Challenges of having a child with congenital anomalies in Saudi Arabia: a qualitative exploration of mothers' experience

Abstract

BackgroundCongenital anomalies in children lead to morbidity, mortality, or lifelong disabilities. Mothers of children with congenital anomalies face considerable obstacles in parenting their children because of their lack of knowledge about such health conditions, lack of family support, and lack of health, rehabilitation, and social care support. In Saudi Arabia, less attention are given to researching this important issue. In this context, the purpose of the study was to explore mothers' experiences and perceptions toward children with congenital anomalies.MethodsWe employed a qualitative phenomenological study design. We purposively recruited 10 mothers of children with congenital anomalies from different cities in Saudi Arabia. We interviewed the mothers with an in-depth interview guideline. The interview questions were designed to explore their perception of congenital anomalies in children and their experience of parenting and seeking health, rehabilitation, education, and social care services for children with such anomalies.ResultAnalysis of our data suggest that mothers of children with congenital anomalies face considerable challenges because of a lack of medical, rehabilitation, and social care support, lack of knowledge about these conditions and their management, lack of responsiveness of the healthcare providers, lack of support from the family and the stigma associated with such conditions. Consequently, mothers experience poor mental and social well-being.ConclusionMothers are facing considerable challenges in raising children with congenital anomalies. Regular screening for early detection of congenital anomalies, counseling support for mothers, and improving healthcare providers' responsiveness, knowledge, and skills are necessary. In addition, appropriate awareness-raising programs need to be implemented at the community level to counteract the stigma and negative attitudes of the community toward children with congenital anomalies and their families.

Challenges and lessons learnt in the management of an HIV-exposed neonate with gastroschisis in a resource limited setting. case report

“…Parents and relatives of neonates born with congenital abnormalities face considerable social and economic challenges, particularly in resource-limited settings that include stigma, discrimination, lack of social care, and lack of rehabilitation services in the community and while seeking healthcare 23 – 25 . Therefore, healthcare providers should enhance parental education and support to help parents cope with the diagnosis, understand risk factors, and make informed decisions about the care and treatment options for neonates with conditions like gastroschisis.…”