CCHD Screening Implementation Efforts in Latin American Countries by the Ibero American Society of Neonatology (SIBEN)

Sola, Augusto; Rodríguez, S.; Young, Alejandro; Lemus, Lourdes; Villamayor, Ramón Mir; Cardetti, Marcelo; Navarrete, Jorge Alberto Pleitez; Favareto, Veronica; Lima, Victoria; Baquero, Hernando; Forero, Lorena Velandia; Venegas, Maria Elena; Dávila, Carmen Salvat; Dieppa, Fernando Domínguez; Germosen, Taina Malena; Barrantes, Ada Nidia Oviedo; Castañeda, Ana Lorena Alvarez; Morgues, Mónica; Avila, Aldana; Fariña, Diana; Oliva, José Luís; Sosa, Erika; Golombek, Sergio

doi:10.20944/preprints202002.0356.v1

Cited by 4 publications

(8 citation statements)

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“…An additional limitation was that not all the neonates were screened, because of the lack of equipment and lack of physician staff that could perform the screening, especially during the weekend and holidays. The nurses and midwives were not involved in this project for several reasons: there were not enough human resources to do the screening and it was not considered to be in the scope of their practice [ 16 ].…”

Section: Discussionmentioning

confidence: 99%

Pulse Oximetry and Congenital Heart Disease Screening: Results of the First Pilot Study in Morocco

Slitine

Bennaoui

Sable

et al. 2020

IJNS

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Congenital heart disease (CHD) is the most common congenital malformation. Diagnosis of critical congenital heart disease (CCHD), the most severe type of congenital heart disease, in a newborn may be difficult. The addition of CCHD screening, using pulse oximetry, to clinical assessment significantly improves the rate of detection. We conducted a pilot study in Morocco on screening neonates for critical congenital heart disease. This study was conducted in the maternity ward of Mohammed VI University Hospital of Marrakesh, Morocco, and included asymptomatic newborns delivered between March 2019 and January 2020. The screening of CCHD was performed by pulse oximetry measuring the pre- and post-ductal saturation. Screening was performed on 8013/10,451 (76.7%) asymptomatic newborns. According to the algorithm, 7998 cases passed the screening test (99.82%), including one inconclusive test that was repeated an hour later and was normal. Fifteen newborns failed the screening test (0.18%): five CCHD, five false positives, and five CHD but non-critical. One false negative case was diagnosed at 2 months of age. Our results encourage us to strengthen screening for CCHD by adding pulse oximetry to the routine newborn screening panel.

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Section: Discussionmentioning

confidence: 99%

Pulse Oximetry and Congenital Heart Disease Screening: Results of the First Pilot Study in Morocco

Slitine

Bennaoui

Sable

et al. 2020

IJNS

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“…19 En América Latina se desconoce la incidencia exacta de las CC; sin embargo, de acuerdo con los datos internacionales, se han realizado estimaciones de cifras que nos dan un panorama general al respecto, datos con los que ahora se asume que las CC en esta región tienen una incidencia de entre el 9 y 11% en RN vivos. 15,20 Las anomalías cardiacas son las causantes de una alta morbimortalidad, en particular en países en vías de desarrollo, las cuales aumentan cuando hay un retraso en el diagnóstico y en la derivación oportuna a un centro terciario con experiencia en el tratamiento de estos pacientes. [21][22][23] Las CC originan entre 6 y 10% de todas las muertes infantiles y de entre 20 y 40% de las secundarias a algún tipo de malformación.…”

Section: Definición Y Epidemiología De Las Cardiopatías Congénitasunclassified

“…Sólo en el año 2013 se registraron 3,593 fallecimientos por CC, de los cuales 1,049 (29,2%) ocurrieron durante la primera semana de vida. 15,28 Los factores de riesgo asociados fueron los nacimientos fuera de algún establecimiento hospitalario, haber nacido en zonas rurales, nacimientos en hospitales públicos y el sexo masculino. 28 En el estudio de Sánchez-Barriga, en el periodo comprendido entre el año 2000 y 2015, se contabilizaron 70,741 fallecimientos de niños y adultos con CC.…”

Section: Definición Y Epidemiología De Las Cardiopatías Congénitasunclassified

Tamiz neonatal cardiaco: beneficios de su implementación en México

2022

Revista Mexicana De Pediatría

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The neonatal cardiac screen is a simple, non-invasive, painless and cost-effective test, with which critical congenital heart disease can be detected in a timely manner. Diseases that can cause serious sequelae or death of newborns, if not diagnosed in time. These malformations require some type of invasive procedure during the first month of life. According to the algorithms published as of 2011, it is performed by measuring pulse oximetry in the right hand and either of the two feet of neonates, with sequential measurements and established cut-off points. In Mexico, in compliance with national and international regulations, the screening has been implemented in some States of the Republic, with its addition as a screening test in the general health law in 2021, which makes it a mandatory study in the Mexican territory. In this document, global background, scientific, technical, operational, regulatory and economic aspects for the proper performance of screening are exposed, also proposing modifications to the algorithm and making known the analysis carried out on the costs and benefits of the Neonatal Cardiac Screen. The objective of making adjustments to the algorithm is to adapt to the demographic conditions of the Mexican population, in such a way that the number of false positives and false negatives related to geographic altitude and the measurement of the perfusion index can be reduced.

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“…Although not presented at the CCHD workshop in 2019, also included is a manuscript from the Ibero American Society of Neonatology (SIBEN) [ 13 ]. It provides details on the national and regional collaboration of 13 countries in Latin America, which allowed them to move from a regional consensus statement to varying stages of implementation, including the training of nurses and physician staff.…”

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confidence: 99%

“…It provides details on the national and regional collaboration of 13 countries in Latin America, which allowed them to move from a regional consensus statement to varying stages of implementation, including the training of nurses and physician staff. Early reports indicate that the impact in Latin America, while challenging to achieve, will result in significant improvements for infants born with CHD and CCHD, as well as those infants detected who have respiratory and hypoxic conditions [ 13 ].…”

mentioning

confidence: 99%

Newborn Critical Congenital Heart Disease Screening Using Pulse Oximetry: Value and Unique Challenges in Developing Regions

Hom

Martin

2020

IJNS

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Newborn screening for critical congenital heart disease (CCHD) is recommended for implementation in many developed countries as the standard of care. Efforts to implement this point of care screen in developing regions face unique barriers, and present important opportunities. The First Pan-African Newborn Screening Conference, held in Rabat in June 2019, incorporated a workshop dedicated specifically to identifying and discussing CCHD screening issues in the Middle East Northern Africa (MENA) region. The issues explored may be beneficial as part of the greater discussion of CCHD screening’s growing importance in developing regions around the world. Screening experts presented education and lessons learned from previous CCHD implementations, including a hands-on technical demonstration of CCHD screening. Children’s HeartLink, The Newborn Foundation, and Children’s National Hospital each presented on their experiences working with teams and pilot projects from around the world. Experience in implementation from Children’s Hospital Marrakesh was presented and highlighted some of the unique findings, challenges, and experiences of screening in Morocco. As developing regions investigate the implementation of CCHD screening using pulse oximetry either as part of research studies, pilots, regional studies, or as part of a nationally supported program, data to inform policymakers on the benefits of screening and specific needs for infrastructure development and resources are essential. This special issue contains initial lessons learned on newborn CCHD screening from a select number of developing countries, including Saudi Arabia and Morocco and regions such as Latin America.

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CCHD Screening Implementation Efforts in Latin American Countries by the Ibero American Society of Neonatology (SIBEN)

Cited by 4 publications

References 0 publications

Pulse Oximetry and Congenital Heart Disease Screening: Results of the First Pilot Study in Morocco

Pulse Oximetry and Congenital Heart Disease Screening: Results of the First Pilot Study in Morocco

Tamiz neonatal cardiaco: beneficios de su implementación en México

Newborn Critical Congenital Heart Disease Screening Using Pulse Oximetry: Value and Unique Challenges in Developing Regions

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