Challenges Caring for Adults With Congenital Heart Disease in Pediatric Settings: How Nurses Can Aid in the Transition

Abstract

As surgery for complex congenital heart disease is becoming more advanced, an increasing number of patients are surviving into adulthood, yet many of these adult patients remain in the pediatric hospital system. Caring for adult patients is often a challenge for pediatric nurses, because the nurses have less experience and comfort with adult care, medications, comorbid conditions, and rehabilitation techniques. As these patients age, the increased risk of complications and comorbid conditions from their heart disease may complicate their care further. Although these patients are admitted on a pediatric unit, nurses can aid in promoting their independence and help prepare them to transition into the adult medical system. Nurses, the comprehensive medical teams, and patients’ families can all effectively influence the process of preparing these patients for transition to adult care.

Pulmonary hypertension: Barrier or just a bump in the road in transplanting adults with congenital heart disease

“…Furthermore, despite many warning signs, the patient was in and out of care due to lapses in insurance. Unfortunately, issues with compliance are well documented in young adults with congenital heart disease and stem from a variety of factors including transitions in care, social pressures surrounding illness, and lack of mature decision making, among others …”