Challenges in Conducting Qualitative Research with Individuals with Dementia

Beuscher, Linda; Grando, Victoria

doi:10.3928/19404921-20090101-04

Cited by 122 publications

(123 citation statements)

References 26 publications

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“…Qualitative research is particularly useful for exploratory research where little previous research has yet been undertaken to capture the meaningful experiences, life values, attitudes, and perceptions of persons with dementia and their family carers [15]. A qualitative approach was the most suitable for this investigation because it focused on people's feelings, meanings, experiences, and perceptions; it was also essential to conduct the study within three primary ethical principles: beneficence, respect for human dignity, and justice [16].…”

Section: Methodsmentioning

confidence: 99%

Dementia Knowledge and Attitudes of the General Public among the Bangladeshi Community in England: A Focus Group Study

Hossain

Stores

Hakak

et al. 2019

Dement Geriatr Cogn Disord

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Background: Increasing life expectancy worldwide means more people will develop dementia. Despite the rapid growth in older Bangladeshi immigrants living in the UK, there is little evidence of how community members understand and view the process of ageing and dementia. However, Bangladeshis have a higher risk of developing type 2 diabetes and heart disease, both of which are important indicators of dementia development in old age. This study aimed to explore and analyse the perception and knowledge of, and attitudes towards, ageing and dementia among the Bangladeshi community. Methods: A qualitative research approach guided two separate focus group discussions held with Bangladeshi adults in Portsmouth, UK. A topic guide was used alongside two vignettes depicting either early-or latestage dementia to stimulate discussion. The data were recorded, transcribed, and analysed thematically using NVivo qualitative software. Results: Three main themes emerged: (1) knowledge and perceptions of dementia; (2) perceived causes of dementia; and (3) perceptions of stigma about dementia. Lack of knowledge and understanding of dementia was evident, but the stigma about dementia was non-existent. This study fills a research gap by providing qualitative research examining knowledge about and attitudes towards dementia among a Bangladeshi community in England. Conclusion: Future research must highlight the importance of raising dementia awareness among, and providing information about dementia caregiving to, Bangladeshi community members, as well as providing religiously sensitive healthcare services.of dementia among Bangladeshi community members, has been highlighted. The results will provide insight for service providers, policy makers, and researchers into how dementia is perceived in the Bangladeshi community and why it has remained unreported and labelled within the broader BAME communities. It is also hoped that this study has explored the concept of dementia in depth and examined the impact of stigma on individuals, caregivers, and communities.

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Section: Methodsmentioning

confidence: 99%

Dementia Knowledge and Attitudes of the General Public among the Bangladeshi Community in England: A Focus Group Study

Hossain

Stores

Hakak

et al. 2019

Dement Geriatr Cogn Disord

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“…The PwD and caregiver were interviewed together. The interviewer took the guidelines for interviewing persons with dementia provided by Beuscher and Grando [23] into account. All interviews were audio recorded.…”

Section: Methodsmentioning

confidence: 99%

Improving Communication between Persons with Mild Dementia and Their Caregivers: Qualitative Analysis of a Practice-Based Logopaedic Intervention

Olthof-Nefkens¹,

Kruse²,

Derksen³

et al. 2018

Folia Phoniatr Logop

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Objective: To identify the essential elements of a newly developed, practice-based logopaedic intervention, which focuses on communication between persons with dementia (PwDs) and their caregivers. Methods: The intervention of 6 one-hour sessions was conducted and evaluated with 4 PwD-caregiver dyads. Eighteen therapy sessions were video recorded and semi-structured interviews with all dyads and an interview with the speech-language therapist (SLT) were audio recorded. Framework analysis and triangulation were used to analyse the data. Results: Five elements were found, which were systematically applied in the treatment of all dyads: interactive history taking, dynamic assessment, education about consequences of dementia for communicative effectiveness, development and use of two communication tools, and specific didactic strategies of the SLT. Regarding the outcome of the treatment, the dyads valued the focus on the interaction between PwD and caregiver, the usefulness of the received pieces of advice, and the empowering attitude of the SLT, which improved their self-confidence. The SLT added another element for an efficient approach: the ability to deliver treatment in people’s home environment. Conclusion: A short pragmatic but consistent approach for communication problems caused by dementia seems promising for improving daily communication and reducing stress and frustration. Further research will explore the feasibility and efficacy of this approach.

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“…Determining the 'who' part of the interview factors in the aspect of communication (Roulston, 2011). For instance, when dealing with patients exhibiting dementia of the Alzheimer, medical scholars point out the importance of good communication skills that favors the response of such individuals (Beuscher & Grando, 2009). As such, based on the type of people interviewed, proper communication as immediate challenge remains a reality.…”

Section: Challenges Of Interviewsmentioning

confidence: 99%

Literature Review for the Type of Interview in Qualitative Research

Adhabi¹,

Anozie²

2017

IJE

138

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In carrying out qualitative studies, the important issue is the quality of data collected, which is dependent on the mode of data collection used. The interview is one of the data collection techniques for qualitative researchers. Distinct from other methods, interviews have unique features that make them superior. As such, the current study explores relevant issues that are linked to interviews, especially aspects that make them central to qualitative data collection. Besides the historical appeal, the discussion covers the advantages a researcher experiences while using interviews to collect data. They require a personal commitment of both the participant and researcher. Significantly, time and resource allocation are also required. With the emerging technology, implementation of the interview process is becoming flexible thus moving away from the rigid face to face mode. Besides their strengths, there are also challenges and ethical dilemmas that are linked to interviews. As a perfect qualitative data collection method, researchers have professional issues that they have a deal with throughout the process. The link between all these issues is the subject area of the current discussion, which tackles each factor separately.

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Challenges in Conducting Qualitative Research with Individuals with Dementia

Cited by 122 publications

References 26 publications

Dementia Knowledge and Attitudes of the General Public among the Bangladeshi Community in England: A Focus Group Study

Dementia Knowledge and Attitudes of the General Public among the Bangladeshi Community in England: A Focus Group Study

Improving Communication between Persons with Mild Dementia and Their Caregivers: Qualitative Analysis of a Practice-Based Logopaedic Intervention

Literature Review for the Type of Interview in Qualitative Research

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