Cerebral Palsy in the Middle East: Epidemiology, Management, and Quality of Life

Mushta, Sami Mukhdari; Khandaker, Gulam; Power, Rosalie; Badawi, Nadia

doi:10.1007/978-3-319-74365-3_111-1

Cited by 3 publications

(4 citation statements)

References 52 publications

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“…Cerebral palsy (CP) is considered as one of the leading causes of motor disability among children and adolescents [ 1 ]. Malnutrition is defined as a person’s energy and/or nutritional consumption being deficient, excessive, or unbalanced.…”

Section: Introductionmentioning

confidence: 99%

Burden of Malnutrition among Children and Adolescents with Cerebral Palsy in Arabic-Speaking Countries: A Systematic Review and Meta-Analysis

Mushta

Jahan

Sultana³

et al. 2021

Nutrients

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Background: We aimed to estimate the burden and underlying risk factors of malnutrition among children and adolescents with cerebral palsy in Arabic-speaking countries. Methods: OVID Medline, OVID Embase, CINAHL via EBSCO, Cochrane Library, and SCOPUS databases were searched up to 3 July 2021. Publications were reviewed to identify relevant papers following pre-defined inclusion/exclusion criteria. Two reviewers independently assessed the studies for inclusion. Data extraction was independently completed by two reviewers. Descriptive and pooled analysis has been reported. Results: From a total of 79 records screened, nine full-text articles were assessed for eligibility, of which seven studies met the inclusion criteria. Study characteristics, anthropometric measurements used, and nutritional outcome reported varied between the studies. The included studies contained data of total 400 participants aged 1–18 years. Overall, (mean: 71.46%, 95% confidence interval: 55.52–85.04) of children with cerebral palsy had at least one form of malnutrition. Severe gross motor function limitation, feeding difficulties, cognitive impairment and inadequate energy intake were the commonly reported underlying risk factors for malnutrition among children with cerebral palsy. Conclusions: The burden of malnutrition is high among children with cerebral palsy in Arabic-speaking countries. More research is needed for better understanding of this public health issue in these countries.

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Section: Introductionmentioning

confidence: 99%

Burden of Malnutrition among Children and Adolescents with Cerebral Palsy in Arabic-Speaking Countries: A Systematic Review and Meta-Analysis

Mushta

Jahan

Sultana³

et al. 2021

Nutrients

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“…CP is the cause of physical disability in every 2-2.5 per 1000 live births globally (Das et al, 2017;Mohamed Madi et al, 2019). Data on CP prevalence in many Middle Eastern countries are limited; however, studies in Egypt and the Sultanate of Oman have reported that this prevalence ranges from 0.7 to 4.07 per 1000 live births (Mushta et al, 2019). In 2014, the incidence of CP in Saudi Arabia was 2.5 per 1000 live births, and >200,000 new cases were reported yearly (Aman et al, 2022).…”

Section: Journal Of Disability Research 2024mentioning

confidence: 99%

“…CP is not progressive; however, it causes impairments in muscle tone, body movement, muscle coordination, and posture, which result in disability. Furthermore, attitudinal and environmental barriers impact efficient societal participation, thereby reducing QOL among children with CP (Mushta et al, 2019). Many studies have focused on assessing the QOL of children (Parisi et al, 2016;Mohamed Madi et al, 2019) and young adults with CP.…”

Section: Journal Of Disability Research 2024mentioning

confidence: 99%

“…Family-related factors that impact QOL include socioeconomic status, relationships, support, coping mechanisms, parenting style, and disease knowledge. The convenience of management, rehabilitation services, and other environmental factors can also affect the QOL of children with CP (Mushta et al, 2019). More studies are needed to determine QOL and the factors impacting it among children with CP in Saudi Arabia.…”

Section: Journal Of Disability Research 2024mentioning

confidence: 99%

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Quality of Life among Children with Cerebral Palsy in the Kingdom of Saudi Arabia and Various Factors Influencing It: A Cross-sectional Study

Tedla,

Sangadala,

Asiri

et al. 2024

Journal of Disability Research

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Many neurological disorders cause disabilities in children, and cerebral palsy (CP) is one of the most common neurodevelopmental disorders. Children with CP experience reduced quality of life (QOL). CP is the most prevalent cause of disability in Saudi Arabia. This study aims to establish quantitative evidence related to QOL and the factors influencing it among children with CP. We recruited 132 participants between 2 and 18 years of age diagnosed with CP from several hospitals and rehabilitation centers. Participants were classified according to age based on the Pediatric QOL Inventory CP Module (PedsQL 3.0 CPM), which was completed by parental proxies. The Gross Motor Functional Classification System—Expanded and Revised (GMFCS-E&R) divided participants based on their functional level. Of the 132 participants, 79 were male and 53 were female. We observed reduced mean score of QOL in all PedsQL 3.0 CPM dimensions. Parents reported the lowest QOL for movement and balance activities and the highest QOL for eating activities. There was a significant negative moderate correlation between QOL and GMFCS-E&R scores (r s = −0.56, P = 0.01) and a significant moderate positive correlation between QOL and schooling (r s = 0.4, P < 0.03) and socioeconomic status of the family (r s = 0.42, P < 0.04). The parents of children with CP reported poor QOL for the children. Decreased functional levels were associated with reduced QOL, whereas schooling positively impacted QOL. More frequent rehabilitation services may be required to educate and encourage positive parental involvement during rehabilitation, further enhancing QOL among children with CP.

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Level of Awareness and Attitude Toward Cerebral Palsy Among Parents in Al-Baha City, Saudi Arabia

Salih¹,

Alghamdi²,

Alghamdi³

et al. 2022

Cureus

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BackgroundCerebral palsy (CP) is a chronic disorder of motion, posture, and tone which occurs due to brain insult during the period of brain growth. It is a disabling disorder in both motor and intellectual aspects. Fortunately, CP is a manageable disease that can be managed in part by increasing the knowledge and understanding of the parents. MethodologyThis cross-sectional, prospective, community-based study aimed to assess the level of parents' knowledge and their attitude toward CP using an electronic questionnaire. The parents' knowledge was classified as good or poor based on an adopted scoring system. The parents' attitude was categorized as positive or negative. ResultsOur study results showed that good knowledge (those with a score more than 60% of the total score) was noted in 275 (61.1%) participants, whereas 175 of the participants had poor knowledge (38.9%), especially regarding awareness of the diagnosis of CP. ConclusionsMost participants had an overall good knowledge of CP although they had insufficient knowledge of some aspects of the disease such as causes, disease course, clinical presentations, diagnosis, and prognosis. Although the results showed a positive attitude concerning playing with a child with CP, unfortunately, there was a negative attitude toward hiring a CP patient and a strongly negative attitude toward marrying a patient with CP.

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Cerebral Palsy in the Middle East: Epidemiology, Management, and Quality of Life

Cited by 3 publications

References 52 publications

Burden of Malnutrition among Children and Adolescents with Cerebral Palsy in Arabic-Speaking Countries: A Systematic Review and Meta-Analysis

Burden of Malnutrition among Children and Adolescents with Cerebral Palsy in Arabic-Speaking Countries: A Systematic Review and Meta-Analysis

Quality of Life among Children with Cerebral Palsy in the Kingdom of Saudi Arabia and Various Factors Influencing It: A Cross-sectional Study

Level of Awareness and Attitude Toward Cerebral Palsy Among Parents in Al-Baha City, Saudi Arabia

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