patients and CGs.

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Section: Discussionsupporting

confidence: 86%

Section: Discussionmentioning

confidence: 69%

Quality of life in Parkinson's disease: A gender‐specific perspective

et al. 2019

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“…Although it is documented that, due to the care activities, family caregivers may have health problems such as increased blood pressure, 17 decreased immune function [18][19] and even increased mortality of spouse caregivers, 20 most of the defining characteristics of this study, related to the physical health of the caregiver, were classified as minors; regardless of the characteristics of "fatigue" and "exanthema" were evaluated as primary and irrelevant, respectively. In the case of "exanthema" characteristic, defined for this study as "widespread and acute short erythema", experts have argued that the multifactorial nature of this disorder contributes to the low specificity of this defining characteristic for diagnosis.…”

Section: Discussionmentioning

confidence: 96%

Caregiver role strain: bi-national study of content validation

2016

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“…Growing evidence suggests current standards of care do not adequately meet many important aspects of care for Parkinson's disease (PD) patients and their caregivers including: 1) Underrecognition and treatment of non-motor symptoms such as pain, depression and fatigue [1,2]; 2) High rates of nursing home placement, hospitalization in the last year of life and in-hospital deaths [3,4]; 3) Caregivers being under-prepared for their role [5]; and 4) High levels of burden, depression and increased mortality among PD caregivers [6,7]. Palliative care focuses on the relief of suffering for patients and families affected by serious illness through the assessment and treatment of physical, psychosocial and spiritual issues [8].…”

Section: Introductionmentioning

confidence: 99%