Challenges and perceived unmet needs of Chinese migrants affected by cancer: Focus group findings

Lim, Bee Teng; Butow, Phyllis; Mills, Jill; Miller, Annie; Pearce, Angela; Goldstein, David

doi:10.1080/07347332.2018.1551261

Cited by 13 publications

(5 citation statements)

References 30 publications

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“…However, English-speaking couples reported that the Coping-Together booklets provided practical coping strategies (Lambert et al, 2013), whereas some participants in our study felt that the suggestions in the initial drafts were not practical enough and requested contact details for specific healthcare professionals. This is consistent with previous literature that Chinese immigrants commonly experience challenges knowing who to consult or how to seek specialist treatment (Lim et al, 2019). Subsequent to approach (Brennan et al, 2014).…”

Section: Discussionsupporting

confidence: 91%

Moving beyond translation: Development of WeCope, a self‐management resource for Chinese‐Australian immigrants affected by cancer

Smith

Girgis

2021

European J Cancer Care

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Objective: Currently, there are no self-management resources in Australia that support both Chinese immigrant patients affected by cancer and their caregivers. This paper reports on the development and acceptability assessment of a self-management intervention (WeCope) in terms of its scope, social and cultural relevance and sensitivity.Methods: Using a community participatory approach in this qualitative study, patients, caregivers and community members took part in semi-structured focus groups or interviews in Cantonese, Mandarin or English to develop and provide feedback on the acceptability of 'WeCope'. Content analysis was performed on the transcripts using inductive (codes) and deductive (themes and categories) methods. Results: Patients (n = 17), caregivers (n = 10) and community members (n = 2) participated. Four themes were developed, guided by the framework of cultural sensitivity in interventions: (1) content preference and satisfaction; (2) perceived usefulness and usability; (3) cultural relevance and acceptability; and (4) layout and presentation. Participants most commonly wanted more information about treatment-related issues (n = 14) and available support services (n = 14). Conclusion: Chinese patients and caregivers expressed overall satisfaction with theWeCope resource and provided suggestions for improvement, including provision of more treatment-related information and contact details for available support while reducing the overall resource length.

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Section: Discussionsupporting

confidence: 91%

Moving beyond translation: Development of WeCope, a self‐management resource for Chinese‐Australian immigrants affected by cancer

Smith

Girgis

2021

European J Cancer Care

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“…University researchers met with NC2 and NECCP to set the study scope. Following review of the overall needs assessment research questions, focus group questions were formulated based on a community health needs assessment 27 and published literature 28 , 29 , 30 , 31 , 32 and placed into thematic categories by JR with review by KLR and SWG. NC2, NECCCP, and participating cancer centers reviewed the guide and provided feedback before it was finalized.…”

Section: Methodsmentioning

confidence: 99%

“…Polls were used to anonymously collect a University researchers met with NC2 and NECCP to set the study scope. Following review of the overall needs assessment research questions, focus group questions were formulated based on a community health needs assessment 27 and published literature [28][29][30][31][32] and placed into thematic categories by JR with review by KLR and SWG.…”

Section: Setting Format and Proceduresmentioning

confidence: 99%

Qualitative analysis of cancer care experiences among rural cancer survivors and caregivers

Ratnapradipa

Ranta²,

Napit

et al. 2022

The Journal of Rural Health

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Purpose Rural (vs urban) patients experience poorer cancer outcomes and are less likely to be engaged in cancer prevention, such as screening. As part of a community needs assessment, we explored rural cancer survivors’ and caregivers’ experiences, perceptions, and attitudes toward cancer care services. Methods We conducted 3 focus groups (N = 20) in Spring 2021 in rural Nebraska. Findings Three patterns of cancer diagnosis were regular care/screening without noticeable symptoms, treatment for symptoms not initially identified as cancer related, and symptom self‐identification. Most participants, regardless of how diagnosis was made, had positive experiences with timely referral for testing (imaging and biopsy) and specialist care. Physician interpersonal skills set the tone for patient‐provider communication, which colored the perception of overall care. Participants with physicians and care teams that were perceived as “considerate,” “compassionate,” and “caring” had positive experiences. Participants identified specific obstacles to care, including financial barriers, transportation, and lack of support groups, as well as more general cultural barriers. Survivors and caregivers identified organization‐based supports that helped them address such barriers. Conclusions Rural populations have unique perspectives about cancer care. Our results are being used by the state cancer coalition, state cancer control program, and the National Cancer Institute‐designated cancer center to prioritize outreach and interventions aimed to reduce rural cancer disparities, such as revitalizing lay cancer navigator programs, conducting webinars for primary care and cancer specialty providers to discuss these findings and identify potential interventions, and collaborating with national and regional cancer support organizations to expand reach in rural communities.

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“…These findings highlight the need for tailored information provision that caters to the different information preferences of patients and caregivers. The findings also illuminate Chinese migrants' unfamiliarity with the healthcare system, where language barriers impede their ability to seek and comprehend information(Butow et al, 2019). Consequently, there is a strong need for information resources specifically tailored to Chinese migrants' needs in Western countries.Patient care and support needs were reported by some studies to be the second highest level of unmet need among patients.…”

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confidence: 85%

The unmet supportive care needs of Chinese patients and caregivers affected by cancer: A systematic review

Smith

Girgis

2020

European J Cancer Care

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Introduction: Cancer patients and caregivers have myriad unmet needs which can have detrimental consequences on their psychosocial wellbeing. This systematic review aims to identify the unmet supportive care needs of immigrant and native Chinese cancer patients and caregivers. Methods: We systematically searched various electronic databases (e.g. Scopus, CINAHL, PsycInfo, etc.) from the earliest date available until January 2018. Additional studies were identified through reference lists and citation tracking. Eligibility criteria included: (a) qualitative, quantitative and/or mixed methods studies published in English; (b) immigrant and native Chinese cancer patients and/or caregivers (age ≥18 years); (c) unmet needs and/or their correlates. Studies were assessed for their risk of bias, and a narrative synthesis of findings was performed.Results: Forty-seven papers from 45 studies met eligibility criteria. The most prevalent area of unmet needs was health system and information. Patients most commonly desired one member of the hospital to talk to about all aspects of their care.Caregivers preferred information about the patient's prognosis and likely outcome.Anxiety was most commonly associated with higher levels of health system and information needs. Conclusion:Chinese patients and caregivers experience a range of unmet health system and information needs, which differ depending on their stage along the cancer trajectory.

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Challenges and perceived unmet needs of Chinese migrants affected by cancer: Focus group findings

Cited by 13 publications

References 30 publications

Moving beyond translation: Development of WeCope, a self‐management resource for Chinese‐Australian immigrants affected by cancer

Moving beyond translation: Development of WeCope, a self‐management resource for Chinese‐Australian immigrants affected by cancer

Qualitative analysis of cancer care experiences among rural cancer survivors and caregivers

The unmet supportive care needs of Chinese patients and caregivers affected by cancer: A systematic review

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