Changes in functional status during and after pregnancy in people with cerebral palsy: An international observational study

Abstract

Background There is limited information surrounding physical changes people with cerebral palsy (CP) experience during pregnancy. Methodology This is a subgroup analysis of an international online questionnaire, developed with input from individuals with CP. Data collection included demographics, baseline functional status, and functional status changes during pregnancy. Descriptive analysis was used. Results 158 participants from 15 countries participated of which 30 had a total of 49 pregnancies resulting in birth. Worsened strength, spasticity, bladder function and fatigue occurred in 56.5% (13/23), 47.8% (11/23), 56.5% (13/23) and 87.0% (20/23) of participants. 9/23 (40.9%) required new mobility devices. Worsening of fatigue, strength, spasticity and need for a new mobility device was reported by all groups regardless of functional status. Conclusions People with CP may experience significant functional changes during pregnancy, even those who mobilized independently prior to pregnancy. These findings may inform obstetricians, nurses, neurologists and physiatrists, and contribute to preconception counselling.