Challenges of caregivers providing care to children with disabilities at non-governmental organisations in Tshwane townships, South Africa

Abstract

Background: Caregivers of children with disabilities are vital stakeholders when it comes to safeguarding the health, well-being and overall survival of the children that they care for. Caregivers, however, face many challenging conditions that make it difficult for them to optimally fulfil their caregiving role. Understanding these challenges is crucial for developing empowerment programmes for caregivers, which will ensure that children with disabilities receive comprehensive, optimal care and that caregivers experience a good quality of life.Objectives: The aim of this study was to explore and describe the experiences of caregivers providing care to children with disabilities at non-governmental organisations (NGOs) in townships of Tshwane, South Africa.Method: This study followed an exploratory, descriptive and contextual research design within a qualitative methodology. The population in this study included caregivers who care for children with disabilities at NGOs (n = 10). Participants for the study were selected using the purposive sampling technique. Data were collected by conducting semistructured interviews with caregivers. Data were analysed according to the six phases of thematic analysis proposed by.Results: The study revealed six themes that represent the challenges experienced by caregivers, namely (1) initial impressions, (2) rendering care, (3) stress, (4) lack of outside support, (5) coping and (6) poor community recognition.Conclusion: Support from the Departments of Health and Social Development and other institutions providing community rehabilitation services to townships should be provided to caregivers in order to empower them with skills and knowledge to effectively address the challenges they face so that they can render optimal care to the children they care for.Contribution: Results of this study could assist in ensuring improved recognition, resilience and supportive resources for caregivers in collaboration with community based rehabilitation stakeholders in the community that would ultimately lead to improved care for children with disabilities in townships within South Africa.

Well-Being of Parents of Children with Disabilities—Does Employment Status Matter?

“…However, even though the status is formally regulated, it does not serve a function like a regular job or career (Wondemu et al 2022). One of the problems for caregivers is also the lack of public recognition and the perception that they are undervalued by the community, which leads them to isolate themselves (Akintola 2010;Moosa-Tayob and Risenga 2022). This lack of public recognition and undermining by the community could be characteristic of both the formal caregivers and the unemployed parents in our study.…”

Exploring Barriers to Accessing Sexual and Reproductive Health Services among Adolescents and Young People with Physical Disabilities in South Africa

“…The parents of children with disabilities also continue to experience many challenging conditions that make it difficult for them to optimally fulfil their caregiving role and might face more lack of support, stress, and lack of coping compared to their counterparts, as reported in South Africa [76]. Additionally, researchers [77] reported that a lack of resources poses a further challenge to providing proper care to disabled young people in Malawi.…”

Respite Care for caregivers of mentally challenged children in Pakistan: A Feasibility Study of the Family Peer Support Buddy Program

“…[16] Caregiver's responses to this unusual situation are in uenced by various features, including both their genetic and acquired characteristics. [17] These responses can have signi cant impacts on the caregiver's health, well-being, and overall quality of life. [18] Different families may utilize different coping strategies to deal with these challenging situations.…”