Challenges Faced by Family Caregivers: Multiple Perspectives on Eldercare

Strommen, Jane; Fuller, Heather; Sanders, Gregory F.; Elliott, Dustin M

doi:10.1177/0733464818813466

Cited by 29 publications

(21 citation statements)

References 21 publications

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“…Previous studies have shown that the environmental context of care is important in understanding the caregiving experience (Strommen et al, 2020). This finding was tested in this study.…”

Section: Discussionmentioning

confidence: 84%

Predictors of Family Caregiver Burden in Shanghai

2020

J Appl Gerontol

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This study explored predictors of family caregiver burden against the backdrop of the rapidly aging population and gradually weakening family care in urban China. It used a unique sample from the 2017 survey on older adults with functional disability and their family caregivers in Shanghai, China. A multi-pronged approach and ordinary least squares (OLS) regression were employed to identify predictors of family caregiver burden. Statistical analysis revealed that approximately 25% of caregivers felt stressed. Many independent variables related to caregivers, care recipients, their relationship, and social support had statistically significant impacts on caregiver burden. This study also found that caregiver educational level, caregiver family economic status, and the number of other caregivers had significant moderating effects on the correlation between older people’s ability to perform activities of daily living (ADL) and family caregiver burden. Policy implications derived from those findings were also discussed.

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“…Previous studies have shown that the environmental context of care is important in understanding the caregiving experience (Strommen et al, 2020). This finding was tested in this study.…”

Section: Discussionmentioning

confidence: 84%

Predictors of Family Caregiver Burden in Shanghai

2020

J Appl Gerontol

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“…3 Geriatric Education and Research Institute, Singapore, Singapore. 4 Singapore Social Service Research Centre, National University of Singapore, Singapore, Singapore.…”

Section: Supplementary Informationmentioning

confidence: 99%

“…However, the fulfilment of these responsibilities without meaningful respite or relief for prolonged periods can cause significant caregiver stress, and build up into caregiver burden [ 2 ]. This burden is often associated with negative impacts on caregivers’ emotional, physical, and psycho-social well-being and financial capability [ 3 , 4 ]. Often entering the role without sufficient preparation and support such as skills training and self-care knowledge, caregivers might not be able to deliver an optimal quality of care due to the high levels of burden they experience [ 3 , 5 ].…”

Section: Introductionmentioning

confidence: 99%

Applying the RE-AIM framework to evaluate a holistic caregiver-centric hospital-to-home programme: a feasibility study on Carer Matters

Chan

et al. 2022

BMC Health Serv Res

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Background Prolonged caregiving of an older adult can cause family caregivers to be overwhelmed, potentially affecting the well-being of both the caregivers and their care-recipients. Carer Matters is a holistic hospital-to-home programme, centred on caregivers’ needs as their care-recipients transit from hospital to home. The programme was piloted to support caregivers through caregivers needs assessment, tailored resources, tele-support, training courses, and community support network. This study aimed to examine the feasibility of Carer Matters in a tertiary hospital in Singapore. Methods This feasibility study was conducted on the pilot implementation from January to December 2021, during the Covid-19 pandemic. It adopted the Reach, Effectiveness, Adoption, Implementation, and Maintenance (RE-AIM) framework. The study highlighted quantitative data collected from key process indicators, such as number of caregivers screened, assessed on their needs and provided with assistance. Additionally, qualitative data was collected from in-depth interviews with 51 stakeholders involved in the implementation to examine their perspectives and experiences. These included family caregivers, clinician caregiver support nurses, hospital leaders and community partners. Results During the pilot, 550 caregivers were enrolled. All caregivers received educational resources when they completed the needs assessment, while 69 of them who reported high burden were given tele-support and 252 attended our caregiver training courses. Despite initial recruitment challenges and obstacles to adoption, stakeholders interviewed found Carer Matters to be effective in providing caregivers with emotional support, knowledge and skills that improved their caregiving abilities, and reduced their sense of isolation and caregiving stress. Among caregivers, the training courses were effective with majority of caregivers agreeing that the courses addressed their needs (99%) and improved their knowledge of the relevant disease conditions (97%). Programme maintenance considered among stakeholders included strategies such as multipronged approach in recruiting caregivers and inviting caregiver advocates to share their experiences. Conclusion This feasibility study highlights that Carer Matters is a valuable component to the ecosystem of support for family caregivers and their care recipients. Carer Matters extends the current patient-centric care model to a more holistic post-discharge continuity of care for both caregivers and their care-recipients, improving and maintaining their overall well-being to better allow transition from hospital-to home. Trial registration Feasibility Study of Project Carer Matters for Family Caregivers of Persons with Dementia (NCT number: NCT05205135).

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“…[29][30][31][32][33] Family caregivers of individuals living in LTC may be reluctant to contact staff to inquire about the status of their relatives because of the high workloads experienced by the LTC staff. 9,13,34 Mobile technologies, including smartphone applications, can facilitate communication with staff, 5,[35][36][37][38][39][40] by supporting care coordination and remote care. 6,[41][42][43][44] Mobile technologies can also enhance social interactions with the care recipient and increase the engagement of families in care activities.…”

Section: Background and Significancementioning

confidence: 99%

Technology Acceptance of a Mobile Application to Support Family Caregivers in a Long-Term Care Facility

et al. 2022

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Background: Family caregivers are unpaid individuals who provide care to people with chronic conditions or disabilities. Family caregivers generally do not have formal care-related training. However, they are an essential source of care. Mobile technologies can benefit family caregivers by strengthening communication with care staff and supporting the monitoring of care recipients. Objective: We conducted a mixed-method study to evaluate the acceptance and usability of mobile technology called the Smart Care System. Methods: Using convenience sampling, we recruited 27 family caregivers to evaluate the mobile Smart Care System. In the quantitative phase, we administered initial and exit questionnaires based on the Unified Theory of Acceptance and Use of Technology model. In the qualitative phase, we conducted focus groups to explore family caregivers’ perspectives and opinions on the usability of the mobile Smart Care System. With the quantitative data, we employed univariate, bivariate, and partial least squares analyses, and we used content analysis with the qualitative data. Results: We observed a high level of comfort using digital technologies among participants. On average, participants were caregivers for an average of 6.08 years (SD = 6.63), and their mean age was 56.65 years (SD = 11.62). We observed a high level of technology acceptance among family caregivers (7.69, SD = 2.11). Behavioral intention (β = 0.509, p-value = 0.004) and facilitating conditions (β = 0.310, p-value = 0.049) were statistically significant and related to usage behavior. In terms of qualitative results, participants reported that the mobile application supported care coordination and communication with staff and provided peace of mind to family caregivers. Conclusion: The technology showed a high technology acceptance and intention to use among family caregivers in a long-term care setting. Facilitating conditions influenced acceptance. Therefore, it would be important to identify and optimize these conditions to ensure technology uptake.

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Challenges Faced by Family Caregivers: Multiple Perspectives on Eldercare

Cited by 29 publications

References 21 publications

Predictors of Family Caregiver Burden in Shanghai

Predictors of Family Caregiver Burden in Shanghai

Applying the RE-AIM framework to evaluate a holistic caregiver-centric hospital-to-home programme: a feasibility study on Carer Matters

Technology Acceptance of a Mobile Application to Support Family Caregivers in a Long-Term Care Facility

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