Challenges, Coping, and Resilience Among Immigrant Parents Caring for a Child With a Disability: An Integrative Review

Alsharaydeh, Ethar A.; Alqudah, Muhammad; Lee, Regina; Chan, Sally Wai‐Chi

doi:10.1111/jnu.12522

Cited by 31 publications

(40 citation statements)

References 36 publications

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“…Emotional support facilitates healthy decision making, allowing individuals to reappraise stressful situations and encouraging the use of active coping strategies (Southwick et al, 2016). Emotional support is also protective against the isolation and loneliness that parents and caregivers of persons with MEB disorders frequently experience (Alsharaydeh, Alqudah, Lee, & Chan, 2019;Sporer, Speropolous, & Monahan, 2019). Emotional support allows for cohesion and a sense of community in which parents can draw on others' experiences to solve problems and cope with adversity (Southwick et al, 2016).…”

Section: Parent's Mental Health May Underpin Family Resiliencementioning

confidence: 99%

Family resilience and flourishment: Well‐being among children with mental, emotional, and behavioral disorders

Herbell

Breitenstein

Melnyk

et al. 2020

Research in Nursing & Health

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Approximately 20% of children and adolescents in the United States are affected by mental, emotional, and behavioral (MEB) disorders. Child flourishment and family resilience contribute to healthy family development, including the promotion of child MEB wellbeing. Identifying factors that promote child flourishment and family resilience are critical. This study aimed to determine the prevalence and parenting factors associated with family resilience and child flourishment among children aged 6–17 years with MEB disorders. This was a secondary analysis of the 2016–2017 National Survey of Children's Health. The sample consisted of parents and their children (n = 1,900, weighted n = 5,375,670). Data were weighted to be representative of the US population and analyzed using descriptive statistics and linear regression. We found that only 6.3% of children aged 6–17 with an MEB were optimally flourishing. Parental aggravation was negatively associated with child flourishment, and parental coping was positively associated with child flourishment. In total, 66.5% of families with children exhibited resilience. Parental coping and availability of parental emotional support were positively associated with family resilience. Potential interventions that leverage study findings include parent training to increase parental emotional regulation (e.g., increase frustration tolerance, coping skills) and family navigation services to increase parental support (e.g., emotional support, coping skills) through the child's treatment trajectory. Overall, this study provides evidence of a disparity in flourishment in America's youth with MEB disorders, and despite this adversity, families are resilient.

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Section: Parent's Mental Health May Underpin Family Resiliencementioning

confidence: 99%

Family resilience and flourishment: Well‐being among children with mental, emotional, and behavioral disorders

Herbell

Breitenstein

Melnyk

et al. 2020

Research in Nursing & Health

View full text Add to dashboard Cite

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“…This paper aims to fill this gap and focuses on exploring strategies used by mothers or female caregivers to cope with manifold burdens associated with caring for children with a disability in Belu district, Indonesia. The current findings contribute to the body of knowledge in public health domain and provide understanding on new childhood disability-related coping strategies which are still lacking in the existing literature [12,25,[29][30][31]. The findings are presented separately from the impacts of childhood disability on mothers or female caregivers [8] as these are specifically about coping strategies used by mothers or female caregivers and need to be underpinned by existing literature on coping strategies.…”

Section: Introductionmentioning

confidence: 88%

“…Religious coping such as praying, seeing faith or spirituality as the source of comfort, peace, hope, and the belief that God is in control of their life, is another strategy used by parents and caregivers [18][19][20], while social supports from healthcare professionals and other parents in similar situations, and support from close family members, such as spouses and grandparents, have also been reported as effective strategies used by parents to cope with difficult situations in caring for children with a disability [19,[21][22][23][24]. Problem-focused coping where parents put effort into finding appropriate solutions to the challenges associated with their child's disability [9,25], is another strategy used.…”

Section: Introductionmentioning

confidence: 99%

“…Although previous studies have investigated a wide range of coping strategies used by parents and caregivers of children with a disability, evidence around self-reliance, sociocultural and economic strategies is scarce [12,25,[29][30][31]. In many developing countries, including Indonesia, mothers have the responsibility within the family to take care of children, husbands other household chores [32,33] and are also vulnerable to negative impacts of childhood disability.…”

Section: Introductionmentioning

confidence: 99%

“…The maladaptive strategies are often used for several reasons. Parents and caregivers may believe that they do not possess the capacity to change or improve the condition of their children, hold the perception that they are not responsible for everything experienced by their children, be in denial of the diagnosis, and worry about or attempt to avoid social stigma and discrimination toward them and their children [ 25 , 29 , 30 ].…”

Section: Introductionmentioning

confidence: 99%

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Psychological, sociocultural and economic coping strategies of mothers or female caregivers of children with a disability in Belu district, Indonesia

Abanit¹,

Fauk

Ward

et al. 2021

PLoS ONE

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Caring for children with a disability can cause a range of psychological and socioeconomic challenges for parents and caregivers, such as anxiety, depression, inability to find affordable and appropriate childcare, loss of income and expenses related to disability specific treatment. As part of a study exploring the impacts of childhood disability on mothers or female caregivers and families, and the copy strategies they used, this paper describes strategies employed by mothers or female caregivers to cope with challenges associated with childhood disability within their family in Belu district, Indonesia. A qualitative approach using one-on-one in-depth interviews was used to collect data from participants (n = 22) who were recruited using a combination of purposive and snowball sampling techniques. Interviews were recorded, transcribed verbatim and imported to NVivo 12 for analysis. A qualitative framework analysis was used to guide data analysis. The conceptual framework of coping strategies guided the conceptualisation and discussion of the findings. The findings showed that active psychological coping strategies, including cognitive or acceptance strategies, knowledge of both health condition and socio-academic related development of children with a disability, and family relationship and support, were used by the participants to cope with psychological challenges facing them. Self-reliance and religious/spiritual coping strategies were also utilised. Sociocultural strategies, such as social withdrawal or disengagement, professional support and culture-based support, were used by the participants to cope with social impacts, stigma, and discrimination associated with childhood disability. Participants also reported using financial strategies such as selling of family assets to cope with the economic challenges. The findings indicate the need for programs and interventions that address the needs of mothers and female caregivers and their families, to assist with effectively managing the significant challenges they face when caring for a child with a disability. Further studies are needed, with a larger number of participants and the inclusion of fathers or male caregivers, in order to better understand the broader coping experience of childhood disability impacts within families.

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“Do the Best You Can with Resources You Have to Offer”: Community stakeholder views on supporting immigrant families

Edwards

Isik-Ercan

et al. 2022

Journal Community Psychology

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First and second‐generation immigrant families of young children in the United States face potential challenges that may be mitigated with stakeholder support in their communities. We examined self‐reported views and behaviors among professionals (n = 76) working with families in a mid‐Atlantic urban community, and whether these views correlated with demographic factors. Over half of respondents were not able/willing to report the number of immigrant families served and over half believed immigrant parents are less likely to advocate for themselves or their child. Participants were fairly split in seeking advice from others and comfort in talking with immigrant families about their culture/needs. It is essential to assess stakeholders' views on perceived roles, roadblocks, and desired supports. This analysis informs efforts to work more collaboratively with community partners to improve outreach to immigrant families during those formative years in a child's development. Implications for research, practice, and policy are discussed.

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Challenges, Coping, and Resilience Among Immigrant Parents Caring for a Child With a Disability: An Integrative Review

Cited by 31 publications

References 36 publications

Family resilience and flourishment: Well‐being among children with mental, emotional, and behavioral disorders

Family resilience and flourishment: Well‐being among children with mental, emotional, and behavioral disorders

Psychological, sociocultural and economic coping strategies of mothers or female caregivers of children with a disability in Belu district, Indonesia

“Do the Best You Can with Resources You Have to Offer”: Community stakeholder views on supporting immigrant families

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